Re: Langan Update- Wean Almost Complete and Ketones Are Crazy!

[Guest guest]

-

Thanks for your reply to my post about blood in the urine. I'm

hopin it's nothing since he's not showing any other symptoms. I'm

so glad to hear the wean is going well for Langan. Your description

of her eating brought tears to my eyes!

Hope things continue to go smoothly and please keep us posted.

> Hello all. We are in day 7 of the 8 day wean and so far, knock on

> wood, Langan has been rock solid seizure wise. She had one

Tuesday

> night (the day we started the wean) and a partial on Friday.

> Period. She is loving all the new food and gets so excited in her

> highchair that it melts my heart. At the heart of this acidosis

> problem, when we didn't know it was there, the highchair was the

> nightmare place- she screamed bloody murder and threw everything

off

> the tray and refused to eat. It is so nice to see her giggling

and

> doing the " happy dance " in the chair now.

>

> We are basically not even on keto at this point. We have

unlimited

> meats, fruits and veggies, have replaced the cream with whole

milk,

> and ad lib the fats, and today started 1/2 a car exchange with

each

> meal. I still can't put the scale away- I've been putting her

bowls

> on it to put the food in even though it doesn't matter at this

> point. There is that part of my brain that still thinks that I

need

> to write down the weights of everything, just in case....

>

> Last night, we checked her BHBs several hours after her last

meal.

> 0.9- which I thought made sense b/c she has been eating so much

> fruit and veggies and b/c taking the cream away was a major change

> in the fat amounts. Anyway, she woke up several times crying last

> night. I actually think she was hungry, but I can't be sure. I

> checked BHB when she woke up and it was 3.1!!!! That makes NO

sense

> to me. Any ideas? Also, I checked blood glucose this morning and

> it was 81. Does that make sense? I guess I'll need to leave this

> to the neuro to decipher, but I am really going nuts trying to

> figure it out!

>

> Take care! I hope all is well with everyone!

>

> , mom to Langan, 2 yrs old and keto kid since 11/03; med free

> for 4 months but now on small dose of trileptal as we wean keto

due

> to severe and persistent metabolic acidosis

[Guest guest]

-

Thanks for your reply to my post about blood in the urine. I'm

hopin it's nothing since he's not showing any other symptoms. I'm

so glad to hear the wean is going well for Langan. Your description

of her eating brought tears to my eyes!

Hope things continue to go smoothly and please keep us posted.

> Hello all. We are in day 7 of the 8 day wean and so far, knock on

> wood, Langan has been rock solid seizure wise. She had one

Tuesday

> night (the day we started the wean) and a partial on Friday.

> Period. She is loving all the new food and gets so excited in her

> highchair that it melts my heart. At the heart of this acidosis

> problem, when we didn't know it was there, the highchair was the

> nightmare place- she screamed bloody murder and threw everything

off

> the tray and refused to eat. It is so nice to see her giggling

and

> doing the " happy dance " in the chair now.

>

> We are basically not even on keto at this point. We have

unlimited

> meats, fruits and veggies, have replaced the cream with whole

milk,

> and ad lib the fats, and today started 1/2 a car exchange with

each

> meal. I still can't put the scale away- I've been putting her

bowls

> on it to put the food in even though it doesn't matter at this

> point. There is that part of my brain that still thinks that I

need

> to write down the weights of everything, just in case....

>

> Last night, we checked her BHBs several hours after her last

meal.

> 0.9- which I thought made sense b/c she has been eating so much

> fruit and veggies and b/c taking the cream away was a major change

> in the fat amounts. Anyway, she woke up several times crying last

> night. I actually think she was hungry, but I can't be sure. I

> checked BHB when she woke up and it was 3.1!!!! That makes NO

sense

> to me. Any ideas? Also, I checked blood glucose this morning and

> it was 81. Does that make sense? I guess I'll need to leave this

> to the neuro to decipher, but I am really going nuts trying to

> figure it out!

>

> Take care! I hope all is well with everyone!

>

> , mom to Langan, 2 yrs old and keto kid since 11/03; med free

> for 4 months but now on small dose of trileptal as we wean keto

due

> to severe and persistent metabolic acidosis

[Guest guest]

-

Thanks for your reply to my post about blood in the urine. I'm

hopin it's nothing since he's not showing any other symptoms. I'm

so glad to hear the wean is going well for Langan. Your description

of her eating brought tears to my eyes!

Hope things continue to go smoothly and please keep us posted.

