Re: Re: 4 meals vs. 5Natasha

[Guest guest]

Hey there, Natasha-

WOW - ph wakes up with at least 3.7? Just out of

curiosity, what are they at bedtime? That sounds

GREAT - I'd love for to wake up w/that high of

ketones b/c he definitely appears to do better

w/higher ketones (seizure wise) - HOWEVER, his ketones

slowly increase thruout the day and are 5.something or

register HI meaning over 6 at bedtime. I'd be afraid

he'd be too ketotic as the day progressed if he

started out that high. He's been pretty hyper the

past few days late afternoon and doesn't fall asleep

until late (doesn't take a nap either - and he's

nearly 3 yrs. old).

So I'm wondering if the rise in ketones have

something to do w/it. Do you give ph 4 meals or 5

per day? I have forgotten - how old/big is ph and

how many calories/protein/carbs/fat etc. does he get?

How's the seizure control for you? If you don't have

time - I'll go back thru the files section and catch

myself up. That's wonderful if you've found your

answer by increasing ratio!!

Thanks for the info.! Hoping ph has seizure free

days!

(mom to - will be 3 in Jan. ketokid

since 6/03 - med free and working on the seizure free

part but getting closer!!!!)

--- natashagainford beasly@...>

wrote:

>

> Hi

> I've read recently that blood ketone level should be

> at least 4.2

> for seizure control( as researches suggest),so

> obviously 2.7 is not

> enough and maybe what is why he is still having

> seizures early

> moning.Coinsedencely ph's ratio has been

> increased from 3:1 to

> 3.5:1 about a month ago and now his morning ketones

> are anywhere

> from 3.7 to 4.8 .Is is possible gets too much

> carbs in his

> meals? Maybe your dietitian shoul adjust the

> proportion?

>

> Natasha( mom to ph)

>

>

>

> > > > Hi -

> > > > I check blood ketones. His ketones are

> > > consistently

> > > > high at bedtime and he is now waking

> w/mod.

> > > ketones

> > > > " MOST " days. Granted, I only spot check.

> > > Mornings

> > > > following seizures ketones are down and

> > > glucose is up

> > > > but figured they were lower as a natural

> > > response to

> > > > the seizure.

> > > >

> > >

> > >

> > >

> > >

> > >

> > >

> > >

> > > [Non-text portions of this message have been

> > > removed]

> > >

> > >

> >

> >

> > __________________________________________________

> >