Please Check My Calculations!-Sue Ellen

[Guest guest]

> Hi, !

Hi Sue-Ellen, below in ***s...

> I am trying to learn /understand the calculation part of the diet,

> and was hoping you could check to see if I'm right:

**No problem, but I warn you, maths is not my strong suit....

> -Jimmy weighs 28.3 lbs, or 12.84 kgs

> -He's 2 1/2 years old, and multiply disabled (doesn't require as many

> cals)

> 12.84 x 75 = 963 total daily calories for the average child in the

> age range on the diet

**Range is 70-75 cals per kg for his age group, with we used to

take the lower figure and sort of work upwards, depending on how his weight

went. So Jimmy could still be within the range at 12.84 x 70 = 898 cals.

> 3:1 ratio

> 963 % 31 = 31g of carb & protein combined; 31 x 3 = 93g fat....is

> this right? How do you know how much is carb and how much is protein?

Hmm, you have me stumped there with that percentage, but each centre does

their calcs differently I guess. I would do it like this - weight 12.84 kgs

(but is that is his ideal weight though? Cals and protein are usually worked

on ideal weight, if he is round about right on the growth charts though

currently, this would be ok) - 12.84 x 1.2 gms prt (for 1-3 yr olds) = 15.40

gms prt per day.

Then is where I cheat - enter those total cal and prt figures into the

mealplanner, and you get 15.4 gms prt, (you enter this part yourself) 93.2

gms fat, and 15.7 gms carb per day automatically comes up. So totalled

together this is 31.1 gms prt and carb combined. So yes, those figures look

about right.

> Jimmy's cals were reduced to 750/day because, believe it or not, he

> was gaining lots of weight on the diet (probably because he wasn't

> having all those seizures any more to burn up calories!!!!).

> He is starting to have his seizures creep back (approx. 10 per day;

> he was having over 100/day before the diet!). During the hospital

> stay for induction, they went away on day two and didn't come back

> until recently (except for when he was ill or teething on two

> occasions). He has only been at moderate ketones on the strips, but

> I was told this is ok because the moderate level seems to work for

> him.

> How would YOU suggest tweeking the diet to gain back seizure

> control?

> Any advice you could give would be great. Jimmy is on the liquid

> version of te diet now, but is at a point where we will be trying

> pureed foods to give him some textures to work with.....pretty

> exciting news in our house! This is why I am trying to understand

> the calculations, which I'm sure will come into play a lot because of

> making different recipes, etc.

***Well as you can see, I use the mealplanner to do most of it rather than

manually, (I could do it by hand once upon a time by following Freeman's

equations but have got lazy over the yrs but it depends whether you have

the sort of mealplanner that works that part out autmatically for you. My

own one that I use for doesn't, we enter the goal figures manually at

the top, as well as all the food values, as we are in NZ, and there were too

many diffrences with the values. But - I do use what I call the 'US' one to

do my calculations for setting new cal levels or ratios. Do you have one

like this - if not, I can send a copy of this one though to you.

As far as the finetuning goes, what is his ideal weight for his weight?

When he started gaining that weight, did it put him above where he should be

as far as his height is concerned? The tricky bit with young children is

that they often gain weight first, then grow into it height wise, (actually

hoping that is going thru this right now, we have some weight gain,

waiting waiting waiting for it to turn into height...) so if he had seizure

control at that point, I don't know if I would have reduced by that much.

Was he originally at that 963 cal total? If so, that was a huge drop down to

the 750. I may have read that wrong tho?

What has happened with his weight since doing that big calorie reduction?

Do you monitor blood glucose or bhb levels? Even though the ketone urine

readings may not have changed much after adjusting the diet, it may be that

his blood ketones are actually not quite as high, or 'moderate' as the stix

are showing, as so many factors come into testing that way - like fluid

consumed diluting the readings, time since bladder last voided affecting the

concentration etc.

[Guest guest]

:

Thanks for helping with the calculations! The " % " was what I used to

mean " divided by " ....sorry(Looking at it now, I can see where that

looked confusing!).

Anyway, Jimmy had excellent seizure control until he put the weight

on. He is very tall and slim looking, but he was underweight when he

started the diet (they wanted him to gain a few pounds, just not

quite as many as he did!). He currently weights 28.3 pounds, and he

is 35 1/2 inches long....I am told he is at the 50th percentile for

weight, 80th percentile for height. They had him at 850 kcals/day,

and dropped it to 750 (he gained 1/3 of his body weight in 2 1/2

months on the diet!!!!). Your calculations are obviously more in

line with what they (Hopkins) were using; mine are off! I've never

had to calculate the meals on my own, because I always stuck with the

liquid formula that they had already calculated for me, so I really

appreciate that you took the time to look my #s over!

I would love for you to send me your version of the software that

will calculate. I only have the excel spreadsheet that someone was

nice enough to provide on this board.

Thanks for everything!

-Sue Ellen:)

> > Hi, !

>

> Hi Sue-Ellen, below in ***s...

>

> > I am trying to learn /understand the calculation part of the

diet,

> > and was hoping you could check to see if I'm right:

>

> **No problem, but I warn you, maths is not my strong suit....

