Re: We have answers!!!!

June 14, 2006

In a message dated 6/14/2006 8:21:04 P.M. Eastern Daylight Time,

saraandchadd@... writes:

This is crazy!! I'm actually happy that someone is officially

telling me that my son is hearing impaired! No more questions!

LOL, I know that feeling. Sometimes just getting a definitive answer is a

godsend. It doesn't matter if it's what you wanted or hoped for. It lets you

focus, knowing there is something concrete to deal with.

I'm glad you've finally got some answers. Congrats!

Best -- Jill

June 14, 2006

I am confused. If he was acting up does that mean you had a non sedated ABR?

If so, um, you might want to consider having a sedated ABR. a non sedated

ABR can give a ton of false readings. Just something to think about.

Angie

>

> In a message dated 6/14/2006 8:21:04 P.M. Eastern Daylight Time,

>

> saraandchadd@... writes:

>

> This is crazy!! I'm actually happy that someone is officially

> telling me that my son is hearing impaired! No more questions!

>

> LOL, I know that feeling. Sometimes just getting a definitive answer is a

> godsend. It doesn't matter if it's what you wanted or hoped for. It lets

> you

> focus, knowing there is something concrete to deal with.

>

> I'm glad you've finally got some answers. Congrats!

>

> Best -- Jill

>

June 15, 2006

What kind of sedation are they talking about? I know I sound naive, but why

be nervous about a low level sedation?

There are various levels, and I doubt the test requires the kids to be

knocked out to the same level as for surgery. The word used is sedation not

anesthesia. The latter would make me nervous if it was being done lightly, but

my

kids were sedated every time we used an over the counter decongestant. Even

Tylenol would knock out my daughter. I use to joke that I should use it on

occasion so I could have a quiet evening -- but then never did. (grin)

For mine, all it would have taken to sedate them was a dose of Dimetapp

(sp?) and they'd have been sleeping peacefully for a few hours. If a mildly

sedated nap would give a straight answer on a hearing loss, I'd have dosed them

with Dimetapp in a heartbeat.

Best -- Jill

June 15, 2006

In a message dated 6/15/2006 11:10:09 A.M. Eastern Daylight Time,

thetomlinsons@... writes:

Kids are sedated with chloral hydrate . . . supposedly safe, but these

things can worry a parent.

Does it have to be that drug? If there is concern about the drug of choice,

could a parent who knows that Dimetapp knocks out the kid just do it

themselves and provide a napping child for the test?

Silly questions, I know, but we never had these issues.

Thanks!

Jill

June 15, 2006

I've been told repeatedly by several different doctors that they do not have to

be sedated if they are quiet enough and do not move. For the first several

parts of the test it was like he was still sleeping since he had just woken up

from a nap. He didn't even move. Their computer actually gives them a reading

that says if there is too much interfearence. There is a number that would go

from 0 and go very high with the interfearence level. His number stayed between

0 and .27 - no minimal to no interfearence at all. The ONLY audi that I have

ever spoken to who said the child had to be sedated was at Children's and they

didn't even know that the ABR actually could be performed without sedation - so

I don't exactly trust them. My daughter wasn't sedated either.

We do have the sedation scheduled and we will keep the appointment. But if

further testing gives us the same results then I will not have him sedated. I'm

a little leary of it. Theytold me 2 to 3 hours!!! His abdominal surgery only

lasted an hour and a half!

Angie Mucci angie.mucci@...> wrote:

I am confused. If he was acting up does that mean you had a non

sedated ABR?

If so, um, you might want to consider having a sedated ABR. a non sedated

ABR can give a ton of false readings. Just something to think about.

Angie

>

> In a message dated 6/14/2006 8:21:04 P.M. Eastern Daylight Time,

>

> saraandchadd@... writes:

>

> This is crazy!! I'm actually happy that someone is officially

> telling me that my son is hearing impaired! No more questions!

>

> LOL, I know that feeling. Sometimes just getting a definitive answer is a

> godsend. It doesn't matter if it's what you wanted or hoped for. It lets

> you

> focus, knowing there is something concrete to deal with.

>

> I'm glad you've finally got some answers. Congrats!

