Guest guest Posted September 6, 2004 Report Share Posted September 6, 2004 Hi , thanks for the info about singulair. Kristan is on ventolin and I was like a broken record in the hospital explaining about how she can't have carbs and anything they give her had to be sugar free. So far so good, hopefully she won't need it again once it is all cleared up. I'm actually feeling a lot better now. Hope is doing well. Satnam > > > Hi all, we just got back from the hospital > > yesterday. Kristan > > started off with a cold on Thursday and then it > > developed into > > pneumonia and an ear infection. Antibiotics were > > started but her > > breathing got worse, so we took her to emerg > > Saturday afternoon and > > they determined it was bronchial pneumonia, admitted > > her for 24 hours > > and now we are using an inhaler with an aerochamber > > to help clear up > > her lungs. Poor kid is doing better now. They > > don't know if it's > > asthma yet, it does run on my husband's side, but if > > this happens > > again when she gets a cold, then it will probably be > > asthma. This is > > the last thing she needs on top of the seizures. > > Even though she is > > ill and I hadn't checked her ketones for a couple of > > days as I was > > just so concerned with keeping her hydrated, the > > seizures have pretty > > much stayed away except for a few. I checked her > > ketones yesterday > > afternoon and it was at extra large (16) > > immediately, first time, but > > today she's back down to moderate (4) and so far so > > good, no > > seizures. > > > > Her breathing seems to be improving, we use the > > inhaler every four > > hours, but sometimes it gets a bit worse. Getting > > her to take the > > bottle is a bit of a struggle right now, poor thing > > is having trouble > > breathing, how can we expect her to drink anything, > > but eventually we > > get it into her. My husband and I and my parents > > also have caught > > her cold, but we are all on the mend. > > > > Here's hoping the seizures stay away. > > > > Satnam, mom to Kristan, 21 months > > Keto kid since August 2003 > > > > > > > __________________________________________________ > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 6, 2004 Report Share Posted September 6, 2004 Hi , thanks for the info about singulair. Kristan is on ventolin and I was like a broken record in the hospital explaining about how she can't have carbs and anything they give her had to be sugar free. So far so good, hopefully she won't need it again once it is all cleared up. I'm actually feeling a lot better now. Hope is doing well. Satnam > > > Hi all, we just got back from the hospital > > yesterday. Kristan > > started off with a cold on Thursday and then it > > developed into > > pneumonia and an ear infection. Antibiotics were > > started but her > > breathing got worse, so we took her to emerg > > Saturday afternoon and > > they determined it was bronchial pneumonia, admitted > > her for 24 hours > > and now we are using an inhaler with an aerochamber > > to help clear up > > her lungs. Poor kid is doing better now. They > > don't know if it's > > asthma yet, it does run on my husband's side, but if > > this happens > > again when she gets a cold, then it will probably be > > asthma. This is > > the last thing she needs on top of the seizures. > > Even though she is > > ill and I hadn't checked her ketones for a couple of > > days as I was > > just so concerned with keeping her hydrated, the > > seizures have pretty > > much stayed away except for a few. I checked her > > ketones yesterday > > afternoon and it was at extra large (16) > > immediately, first time, but > > today she's back down to moderate (4) and so far so > > good, no > > seizures. > > > > Her breathing seems to be improving, we use the > > inhaler every four > > hours, but sometimes it gets a bit worse. Getting > > her to take the > > bottle is a bit of a struggle right now, poor thing > > is having trouble > > breathing, how can we expect her to drink anything, > > but eventually we > > get it into her. My husband and I and my parents > > also have caught > > her cold, but we are all on the mend. > > > > Here's hoping the seizures stay away. > > > > Satnam, mom to Kristan, 21 months > > Keto kid since August 2003 > > > > > > > __________________________________________________ > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 6, 2004 Report Share Posted September 6, 2004 Hi , thanks for the info about singulair. Kristan is on ventolin and I was like a broken record in the hospital explaining about how she can't have carbs and anything