Re: Question about Lupus 2004

[Guest guest]

Hi Maureen,

I really haven't heard much about the Lupus 2004, and would love it

if you could fill us all in with all that you do know. I would love

to meet you, but unfortunetly, I am on the wrong side of NY to be

able to attend. I live in a suburb outside of Rochester, NY. If you

are ever out this way do not hesitate to let me know.

I do know M. from www.butyoudontlooksick.com the member who

invented the spoons theory lives either in the city or near the city -

might be interested in meeting with you. I know she was on TV not to

long ago getting the word out about lupus and such. She is quite the

inspiration, and am sure she would welcome hearing from you. I do

know she is a member here as well. I believe you can contact her

through her site at the above address.

I look forward to hearing more about the Lupus 2004 and any other

info you would love to share with all of us. I wish you the best at

the meeting, and remember we are always here for you.

God bless and take care,

Hugs,

Deanna

> Hi, all!

>

> Sorry I haven't been posting much at all. I've been reading,

though, and have

> kept up with you that way -- this loop is great!

>

> I'm wondering if you've all heard about Lupus 2004, the

international lupus

> meeting in New York and if you're planning on attending? I'm going

to be

> speaking at a Lupus Foundation of America meeting and will be their

guest for a few

> days during the meeting. It would be nice to meet some of the faces

behind the

> names on this loop; maybe we could meet for coffee or lunch or

something?

>

> Look forward to your replies -- and to meeting, if possible! And

for everyone

> -- May 10 is going to be declared World Lupus Day and will be quite

a media

> event. Here's to further awareness and support for our confounding,

confusing

> " lupie " disease!

>

> Maureen Pratt

> www.maureenpratt.com