>

> Best -- Jill

>

June 15, 2006

I have always been told by all our different doctors that you can get the

ABR test with or without sedation, but they recommend sedation for infants

and toddlers who usually won't be still and quiet long enough. Being still

and quiet is a MUST for an accurate ABR.

>

> I've been told repeatedly by several different doctors that they do not

> have to be sedated if they are quiet enough and do not move. For the first

> several parts of the test it was like he was still sleeping since he had

> just woken up from a nap. He didn't even move. Their computer actually gives

> them a reading that says if there is too much interfearence. There is a

> number that would go from 0 and go very high with the interfearence level.

> His number stayed between 0 and .27 - no minimal to no interfearence at all.

> The ONLY audi that I have ever spoken to who said the child had to be

> sedated was at Children's and they didn't even know that the ABR actually

> could be performed without sedation - so I don't exactly trust them. My

> daughter wasn't sedated either.

>

> We do have the sedation scheduled and we will keep the appointment. But if

> further testing gives us the same results then I will not have him sedated.

> I'm a little leary of it. Theytold me 2 to 3 hours!!! His abdominal surgery

> only lasted an hour and a half!

>

> Angie Mucci angie.mucci@... > wrote:

> I am confused. If he was acting up does that mean you had a non sedated

> ABR?

>

> If so, um, you might want to consider having a sedated ABR. a non sedated

> ABR can give a ton of false readings. Just something to think about.

>

> Angie

>

> On 6/14/06, JillcWood@...

JillcWood@...>

> wrote:

> >

> > In a message dated 6/14/2006 8:21:04 P.M. Eastern Daylight Time,

> >

> > saraandchadd@...

40yahoo.com> writes:

> >

> > This is crazy!! I'm actually happy that someone is officially

> > telling me that my son is hearing impaired! No more questions!

> >

> > LOL, I know that feeling. Sometimes just getting a definitive answer is

> a

> > godsend. It doesn't matter if it's what you wanted or hoped for. It lets

> > you

> > focus, knowing there is something concrete to deal with.

> >

> > I'm glad you've finally got some answers. Congrats!

> >

> > Best -- Jill

> >

June 15, 2006

Kids are sedated with chloral hydrate . . . supposedly safe, but these

things can worry a parent.

>

> What kind of sedation are they talking about? I know I sound naive, but

> why

> be nervous about a low level sedation?

>

> There are various levels, and I doubt the test requires the kids to be

> knocked out to the same level as for surgery. The word used is sedation

> not

> anesthesia. The latter would make me nervous if it was being done lightly,

> but my

> kids were sedated every time we used an over the counter decongestant.

> Even

> Tylenol would knock out my daughter. I use to joke that I should use it on

>

> occasion so I could have a quiet evening -- but then never did. (grin)

>

> For mine, all it would have taken to sedate them was a dose of Dimetapp

> (sp?) and they'd have been sleeping peacefully for a few hours. If a

> mildly

> sedated nap would give a straight answer on a hearing loss, I'd have dosed

> them

> with Dimetapp in a heartbeat.

>

> Best -- Jill

>

June 15, 2006

No, it doesn't have to be that drug. Another popular one was mentioned in

some posts on here not too long ago. They tell you that a young child needs

to come for testing close to naptime, preferably. If your child comes

sleepy or asleep, great, but if not . . . they want to sedate him/her for

accurate testing and you sign forms about it. You don't HAVE to sign or do

anything you don't want to, of course . . . but who wants inaccurate

results. That would be a waste of time.

Your questions are not silly. We all want to know different things out of

curiosity or to help us form our own opinions and make decisions on things.

Ask away! I learn SOMETHING from every question and comment posted here.

>

> In a message dated 6/15/2006 11:10:09 A.M. Eastern Daylight Time,

>

> thetomlinsons@... writes:

>

> Kids are sedated with chloral hydrate . . . supposedly safe, but these

> things can worry a parent.

>

> Does it have to be that drug? If there is concern about the drug of

> choice,

> could a parent who knows that Dimetapp knocks out the kid just do it

> themselves and provide a napping child for the test?

