Rhonda's previous advice/

[Guest guest]

Dear ,

Over the past 2 years since starting the diet I have always been encouraged

and took comfort from the idea that there is always something to fine tune

on the diet when things are not going well. When we depended on meds we had

to hope the doctor was right and that the doctor's adding of a new med or

increasing the present med would be the answer. For the past 2 years the

diet has empowered me to help my daughter. I no longer run to the doctor

but instead when things are " rocky " I brain storm and look for the

solution...often researching the archives of this group or posting my

questions and getting possible solutions. I let the doctor know what I've

been doing at the next appointment which is often not for another 3 or more

months.

There seems to be an endless list of possibilities to consider when fine

tuning. Whenever the seizures increase or come back I look at what I was

doing prior and what I may have changed. It's been a little rocky for us

this week. We recently dropped the remaining dairies in her diet

(cheese/butter) and changed oils from olive to sunflower resulting in the

ketones suddenly decreasing. Today I went back to olive oil with minimal

sunflower and I'm hoping that will be the answer. One important thing that

has helped in fine tuning is that we have eliminated all dyes,

preservatives, artificial sweetners, processed foods from her diet. The

less possible triggers helped us discover that Shan is lactose intolerant

which in itself was causing seizures. Recently I have concluded that a

possible food trigger can slowly build up over weeks and months until it

causes problems (example: preservatives, colors/dyes, etc.).

It has been a very long time since Shan has not wanted to eat. I look at

the ketones. Often when the ketones are excessively high a child will not

be hungry. When the ratio comes down he/she feels better and eats. Another

time when Shan would not eat was when her stomach hurt due to poorly

digesting the fats and other food. After I started digestive enzymes she

felt better and ate fine. Other than those few times she has always wanted

to eat. She can tell time and she has been known to watch the clock until

when it is time for her next snack or meal.

Please keep me posted on how you are doing. Here's hoping that has a

better day!

Rhonda

RE: which med to drop first? Rhonda's previous advice

Dear Rhonda

You were such a help to me before, when my daughter had another issue, if

you recall. When I read this post, I was encouraged that with a planner I

can begin working on what you referred to here: calories and ratio.

has had two horrendous days, seizuring like pre-diet days, or worse.

No meds on board.

Keep you posted. What to do when they won't eat???? mum to dear

.