Guest guest Posted July 7, 2004 Report Share Posted July 7, 2004 My son, has been on the ketogenic diet since 1/27/04. He started off great, then started progressively getting worse. He is now having just as many seizures as before. I have not been able to get any help from any dietitians or doctors. I have learned more from your messages than from anyone. I am hoping someone out there might have some advice for me. We tried to get into s Hopkins, but they claim that they will not accept anyone from out of state. We are from Michigan. We have gone to 2 different children's hospitals in Michigan and have gotten no answers. I am using the Keto Meal Planner from PHP in CA. We are wondering if his extremely low levels of carnitine could be adversely affecting the diet. His ratio was normal (.8) before starting the diet. In May, it was 3.2 and 3 weeks ago, it was 3.5. He was started on 330 mg/day of Carnitore in May which was increased in June to 660 mg/day. Now he is taking 990 mg/day. We are waiting for test results from Duke for a carnitine profile. Does anyone have any ideas? Quote Link to comment Share on other sites More sharing options...
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