Re: For Lonewolf

[Guest guest]

Hi ,

Thanks for your input about my Rheumy.......And I'm glad that you have found a good Doctor that treats you so well.....I had already decided to start to look for a new Rheumy when I called this morning......and was told that the reason I didn't get a call back yesterday was because "The Nurse didn't get a chance to talk to Dr. Ali yesterday because Dr. Ali was very busy.".......(.She's so busy that her Nurse can't even talk to her??)

So said that I was forced to make my own decision to increase my Prednisone to 15mg......and I needed Dr. Ali to call my Pharmacy with a prescription for 5mg. tablets of Prednisone , because I was not going to have enough to make it through the month. I gave her my Pharmacy # and she said she would call me when Dr. Ali calls in the script.......(which I really don't expect her to do.)

My Primary Care Docs. office is closed on Tuesdays.......but I am going to call his office tomorrow and get a referral for a new Rheumatologist.........My appointment with my current Rheumy is still a month away......so If I can get an appointment with a new one by then.....I will Fire this one !

You said you see your Rheumy every month ,and have blood work done every month......Debi also sees her Doc. every month.

I would be interested to know how often others in the group see their Doctors regularly........I plan to interview Any new Doctor I get......As you said ,(I am the Employer )

C.

brian_mosher2002 wrote:

,So sorry you are having such trouble with your Rheumy. Get a new one. I changed mine and love the new one. My former one was like the one you have now...too busy, and I was just a collection of body parts and not a person.My current doctor sees me every 30 days, blood work every 30 days, has an on-call pager if I have an emergency...which I did, and he called me back immediately, and treats me like a person. You deserve the best....so fire the doctor and get a new one. You are the employer after all!> Debi,> where did you find this miracle man......He sounds great !> C.> What the Hell is a Rheumy For !!> > > Hello my friends,> I'm going to give a little vent..if you don't mind, and if you do mind ......I'm going to anyway.> I woke up this morning, and noticed that my rash has started up again, so I thought I would be a good Lupie, and call my rheumy, and ask her if I could increase my prednisone to 15 mg. a day to try to nip it in the bud......instead of waiting till it has gotten miserable and

having to go in and get a shot, and increase my prednisone to 60mg. and then taper off again.......I told the nurse what I wanted to do ......she said she would talk to the Doctor , and call me back. Now I had an appt. with my psychiatrist this morning, and I told the nurse ......if I'm not home just leave a message on my answering machine.> I went ahead to my appt. ......when i got home,there was no message, so I stayed off the phone, and computer all day waiting for her call..........fell asleep on the sofa. Woke up at 4:30 .....called the Rheumy's office......got a recorded message that they close at 4:00.> > I just decided to go ahead and increase my dose.....the only problem is that if I do that I will need more Prednisone to get through the month......she just writes the script for a 30 days supply.I can

usually maintain on 10mg. a day, but after a month of being on 10mg. after my last flare.......I am flaring again. > > I just don't like this new Rheumy.......she doesn't want to be bothered except for my reg. checkup with her every 3 or 4 months........If I have a problem between times......I wind up having to go to my Primary Doc.for treatment!> When I had sores in my nose last month.....I called her,and she wanted to send me to an Ear, nose, and Throat specialist !!........I just went to my Primary, and he prescribed some antibiotics, and it cleared up.....Before that when I had a flare with my rash.....I went to my Primary,and got a shot of Depo pledrol.....and was told to call my Rheumy if I had any more problems.....well a week later the rash was back with a vengeance......I called my Rheumy....and she told me that

since I had already been treated for the rash by my primary......to go back to him....I did, and got another shot of Depo and he increased my pred. to 60 mg.and then tapered off over the next month to 10mg......after a month of being on 10 mg.my rash is beginning to raise it's ugly head again!!> Now am I wrong........but isn't my Rheumy supposed to take care of my problems related to my Lupus......and my primary just supposed to take care of things like.....colds, or other none Lupus related illnesses.....That's the way my old Rheumy treated me......but then he dropped off my insurance, and I had to find a new one........Now my primary treats me for everything, and I just go to my Rheumy every 3 or 4 months for blood work, and stuff........anything else and she just can't be bothered!!...So I am going to go ahead and increase my Pred. to 15mg. ......and call my primary to

see if he will write a script for enough pred. to get me through the month.......I don't know what else to do.....If My rash goes ahead and gets worse anyway......OH **** IT......I'm just so disgusted !!> > C.> > > > > > > > > > > "The LUPIES Store" Come check out our store...> http://www.cafepress.com/thelupies> > "The LUPIES Web Page"> http://www.itzarion.com/lupusgroup.html> > "The LUPIES online photo albums!" > Check out what your fellow Lupies look

like...> http://www.picturetrail.com/gallery/view?username=lupies > > > > > "The LUPIES Store" Come check out our store...> http://www.cafepress.com/thelupies> > "The LUPIES Web Page"> http://www.itzarion.com/lupusgroup.html> > "The LUPIES online photo albums!" > Check out what your fellow Lupies look like...> http://www.picturetrail.com/gallery/view?username=lupies > > > > -------------------------------------------------------------------------->

[Guest guest]

C., I see my Rheumy every two months, sometimes three depending on how I'm doing, but

if I'm in a flare, she and my PCP both call me in more often to check up and see how I'm doing.