>

> > -Jimmy weighs 28.3 lbs, or 12.84 kgs

> > -He's 2 1/2 years old, and multiply disabled (doesn't require

as many

> > cals)

> > 12.84 x 75 = 963 total daily calories for the average child in

the

> > age range on the diet

>

> **Range is 70-75 cals per kg for his age group, with we

used to

> take the lower figure and sort of work upwards, depending on how

his weight

> went. So Jimmy could still be within the range at 12.84 x 70 = 898

cals.

>

> > 3:1 ratio

> > 963 % 31 = 31g of carb & protein combined; 31 x 3 = 93g

fat....is

> > this right? How do you know how much is carb and how much is

protein?

>

> Hmm, you have me stumped there with that percentage, but each

centre does

> their calcs differently I guess. I would do it like this - weight

12.84 kgs

> (but is that is his ideal weight though? Cals and protein are

usually worked

> on ideal weight, if he is round about right on the growth charts

though

> currently, this would be ok) - 12.84 x 1.2 gms prt (for 1-3 yr

olds) = 15.40

> gms prt per day.

> Then is where I cheat - enter those total cal and prt figures

into the

> mealplanner, and you get 15.4 gms prt, (you enter this part

yourself) 93.2

> gms fat, and 15.7 gms carb per day automatically comes up. So

totalled

> together this is 31.1 gms prt and carb combined. So yes, those

figures look

> about right.

>

> > Jimmy's cals were reduced to 750/day because, believe it or

not, he

> > was gaining lots of weight on the diet (probably because he

wasn't

> > having all those seizures any more to burn up calories!!!!).

> > He is starting to have his seizures creep back (approx. 10 per

day;

> > he was having over 100/day before the diet!). During the

hospital

> > stay for induction, they went away on day two and didn't come

back

> > until recently (except for when he was ill or teething on two

> > occasions). He has only been at moderate ketones on the

strips, but

> > I was told this is ok because the moderate level seems to work

for

> > him.

> > How would YOU suggest tweeking the diet to gain back seizure

> > control?

> > Any advice you could give would be great. Jimmy is on the

liquid

> > version of te diet now, but is at a point where we will be

trying

> > pureed foods to give him some textures to work with.....pretty

> > exciting news in our house! This is why I am trying to

understand

> > the calculations, which I'm sure will come into play a lot

because of

> > making different recipes, etc.

>

> ***Well as you can see, I use the mealplanner to do most of it

rather than

> manually, (I could do it by hand once upon a time by following

Freeman's

> equations but have got lazy over the yrs but it depends whether

you have

> the sort of mealplanner that works that part out autmatically for

you. My

> own one that I use for doesn't, we enter the goal figures

manually at

> the top, as well as all the food values, as we are in NZ, and there

were too

> many diffrences with the values. But - I do use what I call

the 'US' one to

> do my calculations for setting new cal levels or ratios. Do you

have one

> like this - if not, I can send a copy of this one though to you.

>

> As far as the finetuning goes, what is his ideal weight for his

weight?

> When he started gaining that weight, did it put him above where he

should be

> as far as his height is concerned? The tricky bit with young

children is

> that they often gain weight first, then grow into it height wise,

(actually

> hoping that is going thru this right now, we have some

weight gain,

> waiting waiting waiting for it to turn into height...) so if he had

seizure

> control at that point, I don't know if I would have reduced by that

much.

> Was he originally at that 963 cal total? If so, that was a huge

drop down to

> the 750. I may have read that wrong tho?

> What has happened with his weight since doing that big calorie

reduction?

> Do you monitor blood glucose or bhb levels? Even though the

ketone urine

> readings may not have changed much after adjusting the diet, it may

be that

> his blood ketones are actually not quite as high, or 'moderate' as

the stix

> are showing, as so many factors come into testing that way - like

fluid

> consumed diluting the readings, time since bladder last voided

affecting the

> concentration etc.

>

>

[Guest guest]

I sent it through to yur direct email Sue-Ellen, let me know if it didn't

work,

----- Original Message -----

> :

>

> Thanks for helping with the calculations! The " % " was what I used to

> mean " divided by " ....sorry(Looking at it now, I can see where that

> looked confusing!).

>

> Anyway, Jimmy had excellent seizure control until he put the weight

> on. He is very tall and slim looking, but he was underweight when he

> started the diet (they wanted him to gain a few pounds, just not

> quite as many as he did!). He currently weights 28.3 pounds, and he

> is 35 1/2 inches long....I am told he is at the 50th percentile for

> weight, 80th percentile for height. They had him at 850 kcals/day,

> and dropped it to 750 (he gained 1/3 of his body weight in 2 1/2

> months on the diet!!!!). Your calculations are obviously more in

> line with what they (Hopkins) were using; mine are off! I've never

> had to calculate the meals on my own, because I always stuck with the

> liquid formula that they had already calculated for me, so I really

> appreciate that you took the time to look my #s over!

>

> I would love for you to send me your version of the software that

> will calculate. I only have the excel spreadsheet that someone was

> nice enough to provide on this board.

>

> Thanks for everything!

>

> -Sue Ellen:)