Re: Satnam & carolyn : low ketones and seizures!

[Guest guest]

Thanks . Kristan seems to be doing a bit better today. I had

a long talk with the keto nurse yesterday and now as a last desperate

attempt to raise ketones we have started the Carnitor. If this

doesn't work, then we may have to think about stopping the diet and

maybe try a drug, but I am so afraid to try any drugs again. I

always get my hopes up and yesterday her ketones were between 8-16

immediately and almost at 8 today, can it work that fast?

Thanks again,

Satnam

> >

> > Hello,

> >

> > aël is having very bad time seizures every 20 or 40

> mn ,I've just check his blood ketones and he's 1.1 mmol!!!!

> > How can I do to increase the level?

> > thanks

> > Carolyn, Nath's mum

> >

> >

> > --------------------------------------------------------------

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> ------------

> >

> >

> >

> >

[Guest guest]

Hello,

aël is back home but he's still got seizures.

I'm reading mails and I'll write more later.

Nath is under Trileptal, Rivotril

Doctors don't know about keto diet !!!!it's amazing!!!They said it doen't

need to be contrled with keto sticks urinary ant not at all blood

control!!!!!!!!!!!!!!!!!!!!!

We're back home but i'm scared of the future even just of tomorrow...

Carolyn, aël's mum

Re: low ketones and seizures!

Hi Carolyn, my daughter Kristan is also having a bad time, she's

having seizures every 5 or 10 minutes and will go for hours at a time

this way, poor thing just wants to sleep and the seizures always hit

her when she is sleepy. The doctors don't know what else to do with

her, except to suggest try a new drug, which I am not prepared to do

right now b/c we have tried a dozen drugs that did nothing for her.

In August it will have been a year since being on the diet and we

have never achieved high ketosis. She did real well in the middle of

May to almost the end of June this year, having no seizures on some

days or 1-2 a day and now all of a sudden out of nowhere the seizures

are out of control, she had over 70 yesterday. I'm afraid I have no

advice, just wanted to let you know that I know how you must be

feeling.

Satnam, mom to Kristan, 19 months

Keto kid since August 2003

>

> Hello,

>

> aël is having very bad time seizures every 20 or 40

mn ,I've just check his blood ketones and he's 1.1 mmol!!!!

> How can I do to increase the level?

> thanks

> Carolyn, Nath's mum

>

>

> --------------------------------------------------------------------

------------

>

>

>

>

[Guest guest]

Hello,

aël is back home but he's still got seizures.

I'm reading mails and I'll write more later.

Nath is under Trileptal, Rivotril

Doctors don't know about keto diet !!!!it's amazing!!!They said it doen't

need to be contrled with keto sticks urinary ant not at all blood

control!!!!!!!!!!!!!!!!!!!!!

We're back home but i'm scared of the future even just of tomorrow...

Carolyn, aël's mum

Re: low ketones and seizures!

Hi Carolyn, my daughter Kristan is also having a bad time, she's

having seizures every 5 or 10 minutes and will go for hours at a time

this way, poor thing just wants to sleep and the seizures always hit

her when she is sleepy. The doctors don't know what else to do with

her, except to suggest try a new drug, which I am not prepared to do

right now b/c we have tried a dozen drugs that did nothing for her.

In August it will have been a year since being on the diet and we

have never achieved high ketosis. She did real well in the middle of

May to almost the end of June this year, having no seizures on some

days or 1-2 a day and now all of a sudden out of nowhere the seizures

are out of control, she had over 70 yesterday. I'm afraid I have no

advice, just wanted to let you know that I know how you must be

feeling.

Satnam, mom to Kristan, 19 months

Keto kid since August 2003

>

> Hello,

>

> aël is having very bad time seizures every 20 or 40

mn ,I've just check his blood ketones and he's 1.1 mmol!!!!

> How can I do to increase the level?

> thanks

> Carolyn, Nath's mum

>

>

> --------------------------------------------------------------------

------------

>

>

>

>

[Guest guest]

Hello,

aël is back home but he's still got seizures.

I'm reading mails and I'll write more later.

Nath is under Trileptal, Rivotril

Doctors don't know about keto diet !!!!it's amazing!!!They said it doen't

need to be contrled with keto sticks urinary ant not at all blood

control!!!!!!!!!!!!!!!!!!!!!

We're back home but i'm scared of the future even just of tomorrow...

Carolyn, aël's mum

Re: low ketones and seizures!

Hi Carolyn, my daughter Kristan is also having a bad time, she's

having seizures every 5 or 10 minutes and will go for hours at a time

this way, poor thing just wants to sleep and the seizures always hit

her when she is sleepy. The doctors don't know what else to do with

her, except to suggest try a new drug, which I am not prepared to do

right now b/c we have tried a dozen drugs that did nothing for her.

In August it will have been a year since being on the diet and we

have never achieved high ketosis. She did real well in the middle of

May to almost the end of June this year, having no seizures on some

days or 1-2 a day and now all of a sudden out of nowhere the seizures

are out of control, she had over 70 yesterday. I'm afraid I have no

advice, just wanted to let you know that I know how you must be

feeling.

Satnam, mom to Kristan, 19 months

Keto kid since August 2003

>

> Hello,

>

> aël is having very bad time seizures every 20 or 40

mn ,I've just check his blood ketones and he's 1.1 mmol!!!!

> How can I do to increase the level?

> thanks

> Carolyn, Nath's mum

>

>

> --------------------------------------------------------------------

------------

>

>

>

>

[Guest guest]

Hi Carolyn

I know you'll be glad to be home. I hope Nath's OK.

