Re: 12 months and just starting.

[Guest guest]

Where are you located? Maybe somebody can give you some info for

your area.

We started treatment at 10 months and have seen good correction.

Sophie's head is much rounder and her ears are better, but not

perfect. Her face is even beginnning to look more symmetrical when

I look at her in the mirror.

Your treatment may take longer than others, but it is definitly

worth it in my opinion. We will have had our helmet on for 6 months

when we are finished.

Hang in there. You know what is best for your child!! Definitly

check on the reputation of the orthotist if you can. A nice person

is great, but you want to correct your son's head!!

- Boise, ID

Sophia - 14 months - STARhelmet 3/15/06

> > >

> > > Hi, everyone. We just had our little boy fitted

> > for the

> > Starband. I

> > > am so worried that we started too late and that we

> > are waisting

> > our

> > > time. I feel like we have gotten the run around

> > from the Medical

> > > Community and are basically on our own. We have a

> > orthotist that

> > we

> > > like okay, but I didn't know we could shop around.

> > It took me

> > > several days to find one, and he has probably been

> > the most

> > helpful

> > > doctor we have had, but I am not sure if he is any

> > good.

> > >

> > > I noticed that Noah had a flat head when he was

> > around three

> > months,

> > > and our doctor just said to try and reposition.

> > We tried and

> > nothing

> > > worked so at five months I just started letting

> > him sleep on his

> > > stomach, and that didn't work. We were then sent

> > to a

> > Neurosurgeon

> > > and she did the CT which showed that he did not

> > have

> > craniostynosis

> > > (sp), and that was that. Mind you we met the the

> > neurosurgeon at

> > 10

> > > months. When I called back the next day, her

> > assistant told me

> > not

> > > to worry, Noah's head will round out with time,

> > and if not his

> > hair

> > > will cover it. I finally got so tired of waking

> > up in the middle

> > of

> > > the night to make sure he wasn't on that side,

> > that I called

> > around

> > > to find an orthotist. When we met with him, he

> > said we were

> > getting

> > > to the end of the treatment period. I called my

> > neurosurgeon

> > again,

> > > and played phone tag for a couple of days. When

> > her assitant

> > called

> > > me back I told them, we wanted to get the helmet

> > and I didn't care

> > if

> > > the insurance company paid for it or not. They

> > sent me a

> > > prescription in the mail, and we had the molding

> > done the next

> > day,

> > > and had the helmet a week later.

> > >

> > > I appologize for rambling, but I am really down on

> > the Medical

> > > community. None of my doctors brought up any of

> > the issues of

> > > developemental problems, or vision impairments

> > which really

> > > aggrivates me because, I look back now and feel

> > like this could

> > have

> > > been prevented.

> > >

> > > In any event I am wondering if any of you have had

> > a child this

> > old

> > > start helmet therapy, and was it helpful? Also,

> > the helmet it

> > really

> > > musty smelling. I clean it everyday, and wash my

> > sons hair and

> > head

> > > thuroughly each time, but it is really yucky.

> > >

> > > Noah, has been a really good sport about the whole

> > thing and my

> > three

> > > year old wants a helmet too.

> > >

> >

> >

> >

> >

> >

> >

> >

> > For more plagio info, go to

> > www.plagiocephaly.org/support

> >