> Hello all. We are in day 7 of the 8 day wean and so far, knock on

> wood, Langan has been rock solid seizure wise. She had one

Tuesday

> night (the day we started the wean) and a partial on Friday.

> Period. She is loving all the new food and gets so excited in her

> highchair that it melts my heart. At the heart of this acidosis

> problem, when we didn't know it was there, the highchair was the

> nightmare place- she screamed bloody murder and threw everything

off

> the tray and refused to eat. It is so nice to see her giggling

and

> doing the " happy dance " in the chair now.

>

> We are basically not even on keto at this point. We have

unlimited

> meats, fruits and veggies, have replaced the cream with whole

milk,

> and ad lib the fats, and today started 1/2 a car exchange with

each

> meal. I still can't put the scale away- I've been putting her

bowls

> on it to put the food in even though it doesn't matter at this

> point. There is that part of my brain that still thinks that I

need

> to write down the weights of everything, just in case....

>

> Last night, we checked her BHBs several hours after her last

meal.

> 0.9- which I thought made sense b/c she has been eating so much

> fruit and veggies and b/c taking the cream away was a major change

> in the fat amounts. Anyway, she woke up several times crying last

> night. I actually think she was hungry, but I can't be sure. I

> checked BHB when she woke up and it was 3.1!!!! That makes NO

sense

> to me. Any ideas? Also, I checked blood glucose this morning and

> it was 81. Does that make sense? I guess I'll need to leave this

> to the neuro to decipher, but I am really going nuts trying to

> figure it out!

>

> Take care! I hope all is well with everyone!

>

> , mom to Langan, 2 yrs old and keto kid since 11/03; med free

> for 4 months but now on small dose of trileptal as we wean keto

due

> to severe and persistent metabolic acidosis

[Guest guest]

Hi , that's great news that the wean is going well. When you

wrote that Langan loves being in the highchair now with all of her

food, it brought a smile to my face, that is so great. We haven't

started the wean for Kristan yet, but I did bring her back down to

the 4:1 ratio on Saturday from the 4.5:1.

I hope things continue to go well.

Satnam, mom to Kristan, 21 months

Keto kid since August 2003

> Hello all. We are in day 7 of the 8 day wean and so far, knock on

> wood, Langan has been rock solid seizure wise. She had one Tuesday

> night (the day we started the wean) and a partial on Friday.

> Period. She is loving all the new food and gets so excited in her

> highchair that it melts my heart. At the heart of this acidosis

> problem, when we didn't know it was there, the highchair was the

> nightmare place- she screamed bloody murder and threw everything

off

> the tray and refused to eat. It is so nice to see her giggling and

> doing the " happy dance " in the chair now.

>

> We are basically not even on keto at this point. We have unlimited

> meats, fruits and veggies, have replaced the cream with whole milk,

> and ad lib the fats, and today started 1/2 a car exchange with each

> meal. I still can't put the scale away- I've been putting her

bowls

> on it to put the food in even though it doesn't matter at this

> point. There is that part of my brain that still thinks that I

need

> to write down the weights of everything, just in case....

>

> Last night, we checked her BHBs several hours after her last meal.

> 0.9- which I thought made sense b/c she has been eating so much

> fruit and veggies and b/c taking the cream away was a major change

> in the fat amounts. Anyway, she woke up several times crying last

> night. I actually think she was hungry, but I can't be sure. I

> checked BHB when she woke up and it was 3.1!!!! That makes NO

sense

> to me. Any ideas? Also, I checked blood glucose this morning and

> it was 81. Does that make sense? I guess I'll need to leave this

> to the neuro to decipher, but I am really going nuts trying to

> figure it out!

>

> Take care! I hope all is well with everyone!

>

> , mom to Langan, 2 yrs old and keto kid since 11/03; med free

> for 4 months but now on small dose of trileptal as we wean keto due

> to severe and persistent metabolic acidosis

[Guest guest]

Hi , that's great news that the wean is going well. When you

wrote that Langan loves being in the highchair now with all of her

food, it brought a smile to my face, that is so great. We haven't

started the wean for Kristan yet, but I did bring her back down to

the 4:1 ratio on Saturday from the 4.5:1.

I hope things continue to go well.

Satnam, mom to Kristan, 21 months

Keto kid since August 2003

> Hello all. We are in day 7 of the 8 day wean and so far, knock on

> wood, Langan has been rock solid seizure wise. She had one Tuesday

> night (the day we started the wean) and a partial on Friday.

