RE: just checking in...3 years seizure free! A positive story!!

[Guest guest]

- We never did get a diagnosis. All tests were normal except his

EEG. We did not get a PET scan since he was on the Keto diet and I

would have had to take him off for 3 weeks before they could do it and

that was not worth it to me. What are " MAE " seizures again, sounds

familiar, but I can't remember? Tina

Re: just checking in...3 years seizure free! A

positive story!!

Hi Tina, lovely to see things have gone so well for you!

What was Ethie's actual diagnosis - did you ever get one? Sounds a lot

like with his MAE seizures. If he did have this one, there is a

chance of permanent remission if you can stamp on the seizures soon

enough with the right treatment - so maybe another possibilty to add?

Whatever it was - congratulations, and thanx for the update

----- Original Message -----

From: jthejfitz

Hey all! I was a dedicated member of this group 2 years ago, but

weaned myself off the group slowly after weaning my son off the diet

2 years ago.

For those who do not remember us, my son Ethie started with tonic-

clonic, atonic, myoclonic and petit mal seizures suddenly just befor

he turned three. Five weeks after he started all this, we paniced

and put him on the ketogenic diet and Lamictal. His seizures ended

there with the exception of one breakthrough seizure he had after

licking his brothers cinnamon sugar bagel. 2 monthes after this

treatment was initiated, he had a normal EEG.