Guest guest Posted September 9, 2004 Report Share Posted September 9, 2004 , And I loved your upbeat message. I can just picture your family all having dinner together. It must be a first for the new house. It is so great that Langan is having a good stretch, and I am really really hoping that this wean turns out to be just what she needed. You've been such a big part of my keto experience, so I'm glad you are sticking around. This group goes beyond just keto, because there are so many other issues surrounding seizures that we all share. I'll be watching for you posts and always hoping for the very best for dear, strong little Langan and her special mom. Gretchen > > I've been away a week or so, and what a pleasant surprise I've come > > home to. I quickly scanned recent postings, and forgive me if I am > > missing something, but the news of our kids seems to be > particularly > > good the last few days. Stella, Langan, and even despite > pneumonia, > > , are experiencing seizure free days lately. And , > > too, I think. Let me add Ethan to the list. > > School started for Ethan yesterday. Even last week I was dreading > > the start of school, fearing the worse, since he was still having 2- > > 3 'freezing' episodes each day. But he hasn't had any either > > yesterday or today, and almost as good, he is really excited about > > school, dashing off to be there. That has not happened since he > > restarted medication in 2nd grade (3 years ago.) His psychologist > > believes that perhaps resumming normal activity will be the best > > therapy for stopping these 'psuedo seizures,' and perhaps he is > > right. > > Looking back, I can kind of see how these things started. > > Initiating the diet and weaning medicine were so emotionally and > > physically tormoltuous (wish I could spell) that his brain just > sort > > of 'checked out' at times. I reinforced these episodes by giving > in > > and not making him do the things that triggered them. It is > > something his brain learned to do, and they are completely > > subconscious. We always noticed that when he was feeling good and > > happy, they didn't happen. Well, now he is feeling good and he is > > very happy and these episodes are not occuring. I think the big > > difference in his emotional well-being is that he is off those high > > doses of medication that made everything pertaining to school so > > difficult. As soon as we can schedule an IEP I think we'll say > > thank you and so long to his full time academic aid. > > I'm sure there are parents reading this who are in the middle of > > great struggles. If it helps, use our stories to keep the hope > > alive. I know there are no guarantees in life, but with this diet, > > there is every reason to hope! > > Thank you everyone for your wonderful support. I am thinking, > > praying and hoping for the best for evey single one of your kids. > > Langan, enjoy that Mcs meal, and think of Ethan when you > > eat a fry! > > Gretchen Quote Link to comment Share on other sites More sharing options...
Recommended Posts
Join the conversation
You are posting as a guest. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.