Re: Re: won't eat...depakote wean

[Guest guest]

Cold turkeying from 750 mgs of depakote would I think definitely be a prime

suspect for increased seizures - whether the AED was actually effective or not,

withdrawal seizures from an addiction/blood level point of view would be highly

likely. Some kiddies can get away with this kind of rapid wean, others not. I

know my son would never have coped seizure wise with that sort of big

drug change, but they are all different.

Depending on when it was withdrawn, any seizures that are withdrawal related

could take a week to 2 weeks (sometimes longer) to settle down. If they don't,

or if the seizures get out of hand (status can be a nasty problem when

withdrawing AEDs too fast) you may have to try something to intervene to break

the cycle, or put some depakote back and try a slower wean.

Hopefully the diet/ketosis will act as a protective measure, and being able to

stop the med all at once would be a huge bonus, but don't be too disappointed if

you aren't able to wean it all in one go first time round.

----- Original Message -----

From: dreamerofluna

He has been doing better last night and today with the eating. He

LOVES the keto pancakes. And he is in high ketosis. The second day

of the diet he only had 2 seizures, that is rare for him. But now he

is having alot more. Could this be because of the cold turkey stop

to the depakote. He was on 750mg.

[Guest guest]

I agree with . when we went down on depakote with we went 1

capsule at a time from 750 mg until we got to 250 and then 1/2 at a time and

then at 125 we went 1/4 at a time per week and it was so smooth. I tried to

wean from 250 mg to 0 and it was horrible. We had to go back up and do it

again. It is really tough to wean dekapote and I bet you are having a tough

time. Hang in there and if its really rough-you may want to add back to 250 or

325 and then go SLOW!!

Lots of luck

[Guest guest]

we are doing a 125 drop of depakote on Monday, and are expecting withdrawls,

within 3 to 5 days-they can last up to two weeks-girding our loins since it will

bring Jackie down to 2 depakote, and up to 7 mls of felbatol in the am and 7 in

the pm. GOod luck-its an ugly-never managed to do that fast a wean without

serious ugly affects.

still lurking in the shadows

Mother of Jackie J!

PS: Hi susan -have you gotten my e-mail?

[Guest guest]

we are doing a 125 drop of depakote on Monday, and are expecting withdrawls,

within 3 to 5 days-they can last up to two weeks-girding our loins since it will

bring Jackie down to 2 depakote, and up to 7 mls of felbatol in the am and 7 in

the pm. GOod luck-its an ugly-never managed to do that fast a wean without

serious ugly affects.

still lurking in the shadows

Mother of Jackie J!

PS: Hi susan -have you gotten my e-mail?

[Guest guest]

we are doing a 125 drop of depakote on Monday, and are expecting withdrawls,

within 3 to 5 days-they can last up to two weeks-girding our loins since it will

bring Jackie down to 2 depakote, and up to 7 mls of felbatol in the am and 7 in

the pm. GOod luck-its an ugly-never managed to do that fast a wean without

serious ugly affects.

still lurking in the shadows

Mother of Jackie J!

PS: Hi susan -have you gotten my e-mail?