Re: Just got back from hospital

[Guest guest]

If you are on Atkins and presumably in ketosis, it would appear to be

relatively straightforward to switch to Ketogenic diet. You say you have

the mealplanner. Do you have any mealplans left over from previous time

on the keto diet? You should be able to get information on the calories,

protein, etc. from your doctor.

lloydandleslie@... wrote:

> Hey friends,

> Well, we just got home from another overnight EEG. I couldn't believe that

> was so good in getting the " rainbow buttons " on his head and did

> well. We got to come home a day early because he had so many seizures

> yesterday that they got enough info. I guess that is good. They are still

little

> tiny head drops that cluster for sometimes hours.

>

> Our new neuro wants us to take him off the diet and try the drugs again and

> possibly the VNS or corpus collosotomy. Keep in mind, there is no dietician

> at our hospital and our neuro has no patients on the keto diet. We have been

> taking him to Chicago for the last 2.5 to 3 years to have the diet done.

> THe doctorr there dosen't accept our insurance , we have to pay cash and

hotel

> and food etc. and our insurance won't pay for him anymore because he is EEG

> happy so I say and they say is ordering excessive tests. My hubby and I are

> tapped out financially.

>

> My heart tells me that the only true hope that my little boy has is to get

> off this Atkins diet and go back on the keto diet. I logged on to the

Charlie

> Foundation last night and read Jim Abrams story about the drugs and remind

> myself that the diet is not as bad as the alternative. is

> regresssing daily as we speak. He is getting weaker, speech extremely

slurred and

> can barely use his hands. It is a slow deterioration that we saw pre diet

the

> last go around. I remind myself of how far he has come and if it weren'tfor

> the diet, I don not know where we would be.

>

> So, my question to you is, if we go back on keto diet as a last time try,

> do you think since he is on Atkins now and in ketosis that I could just get

> my mealplanner out and start again or would we have to go back in and start

> over. I just don't see the need to put him in the hospital again.. He would

> be very welcoming of the fruit and other things he got on the keto diet. He

> already gets cream and butter with every meal and as snacks.

>

> What do you think? I don't know how many calories, protien etc. Can

> someone help me until we find a dietician here?

>

> Thanks

>

>

>

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