Re: Our introduction!?Adrielle's mom

[Guest guest]

I might be wrong, but I think our own " Dr. " from this site

says that keto is becoming the first option (before drugs) with

LennoxGasalt kids. I believe it is thought meds make the siezures

worse. Why don't you use milk with your daughter? I'm hoping it is

just a choice you made and not a necessity, because keto is much

easier with cream. Having said that, with time, I think kids can

adjust to any diet. Good luck! We're all pulling for you.

> Hello All,

>

> I have just been " approved " to join this group and I am looking

forward to

> getting to " know " everyone! This group came highly recommended

because we

> will be starting the keto diet soon, and I could really use any

tips you

> have to offer in getting started.

>

> First, a little background...

>

> My name is and I am the mother of a 5 1/2 year old little

> blonde-haired, blue-eyed princess named Adrielle. Once you meet

her you

> fall in love forever!

>

> She has global developmental delays, functional feeding issues

(she cannot

> bite/chew & eats only soft solids that she can mash with her

tongue), she is

> non-verbal but communicates using PECS (picture exchange

communication

> system), and has the diagnosis of Autism and Lennox-Gastaut

Syndrome. In

> working with her challenges.... Adrielle has 38 hours per week of

intesive

> therapy for children with Autism called ABA (Applied Behavior

Analysis), 1

> hour of OT per week, 1 hour of feeding therapy per week, and 1

hour of PT

> per week. She also attends pre-school with TSS support one day a

week for 2

> hours. As far as Epilepsy and LGS is concerned.... " A " was

diagnosed with

> Epilepsy when she was 2. (Autism at 2 1/2) She started out with

absence and

> complex partial seizures and latter added Atonic seizures. She

has only had

> one grand mal seizure to date. We have " failed " several meds and

she is

> currently on Lamictal and Zonegran. She was diagnosed with LGS in

March

> 2004. As is typical with this syndrome, we have battled to

maintain control

> of her seizures and lost control once again approximately 2 months

ago. We

> were given the option of introducing 3 other medications, or,

begin the

> diet. After researching I knew without a doubt what we needed to

do. So,

> on Sunday October 31st we will be admitted to the hospital to

begin the diet

> and I am absolutely confident we are doing the right thing!!!

>

> What advice do you have for someone who is just getting started?

Let me

> tell you what we are already doing. I have purchased and I am

reading " The

> Keto Diet " by Dr. Freeman.. 3rd edition, I have already purchased

a gram

> scale from the hospital, and I plan to try a few " recipes " with

her before

> entering the hospital to see how she handles them (just to see how

to best

> get the oils/butter in her in a way she will accept them.... we

are not

> using cow's milk therefore no heavy cream).

>

> I must admit that I have not gone through any of the archives yet,

and I am

> sure that there is a wealth of information to be found there, but

we are in

> the middle of potty training and I probably won't have time to go

there

> anytime soon!

>

> Aside from advice I would love to hear about your success stories

and even

> your big mistakes, or, just tell me about you. I've heard this is

a

> fabulous group and can't wait to hear from you!

>

> Well, being on potty patrol for 10 days has worn me out! I'm

signing off

> for now, but I'll talk to you again soon!

>

> Take care~

>

[Guest guest]

> > Hello All,

> >

> > I have just been " approved " to join this group and I am looking

> forward to

> > getting to " know " everyone! This group came highly recommended

> because we

> > will be starting the keto diet soon, and I could really use any

> tips you

> > have to offer in getting started.

> >

> > First, a little background...

> >

> > My name is and I am the mother of a 5 1/2 year old little

> > blonde-haired, blue-eyed princess named Adrielle. Once you meet

> her you

> > fall in love forever!

> >

> > She has global developmental delays, functional feeding issues

> (she cannot

> > bite/chew & eats only soft solids that she can mash with her

> tongue), she is

> > non-verbal but communicates using PECS (picture exchange

> communication

> > system), and has the diagnosis of Autism and Lennox-Gastaut

> Syndrome. In

> > working with her challenges.... Adrielle has 38 hours per week

of

> intesive

> > therapy for children with Autism called ABA (Applied Behavior

> Analysis), 1

> > hour of OT per week, 1 hour of feeding therapy per week, and 1

> hour of PT

> > per week. She also attends pre-school with TSS support one day

a

> week for 2

> > hours. As far as Epilepsy and LGS is concerned.... " A " was

> diagnosed with

> > Epilepsy when she was 2. (Autism at 2 1/2) She started out with

> absence and

> > complex partial seizures and latter added Atonic seizures. She

> has only had

> > one grand mal seizure to date. We have " failed " several meds

and

> she is

> > currently on Lamictal and Zonegran. She was diagnosed with LGS

in

> March

> > 2004. As is typical with this syndrome, we have battled to

> maintain control

> > of her seizures and lost control once again approximately 2

months

> ago. We

> > were given the option of introducing 3 other medications, or,

> begin the

> > diet. After researching I knew without a doubt what we needed

to

> do. So,

> > on Sunday October 31st we will be admitted to the hospital to

> begin the diet

> > and I am absolutely confident we are doing the right thing!!!

> >

> > What advice do you have for someone who is just getting

started?

> Let me

> > tell you what we are already doing. I have purchased and I am

> reading " The

> > Keto Diet " by Dr. Freeman.. 3rd edition, I have already

purchased

> a gram

> > scale from the hospital, and I plan to try a few " recipes " with

> her before

> > entering the hospital to see how she handles them (just to see

how

> to best

> > get the oils/butter in her in a way she will accept them.... we

> are not

> > using cow's milk therefore no heavy cream).

> >

> > I must admit that I have not gone through any of the archives

yet,

> and I am

> > sure that there is a wealth of information to be found there,

but

> we are in

> > the middle of potty training and I probably won't have time to

go

> there

> > anytime soon!

> >

> > Aside from advice I would love to hear about your success

stories

> and even

> > your big mistakes, or, just tell me about you. I've heard this

is

> a

> > fabulous group and can't wait to hear from you!

> >

> > Well, being on potty patrol for 10 days has worn me out! I'm

> signing off

> > for now, but I'll talk to you again soon!

> >

> > Take care~

> >