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Re: Is it time to increase cals?

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That is what I would look at too - legarthy etc would warrant

glucose testing, but since there is a possible problem with fats, it

may also be the other end of the spectrum - like poss not all the

cals you are giving him, ie - fat - being metabolised properly, so

he might be running out cal wise overall.

Re needing to adjust cals, didn't you change them fairly recently

after checking his growth etc?

I don't have my book with me at the mo for cals per kg etc, but what

has he done weight/height wise over the past weeks? Any height

growth without concurrent weight gain? If there has been, this would

in effect be a type of weight loss in a child, and would indicate

that yes, cals might need bumping a bit.

>

> > OK - another question here. Was just filling my hubby

> > in on the past two days events w/ and something

> > jumped out - wanted to run it by you all.

> >

> > So... about 1 hr. after Coop eats - he acts tired -

> > rubs eyes/yawns. I feed him and 20 minutes later he

> > perks up is full of energy for about an hour and then

> > same thing happens. It's like he runs out of fuel.

> > He hasn't taken a nap in forever but today, fell

> > asleep in my arms as I rocked him an hour after lunch.

> > Had to wake him up 20 min. later to go to the Dr. but

> > was totally out-of-it until we got back home and I fed

> > him again. Perked right up w/in 20 min. Strangest

> > thing. It's now 8:30 and he is typically asleep by

> > now but he's raring to go.

> >

> > Just wondering if maybe he needs more calories??

> > Perhaps it's time to bump them up a bit?

> >

> > He's currently on 1080 calories - 3:1 ratio 19g

> > protein - 34 lbs. and is 37 inches tall. I have no

> > idea how to calculate the approximate calories based

> > on his growth parameters and was wondering if his

> > current cals. seem reasonable?

> >

> > In addition, the only seizures we are currently seeing

> > are tonic clonic's early morning - from 4-7 am. There

> > again, wondering if his ketones are dipping?

> >

> > What do you think - should we increase cals? If so,

> > by how much?

> >

> > THANKS a million!

> > (mom to - 2.5 yrs. old - ketokid since

> > 6/03 - med free since 3/27/04 - working on the seizure

> > free part but getting closer)

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That is what I would look at too - legarthy etc would warrant

glucose testing, but since there is a possible problem with fats, it

may also be the other end of the spectrum - like poss not all the

cals you are giving him, ie - fat - being metabolised properly, so

he might be running out cal wise overall.

Re needing to adjust cals, didn't you change them fairly recently

after checking his growth etc?

I don't have my book with me at the mo for cals per kg etc, but what

has he done weight/height wise over the past weeks? Any height

growth without concurrent weight gain? If there has been, this would

in effect be a type of weight loss in a child, and would indicate

that yes, cals might need bumping a bit.

>

> > OK - another question here. Was just filling my hubby

> > in on the past two days events w/ and something

> > jumped out - wanted to run it by you all.

> >

> > So... about 1 hr. after Coop eats - he acts tired -

> > rubs eyes/yawns. I feed him and 20 minutes later he

> > perks up is full of energy for about an hour and then

> > same thing happens. It's like he runs out of fuel.

> > He hasn't taken a nap in forever but today, fell

> > asleep in my arms as I rocked him an hour after lunch.

> > Had to wake him up 20 min. later to go to the Dr. but

> > was totally out-of-it until we got back home and I fed

> > him again. Perked right up w/in 20 min. Strangest

> > thing. It's now 8:30 and he is typically asleep by

> > now but he's raring to go.

> >

> > Just wondering if maybe he needs more calories??

> > Perhaps it's time to bump them up a bit?

> >

> > He's currently on 1080 calories - 3:1 ratio 19g

> > protein - 34 lbs. and is 37 inches tall. I have no

> > idea how to calculate the approximate calories based

> > on his growth parameters and was wondering if his

> > current cals. seem reasonable?

> >

> > In addition, the only seizures we are currently seeing

> > are tonic clonic's early morning - from 4-7 am. There

> > again, wondering if his ketones are dipping?

> >

> > What do you think - should we increase cals? If so,

> > by how much?

> >

> > THANKS a million!

> > (mom to - 2.5 yrs. old - ketokid since

> > 6/03 - med free since 3/27/04 - working on the seizure

> > free part but getting closer)

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That is what I would look at too - legarthy etc would warrant

glucose testing, but since there is a possible problem with fats, it

may also be the other end of the spectrum - like poss not all the

cals you are giving him, ie - fat - being metabolised properly, so

he might be running out cal wise overall.

Re needing to adjust cals, didn't you change them fairly recently

after checking his growth etc?

I don't have my book with me at the mo for cals per kg etc, but what

has he done weight/height wise over the past weeks? Any height

growth without concurrent weight gain? If there has been, this would

in effect be a type of weight loss in a child, and would indicate

that yes, cals might need bumping a bit.

>

> > OK - another question here. Was just filling my hubby

> > in on the past two days events w/ and something

> > jumped out - wanted to run it by you all.

> >

> > So... about 1 hr. after Coop eats - he acts tired -

> > rubs eyes/yawns. I feed him and 20 minutes later he

> > perks up is full of energy for about an hour and then

> > same thing happens. It's like he runs out of fuel.

> > He hasn't taken a nap in forever but today, fell

> > asleep in my arms as I rocked him an hour after lunch.

> > Had to wake him up 20 min. later to go to the Dr. but

> > was totally out-of-it until we got back home and I fed

> > him again. Perked right up w/in 20 min. Strangest

> > thing. It's now 8:30 and he is typically asleep by

> > now but he's raring to go.

> >

> > Just wondering if maybe he needs more calories??

> > Perhaps it's time to bump them up a bit?

> >

> > He's currently on 1080 calories - 3:1 ratio 19g

> > protein - 34 lbs. and is 37 inches tall. I have no

> > idea how to calculate the approximate calories based

> > on his growth parameters and was wondering if his

> > current cals. seem reasonable?

> >

> > In addition, the only seizures we are currently seeing

> > are tonic clonic's early morning - from 4-7 am. There

> > again, wondering if his ketones are dipping?

> >

> > What do you think - should we increase cals? If so,

> > by how much?

> >

> > THANKS a million!

> > (mom to - 2.5 yrs. old - ketokid since

> > 6/03 - med free since 3/27/04 - working on the seizure

> > free part but getting closer)

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