Re: Mayo Study, New term for diet

[Guest guest]

I meant to mention this after our Keto parents meeting this past Monday. Our

dietician is new, and she said she doesn't really call the Ketogenic a " DIET " to

most people. She refers to it as a " therapeutic regimen " - as you said - so many

people are either scared of the word diet, or because it's a " diet " that means

you can " cheat " . We have called it his medicine before- to make a point to

people, too.

It just saddens me that parents won't even consider the diet sometimes or are

too afraid of it because it doesn't fit into their schedule- even when the AED's

are obvioulsy not working. I would think they don't have a choice but to at

least give it a try, if they are considering their child's best interests. But

again- I am on this side of the coin and this is my opinion. We of course all

know how difficult it all is - period- and how clouded our decision making can

get at those bad times.

Mom to Noah- age 3, med-free, & seizure-free on the keto diet

Shapiro stephanie_shapiro@...> wrote:

Unfortunately, I think too many families are hindered by the word diet. Look at

all the people who should be on diets or live a healthier lifestyle, but are

unable to make the commitment themselves. It is even more difficult to encourage

children to make a lifestyle commitment that they as parents are unable to make.

We also live in a medicinal society. Pills are the " quick fix. " It's easier for

a lot of parents who, bless their hearts, have so many other difficulties in

their lives to work with, to simply use AED after AED. Hooray to all of us for

sticking with it and working towards seizure free, med free lives!

Re: New study at Mayo Clinic

Thanks for the info- this is very interesting. I wonder if this could

help Keto be used more widely rather than only in the major cities

where there is a keto team on staff. Of course a good keto team is

necessary, but parents may be more likely to give it a try if they

aren't forced to do the week-long hospital stay...

Mom to Noah- age 3, med-free, & seizure-free on the keto diet

> http://www.sciencedaily.com/releases/2004/10/041020091532.htm

" The Ketogenic Diet....a realistic treatment option, NOT just a last

resort! "

List is for parent to parent support only.

It is important to get medical advice from a professional

keto team!

Subscribe: ketogenic-subscribe

Unsubscribe: ketogenic-unsubscribe

[Guest guest]

,

I completely agree with you and i think your dietician is on the right track by

referring to the diet as a regimen. It is so true! Hannah is so young that it is

easy to keep her on the diet, but even her speech therapist wants to put food

near her mouth and on her lips to " stimulate her. " Why would we stimulate her

with foods she will probably never be able to eat?!

Re: New study at Mayo Clinic

Thanks for the info- this is very interesting. I wonder if this could

help Keto be used more widely rather than only in the major cities

where there is a keto team on staff. Of course a good keto team is

necessary, but parents may be more likely to give it a try if they

aren't forced to do the week-long hospital stay...

Mom to Noah- age 3, med-free, & seizure-free on the keto diet

> http://www.sciencedaily.com/releases/2004/10/041020091532.htm

" The Ketogenic Diet....a realistic treatment option, NOT just a last

resort! "

List is for parent to parent support only.

It is important to get medical advice from a professional

keto team!

Subscribe: ketogenic-subscribe

Unsubscribe: ketogenic-unsubscribe

[Guest guest]

My two cents:

I think, too, that if the neuro isn't enthused, they do not present the diet in

good light. When I first heard of it the comment was that was so small for

her age and that children don't usually grow on the diet, therefore it wasn't a

viable choice for her. Like all the side effects weren't worse than her not

growing. Hey, come now. She is Vietnamese. When I was over there I rarely saw

a man taller than I was by much, anyway, and I am just over 5 foot! will

be small. Her birth mother was about 4'8 " .

Sometime between that comment and the next, the neuro had obviously " heard " some

great things and was enthused for us to try it. Of course, by that time

was off all drugs and even the neuro did not want her on any as it was obvious

she did better without them.

I think it is so critical to get the word out there. Some will hesitate... but

remember. I cannot believe all the folks that are giving there children drugs

are not seeing obnoxious side effects. Nor do I believe the AEDs are

necessarily doing the job. When I taught I remember children stretched out in

the halls seizuring.

It is our job to make the public aware of our success with keto. And, each day

there is more and more out there to read and see for the general public.

Too, I am tired of everywhere you go people giving candy or treats to children.

I am getting to the point of abruptness on this issue. I don't want my other

little girl eating all that junk either!

And of all people, a speech therapist should be tuned in to special needs.

That is absolutely ridiculous to stimulate a baby with " forbidden fruit. "

Crazy. I am sure you are sweeter about it than I would be...

.. Mum to dear who is making ketones like crazy at a 2:1 ratio.

Shapiro stephanie_shapiro@...> wrote:

,

I completely agree with you and i think your dietician is on the right track by

referring to the diet as a regimen. It is so true! Hannah is so young that it is

easy to keep her on the diet, but even her speech therapist wants to put food

near her mouth and on her lips to " stimulate her. " Why would we stimulate her

with foods she will probably never be able to eat?!

Re: New study at Mayo Clinic

Thanks for the info- this is very interesting. I wonder if this could

help Keto be used more widely rather than only in the major cities

where there is a keto team on staff. Of course a good keto team is

necessary, but parents may be more likely to give it a try if they

aren't forced to do the week-long hospital stay...

Mom to Noah- age 3, med-free, & seizure-free on the keto diet

> http://www.sciencedaily.com/releases/2004/10/041020091532.htm

" The Ketogenic Diet....a realistic treatment option, NOT just a last

resort! "

List is for parent to parent support only.

It is important to get medical advice from a professional

keto team!

Subscribe: ketogenic-subscribe

Unsubscribe: ketogenic-unsubscribe