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Re: home from the hospital / what a trip! -- Cammie

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Cammie,

I know exactly how hard it is to find pants that fit a little

skinnny minnie like ! UGH! It was hard before we began the

diet, but now it is impossible! All of the pants that used to fit

somewhat decently are now hanging off her hips!! I can't wait until

her body adjusts so she will gain back to her starting weight.

I hadn't heard about kids with a lower BMI doing better w/the diet,

but I guess it makes sense when you think about it. I am

calculating all of the meals myself, and I am glad. After working

with our dietician and not getting much from her while IN the

hospital, I know she won't be much help now that we are out. Like I

said, she was very " hands off " with everything. I feel very

comfortable with my knowledge of how to calculate, but I know I'll

still have a thousand questions. Thank God for this group!

I will definitely be x-tra careful when visiting the doctor. I

really needed one more thing to think about when we have an

appointment!! ha ha

Take care,

>

> ,

>

> Great news that you are home and that Adrielle is seizure free so

> far!! I'm so sorry to hear that you had such a bad experience in

the

> hospital, but unfortunately, it isn't all that uncommon. At least

> that's over now and you can settle into a keto routine at home,

> hopefully with continued seizure freedom. Even though we had a

great

> experience in the hospital, we did have one food issue with

dietary

> and nursing. Our dietician straightened that out right away and

we

> received a personal apology from the dietary manager. Warning....

> you have to be on your toes at all times from now on when taking

> Adrielle for medical care, because most docs and nurses simply do

not

> understand the diet. They won't even think about the amount of

carb

> that is in meds they prescribe... just not used to doing that. If

> she is hospitalized or in the ER and needs an IV, make sure it

does

> not contain glucose. Ask to see the bag before they infuse

anything

> into her. I don't think this stuff would happen at our keto

center

> but we live 300 miles from them. All of our " primary " care is

> received in our small town or the next biggest town, where no one

> really has experience with keto.

>

> I'm also sorry you didn't get any teaching while you were there.

> But, you will get good suggestions, if needed, from members of the

> group based on their experience. Are you calculating your own

meals?

> I think it is a huge help to do your own but some dieticians want

to

> do it themselves.

>

> My is also tall and skinny and lost weight on the diet

> initially, too. She's gained and lost during the time she's been

on

> the diet. She's about 2 lbs heavier than when she started but

> continued to grow normally in height. She looks very skinny now

and

> it's hard to buy clothes for her, especially pants, but she is

very

> healthy. Our dietician told us that kids with a lower BMI tend to

do

> better on the diet because they tend not to store fat. One can

> certainly fine tune around that, but it might take more time and

> effort. So, maybe Adrielle's ht./wt. combination is somewhat of a

> blessing in disguise, like 's. I hope she's been feeling a

bit

> better the past few days. I does take time for the body to get

used

> to " running " on fat and the presence of ketones.

>

> The wonderful thing is that Adrielle hasn't had a seizure in

several

> days. So, you know the diet works for her. You may still need to

> fine tune--time will tell--but things are great now... woo HOO!

> Enjoy every minute!! Is she still on meds? If so, and seizures

do

> return, meds are usually the primary suspect. If not, you might

> never see another seizure... we haven't!!

>

> Give Adrielle a hug and tell her she's a STAR!

>

> Cammie,

> mom to , age 8, seizure free for 15 months.

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This may not apply to children, but with adults, like my daughter, I

found that the initial weight loss may not be totally made up. The keto

diet is like the Atkins diet and I understand that part of the initial

loss is " water " . My daughter lost about 5 pounds or so at the beginning

of the diet. Sure she was vomiting all the time and not eating. Even

when things settled down, we maintained about 2 or 3 pounds lighter than

before starting the diet.

With the change now on the wean to a more normal diet, but restricting

calories, some weight has come back on, but not quite up to the initial

weight. Perhaps that is some water. Still no period either. Next month

we start to increase calories up to " normal " , whatever that might mean.

Bill

byhisgrace08 wrote:

>

> Cammie,

>

> I know exactly how hard it is to find pants that fit a little

> skinnny minnie like ! UGH! It was hard before we began the

> diet, but now it is impossible! All of the pants that used to fit

> somewhat decently are now hanging off her hips!! I can't wait until

> her body adjusts so she will gain back to her starting weight.

>

> I hadn't heard about kids with a lower BMI doing better w/the diet,

> but I guess it makes sense when you think about it. I am

> calculating all of the meals myself, and I am glad. After working

> with our dietician and not getting much from her while IN the

> hospital, I know she won't be much help now that we are out. Like I

> said, she was very " hands off " with everything. I feel very

> comfortable with my knowledge of how to calculate, but I know I'll

> still have a thousand questions. Thank God for this group!

>

> I will definitely be x-tra careful when visiting the doctor. I

> really needed one more thing to think about when we have an

> appointment!! ha ha

>

> Take care,

>

>

>

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