Guest guest Posted September 10, 2004 Report Share Posted September 10, 2004 I just looked at the cream we changed to and it has polysorbate 80 in it and we have seen a dramatic increase in seizures. This could be something. Its in the trash now. Thanks for pointing that out Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 10, 2004 Report Share Posted September 10, 2004 Hi- I am putting my $.02 in here with the cream issue. We have never had problems with the cream and seizures, but at the beginning of the diet Noah's ketones were lower and we couldn't figure out why, then another friend that is on the diet pointed out that our cream wasn't the only ingredient- it contained polysorbate 80 and some artificial ingredients. (polysorbate 80 is a no-no according to the dieticians.) I had only been concerned with finding 36% cream and hadn't took time to read more about it! I switched to a different cream that the only ingredient was heavy whipping cream, and his ketones were better. Anyway- maybe this applies to some of you! Mom to Noah- age 3, med free, & seizure-free on the keto diet. lloydandleslie@... wrote: Bill, Lately, the only thing we could think of was that about the same time we saw an increase in seizures was the time we changed creams. We have used thesame brand for years and have been fine. All of the sudden, these seizures started happening daily and we thought it might be the probiotics or the cream. We stopped the probiotics and the seizures have slowed down but not completely. Now, I'm going back to the old cream. All of this has happened since the constipation issues in July. We just can't get him back on track. Its sooooooooo frustrating. You would think after 3 years on this diet, the fine tuning would be over. Not so. Thanks for your help Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 10, 2004 Report Share Posted September 10, 2004 Hi I checked heavy cream we are using and there is polisorbate 80 there too.I am afraid it is the only heavy cream available here( i've never seen other brands).Do you think polisorbat 80 can significant affect seizure control?Have you seen big improvement after you switched creams? Natasha mom to 2 years old ph,suspected SMEI/Dravet's syndrome,keto kid sinf August 23d 2004 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 10, 2004 Report Share Posted September 10, 2004 We had to go to a different grocery store to get our cream. We were getting it at Super Walmart & the Walmart and Dean's brand there has polysorbate 80. There is a differerent Dean's brand (in the purple carton) that is only heavy whipping cream, and we can get that at a different grocery store. If you have an organic section, organic cream works, too, it is just much more pricey usually. We were told that polysorbate 80 is not allowed, and may have to be factored into the meal plan if you use it. We did notice that his ketones improved after the cream switch, so it would definitely be worth looking into. natashagainford beasly@...> wrote: Hi I checked heavy cream we are using and there is polisorbate 80 there too.I am afraid it is the only heavy cream available here( i've never seen other brands).Do you think polisorbat 80 can significant affect seizure control?Have you seen big improvement after you switched creams? Natasha mom to 2 years old ph,suspected SMEI/Dravet's syndrome,keto kid sinf August 23d 2004 " The Ketogenic Diet....a realistic treatment option, NOT just a last resort! " List is for parent to parent support only. It is important to get medical advice from a professional keto team! Subscribe: ketogenic-subscribe Unsubscribe: ketogenic-unsubscribe Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 10, 2004 Report Share Posted September 10, 2004 I agree. There are additives that may be throwing off the calculations. Bill wrote: > Hi- I am putting my $.02 in here with the cream issue. We have never had problems with the cream and seizures, but at the beginning of the diet Noah's ketones were lower and we couldn't figure out why, then another friend that is on the diet pointed out that our cream wasn't the only ingredient- it contained polysorbate 80 and some artificial ingredients. (polysorbate 80 is a no-no according to the dieticians.) I had only been concerned with finding 36% cream and hadn't took time to read more about it! I switched to a different cream that the only ingredient was heavy whipping cream, and his ketones were better. Anyway- maybe this applies to some of you! > > > Mom to Noah- age 3, med free, & seizure-free on the keto diet. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 10, 2004 Report Share Posted September 10, 2004 Thanks I've never thought about organic section and health food stores.I'll check tomorrow Natasha > Hi > I checked heavy cream we are using and there is polisorbate 80 there > too.I am afraid it is the only heavy cream available here( i've > never seen other brands).Do you think polisorbat 80 can significant > affect seizure control?Have you seen big improvement after you > switched creams? > > Natasha mom to 2 years old ph,suspected SMEI/Dravet's > syndrome,keto kid sinf August 23d 2004 > > > > " The Ketogenic Diet....a realistic treatment option, NOT just a last resort! " > > List is for parent to parent support only. > It is important to get medical advice from a professional keto team! > Subscribe: ketogenic-subscribe > Unsubscribe: ketogenic-unsubscribe > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 10, 2004 Report Share Posted September 10, 2004 Sure- I can only hope that was the cause & things get better from here on out!! lloydandleslie@... wrote: I just looked at the cream we changed to and it has polysorbate 80 in it and we have seen a dramatic increase in seizures. This could be something. Its in the trash now. Thanks for pointing that out Quote Link to comment Share on other sites More sharing options...
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