>

> Silly questions, I know, but we never had these issues.

>

> Thanks!

>

> Jill

>

June 15, 2006

>

> Does it have to be that drug? If there is concern about the drug of

choice,

> could a parent who knows that Dimetapp knocks out the kid just do it

> themselves and provide a napping child for the test?

>

> Silly questions, I know, but we never had these issues.

>

> Thanks!

> Jill

>

My son was 5 months old when he went for his 2nd ABR - they told me I

needed him to be sleeping - so I called my pediatrician and asked if I

could give him benedryl (?) - she said go ahead.

So the morning of the test, I kept him awake, and gave him the benadryl

right before we left the house, then kept him awake the whole car ride

by singing songs and acting silly - as soon as we got to our appt, he

conked out!!!! And slept through the whole test!

- mom of

Miri - 7 1/2 - hearing

Abigail - 5 - hearing

- 2 - mild/moderate SNHL

June 15, 2006

My younger son was sedated for his ABR and didn't have problems with

it... Sample size of one

Barbara

Robin Tomlinson wrote:

> Kids are sedated with chloral hydrate . . . supposedly safe, but these

> things can worry a parent.

>

>> What kind of sedation are they talking about? I know I sound naive, but

>> why

>> be nervous about a low level sedation?

>>

June 15, 2006

I don't mean to alarm anyone, but all this talk of giving Benadryl

indiscriminately (when they don't have colds) bothers me. Many sources list

Benadryl as an ototoxic drug. I urge people to use drugs carefully.

My two cents,

RT

June 15, 2006

>

> I don't mean to alarm anyone, but all this talk of giving Benadryl

> indiscriminately (when they don't have colds) bothers me. Many

sources list

> Benadryl as an ototoxic drug. I urge people to use drugs carefully.

>

> My two cents,

> RT

I only gave it to my son after asking the pediatrician first -

June 15, 2006

From what Childrens told me it is a mixture of medications that is prescribed by

the doctor. My thing is if we can get accurate results without sedating then

why sedate? I don't give medication lightly since my nephew overdosed on a

prescription filled by Walgreens when he was only 6 months old - that might

explain my fear.

JillcWood@... wrote: What kind of sedation are they talking about?

I know I sound naive, but why

be nervous about a low level sedation?

There are various levels, and I doubt the test requires the kids to be

knocked out to the same level as for surgery. The word used is sedation not

anesthesia. The latter would make me nervous if it was being done lightly, but

my

kids were sedated every time we used an over the counter decongestant. Even

Tylenol would knock out my daughter. I use to joke that I should use it on

occasion so I could have a quiet evening -- but then never did. (grin)

For mine, all it would have taken to sedate them was a dose of Dimetapp

(sp?) and they'd have been sleeping peacefully for a few hours. If a mildly

sedated nap would give a straight answer on a hearing loss, I'd have dosed them

with Dimetapp in a heartbeat.

Best -- Jill

June 15, 2006

Well my son has been up since 7. I made him skip his morning nap which is

usually three hours. By the time 3:30 rolls around he should be good a tired.

Hopefully this does away with our sedation debate. But like I said - their

machine actually tells them when there is too much interfearence so if the audi

was OK with his level of " activity " for the most part of the test then I don't

see a need to sedate him if they are OK with it. Of course, if they told me

they COULDN'T get good results then that would change what needed to be done.

stacyjosh@...> wrote:

>

> I don't mean to alarm anyone, but all this talk of giving Benadryl

> indiscriminately (when they don't have colds) bothers me. Many

sources list

> Benadryl as an ototoxic drug. I urge people to use drugs carefully.

>

> My two cents,

> RT

I only gave it to my son after asking the pediatrician first -

__________________________________________________

June 15, 2006

Sara,

If your Audi said it was fine. Then, that is great. I think, my beef with

that comes down to the neurology end of what the ABR is reading and where

visual input is stimulating the brain.

I personally would not trust unsedated results(but remember I was burned by

unsedated results with my own daughter). But, that is the cool thing about

being a parent. We all get to talk to different professionals and make our

own decision about what we feel is best.

I am so glad you have some solid answers about your child.

Best,