I posted the coconut oil on Wednesday, so you should get it soon, if

it hasn't arrived already.

I've spoken to a few people who are surprised about flax oil being

illegal in France. Is it definitely flax not hemp??? And the oil

not the seeds???

There is a company in the UK, who are the main European distributors

for Kirkman Laboratories, who do the magnesium citrate powder which I

use for constipation and they will deliver to France. They do many,

many useful things for the ketogenic diet. Their web address is

www.nutricentre.com. I'm not desperately impressed with their

website, but they are are excellent on the phone if you want to speak

to a nutritionist.

Look after yourself and keep us posted on how Nath's doing...

, Mum to Francesca, Keto Kid since Sept 03, drug free since May

04

> Hello,

>

> aël is back home but he's still got seizures.

> I'm reading mails and I'll write more later.

> Nath is under Trileptal, Rivotril

> Doctors don't know about keto diet !!!!it's amazing!!!They said

it doen't need to be contrled with keto sticks urinary ant not at all

blood control!!!!!!!!!!!!!!!!!!!!!

> We're back home but i'm scared of the future even just of

tomorrow...

>

> Carolyn, aël's mum

[Guest guest]

Hi Carolyn

I know you'll be glad to be home. I hope Nath's OK.

I posted the coconut oil on Wednesday, so you should get it soon, if

it hasn't arrived already.

I've spoken to a few people who are surprised about flax oil being

illegal in France. Is it definitely flax not hemp??? And the oil

not the seeds???

There is a company in the UK, who are the main European distributors

for Kirkman Laboratories, who do the magnesium citrate powder which I

use for constipation and they will deliver to France. They do many,

many useful things for the ketogenic diet. Their web address is

www.nutricentre.com. I'm not desperately impressed with their

website, but they are are excellent on the phone if you want to speak

to a nutritionist.

Look after yourself and keep us posted on how Nath's doing...

, Mum to Francesca, Keto Kid since Sept 03, drug free since May

04

> Hello,

>

> aël is back home but he's still got seizures.

> I'm reading mails and I'll write more later.

> Nath is under Trileptal, Rivotril

> Doctors don't know about keto diet !!!!it's amazing!!!They said

it doen't need to be contrled with keto sticks urinary ant not at all

blood control!!!!!!!!!!!!!!!!!!!!!

> We're back home but i'm scared of the future even just of

tomorrow...

>

> Carolyn, aël's mum

[Guest guest]

Hi Carolyn

I know you'll be glad to be home. I hope Nath's OK.

I posted the coconut oil on Wednesday, so you should get it soon, if

it hasn't arrived already.

I've spoken to a few people who are surprised about flax oil being

illegal in France. Is it definitely flax not hemp??? And the oil

not the seeds???

There is a company in the UK, who are the main European distributors

for Kirkman Laboratories, who do the magnesium citrate powder which I

use for constipation and they will deliver to France. They do many,

many useful things for the ketogenic diet. Their web address is

www.nutricentre.com. I'm not desperately impressed with their

website, but they are are excellent on the phone if you want to speak

to a nutritionist.

Look after yourself and keep us posted on how Nath's doing...

, Mum to Francesca, Keto Kid since Sept 03, drug free since May

04

> Hello,

>

> aël is back home but he's still got seizures.

> I'm reading mails and I'll write more later.

> Nath is under Trileptal, Rivotril

> Doctors don't know about keto diet !!!!it's amazing!!!They said

it doen't need to be contrled with keto sticks urinary ant not at all

blood control!!!!!!!!!!!!!!!!!!!!!

> We're back home but i'm scared of the future even just of

tomorrow...

>

> Carolyn, aël's mum

[Guest guest]

Okay Carolyn-

Your teams of Dr's are obviously not ketogenic diet informed. What are you

options, can you go somewhere else?

shelly

Re: Satnam & carolyn : low ketones and seizures!

Hello,

aël is back home but he's still got seizures.

I'm reading mails and I'll write more later.

Nath is under Trileptal, Rivotril

Doctors don't know about keto diet !!!!it's amazing!!!They said it doen't

need to be contrled with keto sticks urinary ant not at all blood

control!!!!!!!!!!!!!!!!!!!!!

We're back home but i'm scared of the future even just of tomorrow...

Carolyn, aël's mum

Re: low ketones and seizures!

Hi Carolyn, my daughter Kristan is also having a bad time, she's

having seizures every 5 or 10 minutes and will go for hours at a time

this way, poor thing just wants to sleep and the seizures always hit

her when she is sleepy. The doctors don't know what else to do with

her, except to suggest try a new drug, which I am not prepared to do

right now b/c we have tried a dozen drugs that did nothing for her.

In August it will have been a year since being on the diet and we

have never achieved high ketosis. She did real well in the middle of

May to almost the end of June this year, having no seizures on some

days or 1-2 a day and now all of a sudden out of nowhere the seizures

are out of control, she had over 70 yesterday. I'm afraid I have no

advice, just wanted to let you know that I know how you must be

feeling.

Satnam, mom to Kristan, 19 months

Keto kid since August 2003

>

> Hello,

>

> aël is having very bad time seizures every 20 or 40

mn ,I've just check his blood ketones and he's 1.1 mmol!!!!

> How can I do to increase the level?

> thanks

> Carolyn, Nath's mum

>

>

> --------------------------------------------------------------------

------------

>

>

>

>