To Mojo

[Guest guest]

Mojo,

Thanks for replying to my post. I know I must be aggravating everyone

because I keep complaining. I don't mean to be a big baby. I'm just going

through a really hard time right now. I know that there is hope of

something good happening to me ... I just wish that it would hurry up and

happen, you know? I'm just being impatient. Thank you for acknowledging my

existence. It's good to know that I'm just not talking to myself but to

people who really understand what I'm going through.

-.

>

>Reply-To: LUPIES

>To: LUPIES

>Subject: Re: I'm so depressed ... to

>Date: Mon, 12 Apr 2004 22:49:08 -0400

>

> , please vent whenever you feel you need to. We are here and we do

>listen.

>

> Yes, you will live with this illness for as long as you will live,

>unless they find a cure. That is a possibility, hopefully that day will

>come soon for all of us. Then there is another possibility: maybe you won't

>always suffer this much, maybe you are just going through a very rough

>period. Maybe the better days are just ahead where you will go into

>remission. It is possible, believe me. I have been diagnosed 17 years ago,

>but I was in remission for a good 8 years during which time I was

>monitored, took some medication to treat the symptoms of the damage that my

>kidneys sustained when I first got sick, and I was pain free. During these

>8 years I was able to make my dream come true and have three wonderful

>children. I didn't get my BIG flare until my youngest was two years old.

>Now, I'm still hoping another long period of remission is somewhere ahead

>of me. Yes, my kidneys did get further permanent damage, yes there is more

>involvement now than the kidneys, but I'm sure sunny days are just ahead.

>

> It's the pits that you are going through all this right now. Weight gain

>is one of those things that really get me down and how can you loose it

>when your body doesn't let you exercise, when you are so depressed you just

>want to eat some more and even if you don't prednisone will make you gain

>some more. You just do your best, that's the most you can do. Getting

>disability denied is very depressing, but do not get discouraged. File

>again, take a lawyer if you don't have one already. Don't let the system

>beat you, you try and get from the system what you deserve. If you don't

>get it on your second try, make sure you claim again and go before a judge.

>

> Don't tell yourself that everything is ok when it isn't. Vent, talk to

>us or someone who will hear you out. Then do not loose hope for the better

>days. They will come and the sun will shine for you.

>

> Mojo

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