Re: Keto diet/ SCD- Fat digestion

[Guest guest]

Hi ,

Thanks for your message; yes I know this book well and we have tried

this diet for a few months; my son was starving on it (not enough

fats, too low in calories); I now also have lab evidences of glucose

metabolism being impaired for Lloyd, so switching to ketogenesis has

helped with energy. It has stopped the constant hunger Lloyd had. In

some ways, the keto diet is similar to SCD, and some improvements we

have seen could be related to gut flora regulation- certainly the

stools abnormalities we have had are cleared.

I wanted to say that I have been adding an enzyme extract to my son's

meals to help him to digest the fats; called B.P.P. from Thorn, it

has betaine hydrochloride (520mg), Pepsin (20mg), Pancreatin (100mg),

Amylase, Protease and LIPASE. Seems to help a lot with digestion.

Lorene

- In ketogenic , wrote:

> Hi- welcome to our group. I hope you can find us helpful &

encouraging! I don't have answers to your questions, but I did want to

make sure you have researched the SCD (Specific Carbohydrate Diet)...

especially since your son has autism and the wheat & milk intolerance.

If you haven't read it already, Breaking the Vicious Cycle by Elaine

Gottschall is highly recommended!!

>

>

> Mom to Noah- age 3, med-free, & seizure-free on the keto diet

>

> LAmet wrote:

> Dear all,

>

> I am new on the list- My son Lloyd is 8 years old, he has late onset

> autism (I believe related so his 2 years intake of sodium valproate)

> and epilepsy. His epilepsy was at first very rare, 1 fit (status

> epilepstus) every 6-18 months and it started at age 3/1/2. Now it is

> much milder (partial seizure resolved within 1 minute, no need to

> have valium), but it is much more common (went up to 6 fits/day).

>

> I started him on my own on the keto diet last January, checking his

> urine level with the ketostick, his glc level too and making up his

> menus, initially at 2;1 ratio, and then 4:1. He started ketosis

> straightaway, within 8hr without fasting. There were immediate

> improvements regarding his behaviour, he was much more happy,

> re-started to smile, more energy etc, even his skin colour changed

> from pale to nice pink. His speech improved and his learning too (I

> am home educating him).

>

> Now (4 months into the diet), we are followed regularly by a hospital

> in Glasgow UK. All is fine, his fits are much reduced but not

> stopped fully yet (might be, only 2-4 /week, mostly in the early part

> of the night or early morning). I am not sure if I will be able to

control

> this with the diet, I have still a few things to play with (like

counting

> the carb part from his supplements).

>

> He has lost of supplements as he does a DAN! protocol and

> chelation for heavy metal removal. He seems to tolerate chelation

> well and this has not increased his seizure rate. As he has been

> exposed to high level of lead, before the age of 2/12 years old, I am

> hoping that a chelation could stop his epilepsy, together with

> improving his behaviour. Lead exposure can lead to epilepsy.

>

> Having done this long intro; here is my first question to the list:

I see

> some parents are doing a fat stool test, what is it? And how can this

> infleunce the diet?

>

> Because Lloyd is sensitive to milk (and wheat) products, he does

> not take any cream. I am cautious about his cholesterol level (which

> has remain within the normal range), so I give him almost

> exclusively some olive oil, or a blend of Omegas (I believe omega 3

> triggered some fits thought). (I am lucky he can eat mayonnaise at

> the spoon). I have also used some duck and goose fat, as I have

> learned that these were very good for health. Any comments with

> this, could someone recommend me other fats?

>

> Finally for today, has anyone done some test with P Kane (full fatty

> acid profile). She is based in Philadelphia. If so, was this useful to

> defne the best fat to use for the diet?

>

>

> Thanks you all!

>

> Lorene

>

>

>

> Lorene Amet, D. Phil

> 6 Greenbank Avenue

> Edinburgh EH10 5RD

> Tel 0

> http://www.alouettecollege.info/

>

>

> " The Ketogenic Diet....a realistic treatment option, NOT just a

last resort! "

>

> List is for parent to parent support only.

> It is important to get medical advice from a

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