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Re: 4 meals vs. 5

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Yes, lower than optimum ketones can cause the seizure, but also - the act of

having a seizure can trigger a glucose stress response. Higher glucose (usually)

= lower ketones. Testing either blood level just after a seizure is therefore

not v accurate, well it never was here anyways...

- the one move that definitely made a difference with 's waking

ketones was changing his spacing to yes, 5 meals per day, instead of 4, and one

of those meals just before bed is not the snack it used to be, it is now really

what you would call a full meal - I assumed this could result in higher glucose

readings and therefore lower ketones on waking, but the opposite happened with

him.

His spacing (though it may not apply to as they are obviously diff ages

with different things going on in their day..with much larger calories here) is

breakfast (400 cals) as soon as he wakes at 8 am, a snack (75 cals) at 10.30,

lunch at 12.30 pm (400 cals) , I guess you would call it dinner at 4.30 pm, (375

cals) and 'supper' (300 cals) at 7.30 pm, bed at 7.45 pm. That last meal before

bed last yr (and the yr before) used to be a 100 cal snack, but for it

was obviously not enough to carry him though till the early hrs of the morn, he

was prob using glucose from muscle etc to carry him thru, which is why his

ketones were so much lower on waking. That's the theory anyways :)

----- Original Message -----

From: Bill Barber

,

I don't think that seizures can affect ketones. It is more likely that

the low ketones caused the seizure.

Bill

michelle paulson wrote:

> Hi -

> I check blood ketones. His ketones are consistently

> high at bedtime and he is now waking w/mod. ketones

> " MOST " days. Granted, I only spot check. Mornings

> following seizures ketones are down and glucose is up

> but figured they were lower as a natural response to

> the seizure.

>

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Yes, lower than optimum ketones can cause the seizure, but also - the act of

having a seizure can trigger a glucose stress response. Higher glucose (usually)

= lower ketones. Testing either blood level just after a seizure is therefore

not v accurate, well it never was here anyways...

- the one move that definitely made a difference with 's waking

ketones was changing his spacing to yes, 5 meals per day, instead of 4, and one

of those meals just before bed is not the snack it used to be, it is now really

what you would call a full meal - I assumed this could result in higher glucose

readings and therefore lower ketones on waking, but the opposite happened with

him.

His spacing (though it may not apply to as they are obviously diff ages

with different things going on in their day..with much larger calories here) is

breakfast (400 cals) as soon as he wakes at 8 am, a snack (75 cals) at 10.30,

lunch at 12.30 pm (400 cals) , I guess you would call it dinner at 4.30 pm, (375

cals) and 'supper' (300 cals) at 7.30 pm, bed at 7.45 pm. That last meal before

bed last yr (and the yr before) used to be a 100 cal snack, but for it

was obviously not enough to carry him though till the early hrs of the morn, he

was prob using glucose from muscle etc to carry him thru, which is why his

ketones were so much lower on waking. That's the theory anyways :)

----- Original Message -----

From: Bill Barber

,

I don't think that seizures can affect ketones. It is more likely that

the low ketones caused the seizure.

Bill

michelle paulson wrote:

> Hi -

> I check blood ketones. His ketones are consistently

> high at bedtime and he is now waking w/mod. ketones

> " MOST " days. Granted, I only spot check. Mornings

> following seizures ketones are down and glucose is up

> but figured they were lower as a natural response to

> the seizure.

>

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Hi

I've read recently that blood ketone level should be at least 4.2

for seizure control( as researches suggest),so obviously 2.7 is not

enough and maybe what is why he is still having seizures early

moning.Coinsedencely ph's ratio has been increased from 3:1 to

3.5:1 about a month ago and now his morning ketones are anywhere

from 3.7 to 4.8 .Is is possible gets too much carbs in his

meals? Maybe your dietitian shoul adjust the proportion?

Natasha( mom to ph)

> > > Hi -

> > > I check blood ketones. His ketones are

> > consistently

> > > high at bedtime and he is now waking w/mod.

> > ketones

> > > " MOST " days. Granted, I only spot check.

> > Mornings

> > > following seizures ketones are down and

> > glucose is up

> > > but figured they were lower as a natural

> > response to

> > > the seizure.

> > >

> >

> >

> >

> >

> >

> >

> >

> > [Non-text portions of this message have been

> > removed]

> >

> >

>

>

> __________________________________________________

>

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