Re: home from the hospital / what a trip! -- Bill

[Guest guest]

Bill,

Thank you for your touching note and sentiment on our success. We

are so grateful to have so much support... especially from men who

DO cry! It's wonderful to meet someone with so much compassion.

Thank you for sharing it with us.

As far as the keto team and their success rate goes.... they say

they have the same success rate as the " national average " , but I

really don't know. I am just so disappointed. I am a strong person

and will find a way to make this work (like leaning on everyone in

this group), but what about parents/moms who aren't as strong?? If

they don't get the support they need from somewhere, what happens to

their child? It really disturbs me to think about it. Will they

walk away thinking this whole thing is just a hoax, with their

last hope for help shattered? Is the success rate of the diet under

estimated overall because of situations like this? I guess I won't

know for sure the full effect of my team until time goes on a bit,

but I'm not holding my breath for them. I'll dig in and push on

with or without their help.

Thanks again for responding.

God bless you,

> >

> > Hi everyone,

> >

> > Princess Adrielle and I are now home from the hospital.

Actually, we

> > came home late in the day on Fri. 11/5. I wanted to check in

with

> > you all sooner, but it has been busy here as you all can imagine

> > with starting the diet and other life stuff.

> >

> > Our hospital visit was absolutely horrible! It was the worst

week I

> > have ever had with my little princess. She ended up getting the

flu

> > and was vomitting for almost 2 days. She couldn't even keep

down

> > 2cc of water. She lost 6 pounds, looked horrible and was

incredibly

> > weak. Believe me when I tell you that she didn't have 6 pounds

to

> > lose. She is somewhat tall for her age but very slender. Her

eyes

> > were dark and sunken into her head, you could count every rib,

every

> > bump in her spine, her shoulder blades were clearly defined and

her

> > little tummy was sunk in too. The image in my mind is still

very

> > clear and if I think on it to long I begin to cry.

> >

> > Lets move on..... our dietician..... not great. The only thing

she

> > taught me was how to calculate meals, period. Reading " the

book " is

> > required before you enter the hospital and now I know why, she

> > doesn't plan on teaching you anything while you are there. I

asked

> > as many questions as I could, but with " A " being in the

condition

> > she was and getting very little sleep, I could barely think

> > straight! I thought she would at least cover the basics if

nothing

> > else. Wrong, wrong wrong. She had a very " hands off " approach

the

> > entire time we were there and she definitely doesn't follow a

strict

> > Hopkins protocol. The hospital itself is poorly set up for

> > beginning the diet. They say they have a keto team but it is

> > obvious that they do not communicate well.... the right hand has

no

> > idea what the left hand is doing. The kitchen staff has no

training

> > in the diet other than knowing how to weigh the food.

Therefore,

> > they substitute items because they don't know they can't. We

> > calculated for regular non-sweet applesauce for lunch/dinner...

> > sometimes it was regular(w/sugar)applesauce, sometimes baby food

> > applesauce.... big difference! One day we didn't get breakfast

> > until lunch time!!!!!!!!!!!!!!!

> >

> > Well, amazingly enough we successfully started the diet in spite

of

> > everything. I couldn't wait to get home so I could get things

in

> > order myself. I knew I had all of you to turn to with questions

and

> > for support. Sorry if I rambled a bit but you are the only

people I

> > have to talk to who can truly understand my frustrations.

> >

> > So now on a good note...... Princess Adrielle has not had one

> > seizure since beginning the diet!!! Wha-hoo!! Most days we

were

> > seeing around 50-60 per day so you can imagine my joy! She is

still

> > a little weak and of course tired, but she is recovering well.

I

> > know I have questions, but I'll have to save them for later.

It's

> > time for her royal highness to have breakfast!

> >

> > Love to all,

> > & Princess Adrielle, keto-kid & seizure free since 11/5!!!

> >

> >

> >

> >

> >

> >

> >