I'm back

[Guest guest]

Hi all,

I joined up here at the beginning of the year. Signed off after a

COPD diagnosis and have been coping. Had some severe dyspnea (sat 87 on

room air after a flight of stairs). Scan showed interstitial lung

disease. Pred taper by primary, feel much better. Labwork coming and

maybe another scan. If labwork isn't diagnostic of specific process I

will probably need a VATS for diagnosis.

Would write more but am at work.

jon

[Guest guest]

Jon,

Welcome back! Sorry you have reason to make your way back to us but I'm glad we can be here for you. It sounds like you are on quite a journey to a complete diagnosis. It's very wearing isn't it?

If we can be of any help please just give us a shout. Collectively I think we've been through pretty much every scenario one could imagine.

I'm looking forward to hearing more from you soon!

Beth-Moderator

Fibrotic NSIP 06/06 UCTD 06/08

"Take chances, make mistakes and get messy!"

Miss Frizzle

To: Breathe-Support Sent: Saturday, November 15, 2008 6:53:39 AMSubject: I'm back

Hi all,I joined up here at the beginning of the year. Signed off after a COPD diagnosis and have been coping. Had some severe dyspnea (sat 87 on room air after a flight of stairs). Scan showed interstitial lung disease. Pred taper by primary, feel much better. Labwork coming and maybe another scan. If labwork isn't diagnostic of specific process I will probably need a VATS for diagnosis. Would write more but am at work.jon

[Guest guest]

Welcome back Jon...we'll catch up more later with what's going on with you...

MamaSher, age 70. IPF 3-06, OR. NasturtiumsDon't fret about tomorrow, God is already there!

I'm back

Hi all,I joined up here at the beginning of the year. Signed off after a COPD diagnosis and have been coping. Had some severe dyspnea (sat 87 on room air after a flight of stairs). Scan showed interstitial lung disease. Pred taper by primary, feel much better. Labwork coming and maybe another scan. If labwork isn't diagnostic of specific process I will probably need a VATS for diagnosis. Would write more but am at work.jon

[Guest guest]

Jon

welcome back, sorry you need us, but glad you are herePink Joyce IPF 3/06 Pennsylvania

Subject: I'm backTo: Breathe-Support Date: Saturday, November 15, 2008, 6:53 AM

Hi all,I joined up here at the beginning of the year. Signed off after a COPD diagnosis and have been coping. Had some severe dyspnea (sat 87 on room air after a flight of stairs). Scan showed interstitial lung disease. Pred taper by primary, feel much better. Labwork coming and maybe another scan. If labwork isn't diagnostic of specific process I will probably need a VATS for diagnosis. Would write more but am at work.jon

[Guest guest]

Jon

welcome back, sorry you need us, but glad you are hereThank you all for your welcome.Learning already.jon

-- Two wrongs don't make a right,but two 's make an airplane.