they give her had to be sugar free. So far so good, hopefully she won't need it again once it is all cleared up. I'm actually feeling a lot better now. Hope is doing well. Satnam > > > Hi all, we just got back from the hospital > > yesterday. Kristan > > started off with a cold on Thursday and then it > > developed into > > pneumonia and an ear infection. Antibiotics were > > started but her > > breathing got worse, so we took her to emerg > > Saturday afternoon and > > they determined it was bronchial pneumonia, admitted > > her for 24 hours > > and now we are using an inhaler with an aerochamber > > to help clear up > > her lungs. Poor kid is doing better now. They > > don't know if it's > > asthma yet, it does run on my husband's side, but if > > this happens > > again when she gets a cold, then it will probably be > > asthma. This is > > the last thing she needs on top of the seizures. > > Even though she is > > ill and I hadn't checked her ketones for a couple of > > days as I was > > just so concerned with keeping her hydrated, the > > seizures have pretty > > much stayed away except for a few. I checked her > > ketones yesterday > > afternoon and it was at extra large (16) > > immediately, first time, but > > today she's back down to moderate (4) and so far so > > good, no > > seizures. > > > > Her breathing seems to be improving, we use the > > inhaler every four > > hours, but sometimes it gets a bit worse. Getting > > her to take the > > bottle is a bit of a struggle right now, poor thing > > is having trouble > > breathing, how can we expect her to drink anything, > > but eventually we > > get it into her. My husband and I and my parents > > also have caught > > her cold, but we are all on the mend. > > > > Here's hoping the seizures stay away. > > > > Satnam, mom to Kristan, 21 months > > Keto kid since August 2003 > > > > > > > __________________________________________________ > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 7, 2004 Report Share Posted September 7, 2004 was doing really well and really no seizure activity except for a small 30 second one on Friday afternoon. That was until the 1st day of school today...of course. He had a t/c seizure this morning that lasted 3.5 minutes. He hasn't started the diet yet but we've been working some of the aspects of the diet into our daily routine and we're noticing if he doesn't eat good one day, he has seizure the next day. I've not been letting him have his favorite fruit snacks until yesterday and then he has a seizure today. I have no idea if there is any rhyme or reasoning behind this but it is a trend that we noticed. He goes back to the doc on the 13th and I'm surely going to let him know what we're seeing. I hope Kristan is continuing to feel better!! Take care! ~Jake's mom --- kristansmommy skkahalma@...> wrote: > Hi , thanks for the info about singulair. > Kristan is on > ventolin and I was like a broken record in the > hospital explaining > about how she can't have carbs and anything they > give her had to be > sugar free. So far so good, hopefully she won't > need it again once > it is all cleared up. I'm actually feeling a lot > better now. > > Hope is doing well. > > Satnam > > > > > > > > Hi all, we just got back from the hospital > > > yesterday. Kristan > > > started off with a cold on Thursday and then it > > > developed into > > > pneumonia and an ear infection. Antibiotics > were > > > started but her > > > breathing got worse, so we took her to emerg > > > Saturday afternoon and > > > they determined it was bronchial pneumonia, > admitted > > > her for 24 hours > > > and now we are using an inhaler with an > aerochamber > > > to help clear up > > > her lungs. Poor kid is doing better now. They > > > don't know if it's > > > asthma yet, it does run on my husband's side, > but if > > > this happens > > > again when she gets a cold, then it will > probably be > > > asthma. This is > > > the last thing she needs on top of the seizures. > > > > Even though she is > > > ill and I hadn't checked her ketones for a > couple of > > > days as I was > > > just so concerned with keeping her hydrated, the > > > seizures have pretty > > > much stayed away except for a few. I checked > her > > > ketones yesterday > > > afternoon and it was at extra large (16) > > > immediately, first time, but > > > today she's back down to moderate (4) and so far > so > > > good, no > > > seizures. > > > > > > Her breathing seems to be improving, we use the > > > inhaler every four > > > hours, but sometimes it gets a bit worse. > Getting > > > her to take the > > > bottle is a bit of a