Re: New- Lorene

[Guest guest]

Hi- welcome to our group. I hope you can find us helpful & encouraging! I don't

have answers to your questions, but I did want to make sure you have researched

the SCD (Specific Carbohydrate Diet)... especially since your son has autism and

the wheat & milk intolerance. If you haven't read it already, Breaking the

Vicious Cycle by Elaine Gottschall is highly recommended!!

Mom to Noah- age 3, med-free, & seizure-free on the keto diet

LAmet greenbank.edi@...> wrote:

Dear all,

I am new on the list- My son Lloyd is 8 years old, he has late onset

autism (I believe related so his 2 years intake of sodium valproate)

and epilepsy. His epilepsy was at first very rare, 1 fit (status

epilepstus) every 6-18 months and it started at age 3/1/2. Now it is

much milder (partial seizure resolved within 1 minute, no need to

have valium), but it is much more common (went up to 6 fits/day).

I started him on my own on the keto diet last January, checking his

urine level with the ketostick, his glc level too and making up his

menus, initially at 2;1 ratio, and then 4:1. He started ketosis

straightaway, within 8hr without fasting. There were immediate

improvements regarding his behaviour, he was much more happy,

re-started to smile, more energy etc, even his skin colour changed

from pale to nice pink. His speech improved and his learning too (I

am home educating him).

Now (4 months into the diet), we are followed regularly by a hospital

in Glasgow UK. All is fine, his fits are much reduced but not

stopped fully yet (might be, only 2-4 /week, mostly in the early part

of the night or early morning). I am not sure if I will be able to control

this with the diet, I have still a few things to play with (like counting

the carb part from his supplements).

He has lost of supplements as he does a DAN! protocol and

chelation for heavy metal removal. He seems to tolerate chelation

well and this has not increased his seizure rate. As he has been

exposed to high level of lead, before the age of 2/12 years old, I am

hoping that a chelation could stop his epilepsy, together with

improving his behaviour. Lead exposure can lead to epilepsy.

Having done this long intro; here is my first question to the list: I see

some parents are doing a fat stool test, what is it? And how can this

infleunce the diet?

Because Lloyd is sensitive to milk (and wheat) products, he does

not take any cream. I am cautious about his cholesterol level (which

has remain within the normal range), so I give him almost

exclusively some olive oil, or a blend of Omegas (I believe omega 3

triggered some fits thought). (I am lucky he can eat mayonnaise at

the spoon). I have also used some duck and goose fat, as I have

learned that these were very good for health. Any comments with

this, could someone recommend me other fats?

Finally for today, has anyone done some test with P Kane (full fatty

acid profile). She is based in Philadelphia. If so, was this useful to

defne the best fat to use for the diet?

Thanks you all!

Lorene

Lorene Amet, D. Phil

6 Greenbank Avenue

Edinburgh EH10 5RD

Tel 0

http://www.alouettecollege.info/

" The Ketogenic Diet....a realistic treatment option, NOT just a last resort! "

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