just checking in...3 years seizure free! A positive story!!

[Guest guest]

Hey all! I was a dedicated member of this group 2 years ago, but

weaned myself off the group slowly after weaning my son off the diet

2 years ago.

For those who do not remember us, my son Ethie started with tonic-

clonic, atonic, myoclonic and petit mal seizures suddenly just befor

he turned three. Five weeks after he started all this, we paniced

and put him on the ketogenic diet and Lamictal. His seizures ended

there with the exception of one breakthrough seizure he had after

licking his brothers cinnamon sugar bagel. 2 monthes after this

treatment was initiated, he had a normal EEG. One year later, after

having clean EEG's since then, Dr. Chez thought we

were " overtreating " him and recommended we start weaning the diet and

see what happens. We took 4 months to wean him, but since june of

2002, he has been on a normal diet (for a 4-6 yr old) and has had no

reoccurence of seizures. We weaned him off the Lamicatal slowly as

well, and has been off that completely since Dec 2003, still with no

seizures at this point!

Ethie is in a special ed Kindergarten, but is now testing " low

normal " with all his speech and language tests, and should be

mainstreamed in the next year.

Was it the Lamictal, the diet,a combination, or just a true miracle?

We will never know, but God is truely good and we have our little

Ethie back again! I wish you all the same good fortune! xox Tina