Guest guest Posted October 21, 2004 Report Share Posted October 21, 2004 hi i haven't been on this site for awhile. Kieran has been doing ok his ketones have been high and seizures not too bad! about 7 a month. But his behavour has been much better, lots of eye contact and laughing,giggling. He has been eating well even at school. That was until last week when he caught a cold!!!!! took him to the doctors and a relief doctor put him onto antibiotics and cream for a virus, but the antibiotic were not sugar free and he insisted that he should have them and that it was more important to get Kieran better again than a DIET!!!!!!! I think he thought i was a mad mother who put her child on a weird diet for no reason! Anyway after two days Kieran became miserable and had clusters of siezures over night. So i stopped giving it to him. It has taken me the whole week to get his ketone levels bac up to medium/high. sorry for going on but i have to get my anger out some how!!!!!!!!!!! Another thing is that our consultant will not start to reduce Kieran's medication until he's been on the diet for a year. I am so frustrated! At least its not been increased and with Kieran putting on a little weight he's not on a large amount of epilin apparently. Well i hope everyone is getting on ok i will visit more often now i hope. Weve been very busy what with hospital appoints and othe rchildren sitting A-level and exams and going off to university i feel as though i need arest. bye for now. Ann. Quote Link to comment Share on other sites More sharing options...
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