Re: keto at Hopkins or UCLA

[Guest guest]

-

We are doing the diet through Children's Hospital Los Angeles...we are using

the MCT Version. Who's your neurologist?

Tracey

[Guest guest]

Hi - Are you tracie flourie from San Diego?

Maureen

> -

> We are doing the diet through Children's Hospital Los Angeles...we are

> using

> the MCT Version. Who's your neurologist?

> Tracey

>

>

>

[Guest guest]

Hi. We did the diet at Huntington Memorial in Pasadena with Dr. Huf.

The dietician is great and very accessible. They are all Hopkins

trained. I felt very prepared and supported with this group.

Maureen.

> I am new here but definitely not new to seizures. my 2yo daughter

> maddux had infantile spasm and now complex partial. has been thru

> ACTH, depakote, trileptal, tegretol, and keppra. and soon starting

> zonegran. i am going to tell my neuro at children's hospital los

> angeles on monday i want to start the diet. but i was wondering what

> the difference in doing it at hopkins or at UCLA will be. i know

> hopkins where it " originated " but i was just wanting yalls opinion

> on where to begin the journey. and do they give you 3 months and if

> they dont see a difference they stop? any success on diet with

> complex partials? sorry so many questions. but i am just getting

> myself up for the challenge. thanks jaime

>

>

>

>

> " The Ketogenic Diet....a realistic treatment option, NOT just a last

> resort! "

>

> List is for parent to parent support only.

> It is important to get medical advice from a

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>

[Guest guest]

i know a lady who went to all the neuros in atlanta area. didnt like any and

then went to john hopkins for the keto diet. so she feels that most neuros in

the emory area and surrounding areas arent very good and the bed side manners

are not good. but i have never had exp. with them myself. she has seen 5

neuros there and wasnt satisfied with any until she met one but i think he just

died of cancer. so you may want to talk to her. her name is mariah and her email

is: mkiscunas@... tell her jaime, maddux's mom, talked

to you. jaime