> Period. She is loving all the new food and gets so excited in her

> highchair that it melts my heart. At the heart of this acidosis

> problem, when we didn't know it was there, the highchair was the

> nightmare place- she screamed bloody murder and threw everything

off

> the tray and refused to eat. It is so nice to see her giggling and

> doing the " happy dance " in the chair now.

>

> We are basically not even on keto at this point. We have unlimited

> meats, fruits and veggies, have replaced the cream with whole milk,

> and ad lib the fats, and today started 1/2 a car exchange with each

> meal. I still can't put the scale away- I've been putting her

bowls

> on it to put the food in even though it doesn't matter at this

> point. There is that part of my brain that still thinks that I

need

> to write down the weights of everything, just in case....

>

> Last night, we checked her BHBs several hours after her last meal.

> 0.9- which I thought made sense b/c she has been eating so much

> fruit and veggies and b/c taking the cream away was a major change

> in the fat amounts. Anyway, she woke up several times crying last

> night. I actually think she was hungry, but I can't be sure. I

> checked BHB when she woke up and it was 3.1!!!! That makes NO

sense

> to me. Any ideas? Also, I checked blood glucose this morning and

> it was 81. Does that make sense? I guess I'll need to leave this

> to the neuro to decipher, but I am really going nuts trying to

> figure it out!

>

> Take care! I hope all is well with everyone!

>

> , mom to Langan, 2 yrs old and keto kid since 11/03; med free

> for 4 months but now on small dose of trileptal as we wean keto due

> to severe and persistent metabolic acidosis

[Guest guest]

Hi , that's great news that the wean is going well. When you

wrote that Langan loves being in the highchair now with all of her

food, it brought a smile to my face, that is so great. We haven't

started the wean for Kristan yet, but I did bring her back down to

the 4:1 ratio on Saturday from the 4.5:1.

I hope things continue to go well.

Satnam, mom to Kristan, 21 months

Keto kid since August 2003

> Hello all. We are in day 7 of the 8 day wean and so far, knock on

> wood, Langan has been rock solid seizure wise. She had one Tuesday

> night (the day we started the wean) and a partial on Friday.

> Period. She is loving all the new food and gets so excited in her

> highchair that it melts my heart. At the heart of this acidosis

> problem, when we didn't know it was there, the highchair was the

> nightmare place- she screamed bloody murder and threw everything

off

> the tray and refused to eat. It is so nice to see her giggling and

> doing the " happy dance " in the chair now.

>

> We are basically not even on keto at this point. We have unlimited

> meats, fruits and veggies, have replaced the cream with whole milk,

> and ad lib the fats, and today started 1/2 a car exchange with each

> meal. I still can't put the scale away- I've been putting her

bowls

> on it to put the food in even though it doesn't matter at this

> point. There is that part of my brain that still thinks that I

need

> to write down the weights of everything, just in case....

>

> Last night, we checked her BHBs several hours after her last meal.

> 0.9- which I thought made sense b/c she has been eating so much

> fruit and veggies and b/c taking the cream away was a major change

> in the fat amounts. Anyway, she woke up several times crying last

> night. I actually think she was hungry, but I can't be sure. I

> checked BHB when she woke up and it was 3.1!!!! That makes NO

sense

> to me. Any ideas? Also, I checked blood glucose this morning and

> it was 81. Does that make sense? I guess I'll need to leave this

> to the neuro to decipher, but I am really going nuts trying to

> figure it out!

>

> Take care! I hope all is well with everyone!

>

> , mom to Langan, 2 yrs old and keto kid since 11/03; med free

> for 4 months but now on small dose of trileptal as we wean keto due

> to severe and persistent metabolic acidosis

[Guest guest]

Have you heard fron the neuro yet ? Any answers?

I would think that for her to have high bhb after fasting that she is using

stored fat for energy/survival rather than stored glucose (glycogen) for some

reason - usually the body will preferentially use glycogen, but Langan sees to

not want to do that???

I suppose there was no reason to ever check for ketones before going on the

diet, but she perhaps was in ketosis naturally on and off before even starting

keto - poss why she went too overboard after being put on it officially?

Or - is she losing weight right now and producing ketones that way maybe?

Probably too soon too tell I guess?

----- Original Message -----

From: langansmom

To: ketogenic

I checked BHB when she woke up and it was 3.1!!!! That makes NO sense

to me. Any ideas? Also, I checked blood glucose this morning and

it was 81. Does that make sense? I guess I'll need to leave this

to the neuro to decipher, but I am really going nuts trying to

figure it out!