Lupus, family and friends./Barb

[Guest guest]

I think we've had this conversation before...But your Mom has to be related to mine!!! All she does is complain. She asks how I feel, then proceeds to tell me why I can't feel that way. And like yours, she is constantly on my sisters case. She has the misfortune of living a few miles from Mom. Mom knows more about lupus than my Dr. I live an hours drive away from her which has worked out well, she can't just hop in the car & come up every time she wants. I wince when her # shows up on the caller ID.

What has hurt worse in some ways, is the friend from childhood who is always around until I get sick. Then she disappears. Doesn't call & is always gone, busy or asleep when I call her. I don't understand it. We have another friend who has dealt with lupus for 20 years. She has been so sick we've been called to the hospital many times having been told she wouldn't make it through the night. My friend doesn't disappear on her the same way. In fact, when I first told her about the lupus, her first reaction was "aw s**t", then she changed the subject. And she's a nurse! Se has worked in nursing homes for more than 15 yrs. & she's very good with them, I've seen it.

So, I guess the lack of understanding can come from anywhere. I'm just so blessed to have my hubby. He goes to every appt. with me, as I do with him. If I say I'm tired he makes me go rest, if I'm in pain he tries to help. He's been through so much himself, he really understands "not feeling well".

He has been really good to me today. I fell yesterday, just tripped over a little vine & down I went. Going to try to see the Dr. tomorrow. My wrist, shoulder, knee & hip are all killing me! Plus I think my cold has turned into a sinus infection. I guess I do look pretty funny....I can't walk well, raise my right arm or breath! Guess I'm just falling apart, huh! LOL

Hugs,

"I like the way has handled the telling to family, etc. I have explained Lupus to my mother and she claims she already knew about it.

For one thing she has become a very negative person. She rarely has a nice word about any of the family and it is difficult to be around when well. "

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