Lab work is every month, unless otherwise indicated. Hugs, MM

[Guest guest]

I would love to share my two number one doctor, oh! i forgot awesome doctors with you. but you see. San Diego is the place you should be. They started up in a little office and shared floor 2 with other Doctors. Until- one- by- one- your outa here. need the space...By. Now the office hasd put a freeze on: NO NEW PATIENCE: I waited 2 years. to see those Doctors. OF RA. Lupus.and any form of it's not all in your head sydroms. Been goin' now for almost 1 year. April 29 th will be my last appointment at the office. BUT NOT TO WORRY! The Medical RA Group has totally out grew their office space. So whats to do. They had built a number one medical office facilty. In Mission Valley. Ready to move in May 1st., Also while its's moving time all appointment are still as scheduled. So I'm surely am BLESSED. Buzy Bee....................

What the Hell is a Rheumy For !!> > > Hello my friends,> I'm going to give a little vent..if you don't mind, and if you do mind ......I'm going to anyway.> I woke up this morning, and noticed that my rash has started up again, so I thought I would be a good Lupie, and call my rheumy, and ask her if I could increase my prednisone to 15 mg. a day to try to nip it in the bud......instead of waiting till it has gotten miserable and having to go in and get a shot, and increase my prednisone to 60mg. and then taper off again.......I told the nurse what I wanted to do ......she said she would talk to the Doctor , and call me back. Now I had an appt. with my psychiatrist this morning, and I told the nurse ......if I'm not home just leave a message on my answering machine.> I went ahead to my appt. ......when i got home,there was no message, so I stayed off the phone, and computer all day waiting for her call..........fell asleep on the sofa. Woke up at 4:30 .....called the Rheumy's office......got a recorded message that they close at 4:00.> > I just decided to go ahead and increase my dose.....the only problem is that if I do that I will need more Prednisone to get through the month......she just writes the script for a 30 days supply.I can usually maintain on 10mg. a day, but after a month of being on 10mg. after my last flare.......I am flaring again. > > I just don't like this new Rheumy.......she doesn't want to be bothered except for my reg. checkup with her every 3 or 4 months........If I have a problem between times......I wind up having to go to my Primary Doc.for treatment!> When I had sores in my nose last month.....I called her,and she wanted to send me to an Ear, nose, and Throat specialist !!........I just went to my Primary, and he prescribed some antibiotics, and it cleared up.....Before that when I had a flare with my rash.....I went to my Primary,and got a shot of Depo pledrol.....and was told to call my Rheumy if I had any more problems.....well a week later the rash was back with a vengeance......I called my Rheumy....and she told me that since I had already been treated for the rash by my primary......to go back to him....I did, and got another shot of Depo and he increased my pred. to 60 mg.and then tapered off over the next month to 10mg......after a month of being on 10 mg.my rash is beginning to raise it's ugly head again!!> Now am I wrong........but isn't my Rheumy supposed to take care of my problems related to my Lupus......and my primary just supposed to take care of things like.....colds, or other none Lupus related illnesses.....That's the way my old Rheumy treated me......but then he dropped off my insurance, and I had to find a new one........Now my primary treats me for everything, and I just go to my Rheumy every 3 or 4 months for blood work, and stuff........anything else and she just can't be bothered!!...So I am going to go ahead and increase my Pred. to 15mg. ......and call my primary to see if he will write a script for enough pred. to get me through the month.......I don't know what else to do.....If My rash goes ahead and gets worse anyway......OH **** IT......I'm just so disgusted !!> > C.> > > > > > > > > > > "The LUPIES Store" Come check out our store...> http://www.cafepress.com/thelupies> > "The LUPIES Web Page"> http://www.itzarion.com/lupusgroup.html> > "The LUPIES online photo albums!" > Check out what your fellow Lupies look like...> http://www.picturetrail.com/gallery/view?username=lupies > > > > > "The LUPIES Store" Come check out our store...> http://www.cafepress.com/thelupies> > "The LUPIES Web Page"> http://www.itzarion.com/lupusgroup.html> > "The LUPIES online photo albums!" > Check out what your fellow Lupies look like...> http://www.picturetrail.com/gallery/view?username=lupies > > > > -------------------------------------------------------------------------->