Help needed.......re: low ketones

[Guest guest]

Hi, all.

I am needing some suggestions.

My daughter was on a 2.5 ratio and continually went too high with

ketones at night and would wake up crying so after giving apple juice

for some time at night I just lowered the ratio to 2:1. It worked

well for a month or more, except that I saw a rapid decline in her

behavior. No seizures, but she definitely became rather unfocused

and sometimes just nasty in her behavior........and sometimes her

ketones were not high enough by nightime and I had to give her a

cream drink to get them up. Not all the time, but I always check

before bedtime, as early morning is her " seizure time. "

Basically, she has done well with lower ketones that build during the

day and are at their highest by bedtime.

Anyway after almost 1.5 months of no seizures she seizured last night

at about 1:45 a.m., which is not her " usual " time. Her ketones were

low and I gave her a cream drink, hoping she would not seizure

again. She didn't.

All day I have fed her the 2.5:1 meals and her ketones have been

trace, no building at all. I finally supplemented with cream in the

afternoon, yet still they stayed low.....then supplemented again

before bed, as I hated putting her to bed with them so low.

These ratios have worked for us. She has been back on the 2.5:1 for

almost a week, but even at the 2:1 she had building ketones and was

not seizuring because they were high range at bedtime.

The menus are the same old menus. Fluids right where they are to

be. Not sick.

I did see a positive change in her behavior with the upping back to

2.5:1, and shared that the weaning ratios were hard on her

daughter so I suspect they were on , too.

The only thing I can think of is that this past week we have had less

red meat and mostly fish and eggs. Could a change like that make all

the difference?

Thanks for any help you can give. I am miffed! And so sad that she

seizured...

, mum to , age 5, ketokid since May '04