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Re: how frustrating-Robyn

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Robyn,

We didn't get rid of the night seizures with Rebekah until we got rid of the

frizium entirely but she went through MAJOR withdrawl last summer. It was worth

the effort. the neurologist explained why they have withdrawl seizures because

the body basically has to rewire, relearn and manage without the drug which

takes a long time, up to 6 months after the drug is stopped. Frizium was never

meant to be taken long term and with Rebekah she developed a tolerance to it and

so it was causing seizures rather than stopping them. We are presently weaning

depakote which we are going very slow with to avoid status......but the less

meds the better the seizure control....that's been our experience.

LaVerna, mom to Rebekah(10), on diet three years

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