To Carol

[Guest guest]

There are no stupid questions! You're not that out of shape. It's

lupus. Some of the things it will teach you are to plan ahead, slow

down, and that a clean house isn't all it's cracked up to be. I try

to clean one room a day...and sometimes it takes me all day to do

it. When you start feeling pain and/or fatigue...stop and rest.

When you are really strung out...it's okay to cancel or alter plans

with friends. What you have to be careful about is overdoing it and

throwing yourself into a flare that will send you to bed. I get

winded walking more than two blocks now, so I stop and rest as I go.

I find I can go longer if I don't try to do it all at once. I'm

still young, so it's hard to pace myself, but Lupus will pace you if

you don't do it yourself.

> I have a question for anyone who might be able to answer it. It

> probably sounds stupid but I am so new to understanding this

disease

> and how it affects my body I guess it doesn't hurt to ask.

> Yesterday I decided I needed to get some of my house cleaned up as

> it is getting pretty bad and needs a good scrubbing. I was

> scrubbing my shower down and My arm started feeling so fatigued and

> sore and I started to feel nausea. I thought my goodness I must

> really be out of shape to not even be able to do some cleaning

> without feeling like I'm gonna be sick and my arm is going to fall

> off. I finished what I was doing and I felt like I just needed to

> lie down for awhile. I was suppose to meet a friend to go

somewhere

> and I felt like it took everything I had to get myself ready to go

> with her. Later in the evening My whole body felt fatigued and my

> arms and legs felt sore and tired. I didn't feel like doing

> anything but my body felt bad enough I found it hard to sleep or

> relax. I still feel rather tired today. Does this sound familiar

to

> anyone? Is this part of Lupus or am I just in really bad shape?

> Thanks for any help! Carol

[Guest guest]

, thanks so much for the advice and help. I'm sorry you have

to deal with this kind of thing at such a young age. I guess I am

going to have to learn what my limits are. I feel like it's so hard

to know how to tell people what you're dealing with when you don't

understand it yourself. Like telling a friend I can't go with them

because I worked too hard on my shower and don't feel well sounds so

strange. However, I am learning that I may have to do some things

like that and it's going to be a hard change for me. I'm glad that

I have this support group to help me understand and to give me

support when I need it. Everyone on here has been so great just in

the short time I have been with the group.

Thanks again! Carol

> There are no stupid questions! You're not that out of shape.

It's

> lupus. Some of the things it will teach you are to plan ahead,

slow

> down, and that a clean house isn't all it's cracked up to be. I

try

> to clean one room a day...and sometimes it takes me all day to do

> it. When you start feeling pain and/or fatigue...stop and rest.

> When you are really strung out...it's okay to cancel or alter

plans

> with friends. What you have to be careful about is overdoing it

and

> throwing yourself into a flare that will send you to bed.

>

> ---