Changing meds while on diet?

[Guest guest]

Hi, I am new to the group. My daughter started the ketogenic diet almost four

weeks ago, and we are still having some trouble stabilizing her ketones and

controlling her seizures. She has infantile spasms, and was having about 5-

6 cluster seizures a day and now she's down to 1-3 a day. The problem is,

the seizures she does have are lasting much longer, and seeming to take

more out of her.

She's also on Depakote and Phenobarbital, and they don't seem to be doing

much for her anymore. I was wondering if anyone has switched to a different

seizure med, while still fine tuning the diet. The idea would be to aim for

better seizure control now, and if/when Daphne becomes seizure free, try to

wean her off.

One of my big goals in starting the diet was to get her off the meds; however

seizure control is always the first goal, since the seizures cause her

development to regress. I also want to make sure I give the diet a fair shot...

and might feel better about leaving her on it longer if I wasn't so worried

about

these seizures.

Any advice/ experience?

Thanks so much!

(mom to Daphne, 9 months old -- dx with Infantile Spasms at 3 months)