struggle right now, poor > thing > > > is having trouble > > > breathing, how can we expect her to drink > anything, > > > but eventually we > > > get it into her. My husband and I and my > parents > > > also have caught > > > her cold, but we are all on the mend. > > > > > > Here's hoping the seizures stay away. > > > > > > Satnam, mom to Kristan, 21 months > > > Keto kid since August 2003 > > > > > > > > > > > > __________________________________________________ > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 7, 2004 Report Share Posted September 7, 2004 Hi , palmocourt (sp?) which is a steroid was also used on Kristan at the hospital, but they decided she did not need it anymore when she was discharged. Her breathing sounds better, and I hardly hear the wheezing (sp?). She is stuffed up, runny nose. Did lose his appetite too when he had the bronchial pneumonia? Kristan has only had 3 oz of her formula today. She has had one wet diaper from the night and 3 bowel movements today, and she doesn't look dehyrdrated, she's just content sitting and doing nothing. She takes a few sucks from the bottle here and there but has no interest. Thanks for the info, I hope gets better from his cold soon. Satnam > Hi Satnam, know that one - too is prone to bronchial pneumonia, also resp distress etc following on from a cold. > He got given a diagnosis of 'bronchial asthma' at age 3 (just before the seizures started actually...), ie - no signs at all seen usually, but when he gets a cold/virus it often goes straight to his chest and we have to start him on regular ventolin to keep resp distress at bay till all signs of the cold have gone. > Anyways....after the last nasty episode a few months ago (oxgen level kept dropping, 4 hrly ventolin wasn't working at keeping stats above 90%), we gave in (and I use those words cos I just didn't want another regular medication added with him) and started him on a steroid inhaler (beclazone in his case) that I am now pretty pleased about. He has had 2 colds since then and we haven't had to use ventolin once. The steroid inhaler basically strengthens the lungs so that when he gets a resp infection, either he has no need for the ventolin, or if he does, it kicks in a lot quicker and more effectively. We plan to keep him on it (1 puff morn and night) till about November (Spring has just started down here), and then restart it midway through next Autumn. > Not sure if this would be beneficial to or not, but thought I'd mention what has worked so far down here - touching wood 'cos he has a nasty cold right now, so we have gone to 4 puffs of the steroid to cover him thru this patch. Ear infection and conjunctivitis with this one, sigh - so antibiotics and medicated eye drops started today as well.... > > > PS - Asthma on hubby's side here too, but like , bronchial asthma only, which hubby 'grew out of' at about age 18. > ----- Original Message ----- > From: kristansmommy > > > Hi all, we just got back from the hospital yesterday. Kristan > started off with a cold on Thursday and then it developed into > pneumonia and an ear infection. Antibiotics were started but her > breathing got worse, so we took her to emerg Saturday afternoon and > they determined it was bronchial pneumonia, admitted her for 24 hours > and now we are using an inhaler with an aerochamber to help clear up > her lungs. Poor kid is doing better now. They don't know if it's > asthma yet, it does run on my husband's side, but if this happens > again when she gets a cold, then it will probably be asthma. This is > the last thing she needs on top of the seizures. Even though she is > ill and I hadn't checked her ketones for a couple of days as I was > just so concerned with keeping her hydrated, the seizures have pretty > much stayed away except for a few. I checked her ketones yesterday > afternoon and it was at extra large (16) immediately, first time, but > today she's back down to moderate (4) and so far so good, no > seizures. > > Her breathing seems to be improving, we use the inhaler every four > hours, but sometimes it gets a bit worse. Getting her to take the > bottle is a bit of a struggle right now, poor thing is having trouble > breathing, how can we expect her to drink anything, but eventually we > get it into her. My husband and I and my parents also have caught > her cold, but we are all on the mend. > > Here's hoping the seizures stay away. > > Satnam, mom to Kristan, 21 months > Keto kid since August 2003 > > > > > > > Quote Link to comment Share on other sites More sharing options...
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