Guest guest Posted November 5, 2004 Report Share Posted November 5, 2004 Dear Natasha How is ph doing? Has the diet worked for him? Just curious, as you seem so well read and informed, but don't recall you mentioning just exactly how well he is doing. Oh, does your book give the stats on cherry juice? thanks. . michelle paulson michelle101291@...> wrote: Hey there, Natasha- WOW - ph wakes up with at least 3.7? Just out of curiosity, what are they at bedtime? That sounds GREAT - I'd love for to wake up w/that high of ketones b/c he definitely appears to do better w/higher ketones (seizure wise) - HOWEVER, his ketones slowly increase thruout the day and are 5.something or register HI meaning over 6 at bedtime. I'd be afraid he'd be too ketotic as the day progressed if he started out that high. He's been pretty hyper the past few days late afternoon and doesn't fall asleep until late (doesn't take a nap either - and he's nearly 3 yrs. old). So I'm wondering if the rise in ketones have something to do w/it. Do you give ph 4 meals or 5 per day? I have forgotten - how old/big is ph and how many calories/protein/carbs/fat etc. does he get? How's the seizure control for you? If you don't have time - I'll go back thru the files section and catch myself up. That's wonderful if you've found your answer by increasing ratio!! Thanks for the info.! Hoping ph has seizure free days! (mom to - will be 3 in Jan. ketokid since 6/03 - med free and working on the seizure free part but getting closer!!!!) --- natashagainford beasly@...> wrote: > > Hi > I've read recently that blood ketone level should be > at least 4.2 > for seizure control( as researches suggest),so > obviously 2.7 is not > enough and maybe what is why he is still having > seizures early > moning.Coinsedencely ph's ratio has been > increased from 3:1 to > 3.5:1 about a month ago and now his morning ketones > are anywhere > from 3.7 to 4.8 .Is is possible gets too much > carbs in his > meals? Maybe your dietitian shoul adjust the > proportion? > > Natasha( mom to ph) > > > > > > > Hi - > > > > I check blood ketones. His ketones are > > > consistently > > > > high at bedtime and he is now waking > w/mod. > > > ketones > > > > " MOST " days. Granted, I only spot check. > > > Mornings > > > > following seizures ketones are down and > > > glucose is up > > > > but figured they were lower as a natural > > > response to > > > > the seizure. > > > > > > > > > > > > > > > > > > > > > > > > > > > > [Non-text portions of this message have been > > > removed] > > > > > > > > > > > > __________________________________________________ > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 5, 2004 Report Share Posted November 5, 2004 Hi I just posted for and wrote about how ph is doing,so I hope you do not mind if I refer you to previous message.I am being a bit lazy to write it again Here is values for cherry juice,but I am not sure what kind of juice it is,so I just write it as it s in the book cherry juice,box,Minute Maid,6.8 fl oz values for 215 g pro 2.0 cho 27.0 fat 0.0 Eden Foods 8 fl oz values for 235 g pro 1.0 cho 33.0 fat 1.0 Hope it helps Natasha > > > > > Hi - > > > > > I check blood ketones. His ketones are > > > > consistently > > > > > high at bedtime and he is now waking > > w/mod. > > > > ketones > > > > > " MOST " days. Granted, I only spot check. > > > > Mornings > > > > > following seizures ketones are down and > > > > glucose is up > > > > > but figured they were lower as a natural > > > > response to > > > > > the seizure. > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > [Non-text portions of this message have been > > > > removed] > > > > > > > > > > > > > > > > > __________________________________________________ > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 6, 2004 Report Share Posted November 6, 2004 Dear Natasha I read where ph was doing so well!!! You must be pretty happy about it, and it will get better. Obviously you are tweeking the diet, as you have raised the ratio and finding it works better at a higher ratio. That is great. And that he is now worsening during illness is sure wonderful. I hope you can continue to tweak and you finally end up with total seizure control. It has taken up some mishaps and time, but I think we are getting there, too. is the opposite of ph, and does better on lower ratio and lower ketones with high ones only at night. That can be kind of tricky, but she has been down to one seizure in both Sept. and October, so I am praying for none this month. Are you doing alot of supplementing? If so, was it the keto team/dietitian that recommended them, or your own research? Thanks for the stats on the cherry juice. I went to the internet site and they didn't have it. We live in " cherry country " actually called the Cherry Capitol of the World, so we drink it, and it is so good for you. Anyway, thanks. .... 's mumma (keto since May 04) natashagainford beasly@...> wrote: Hi I just posted for and wrote about how ph is doing,so I hope you do not mind if I refer you to previous message.I am being a bit lazy to write it again Here is values for cherry juice,but I am not sure what kind of juice it is,so I just write it as it s in the book cherry juice,box,Minute Maid,6.8 fl oz values for 215 g pro 2.0 cho 27.0 fat 0.0 Eden Foods 8 fl oz values for 235 g pro 1.0 cho 33.0 fat 1.0 Hope it helps Natasha > > > > > Hi - > > > > > I check blood ketones. His ketones are > > > > consistently > > > > > high at bedtime and he is now waking > > w/mod. > > > > ketones > > > > > " MOST " days. Granted, I only spot check. > > > > Mornings > > > > > following seizures ketones are down and > > > > glucose is up > > > > > but figured they were lower as a natural > > > > response to > > > > > the seizure. > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > [Non-text portions of this message have been > > > > removed] > > > > > > > > > > > > > > > > > __________________________________________________ > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 6, 2004 Report Share Posted November 6, 2004 Hi, again! By " cho " do you mean carbohydrate, or were you reading the cholestrol? I need the carbohydrate.............thanks. . natashagainford beasly@...> wrote: Hi I just posted for and wrote about how ph is doing,so I hope you do not mind if I refer you to previous message.I am being a bit lazy to write it again Here is values for cherry juice,but I am not sure what kind of juice it is,so I just write it as it s in the book cherry juice,box,Minute Maid,6.8 fl oz values for 215 g pro 2.0 cho 27.0 fat 0.0 Eden Foods 8 fl oz values for 235 g pro 1.0 cho 33.0 fat 1.0 Hope it helps Natasha > > > > > Hi - > > > > > I check blood ketones. His ketones are > > > > consistently > > > > > high at bedtime and he is now waking > > w/mod. > > > > ketones > > > > > " MOST " days. Granted, I only spot check. > > > > Mornings > > > > > following seizures ketones are down and > > > > glucose is up > > > > > but figured they were lower as a natural > > > > response to > > > > > the seizure. > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > [Non-text portions of this message have been > > > > removed] > > > > > > > > > > > > > > > > > __________________________________________________ > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 7, 2004 Report Share Posted November 7, 2004 Hi Yes I give ph quite a bit supplements.I started to give him supplements on my own long time ago when he was not on the diet yet.I've made my own research and desided what I wanted him to take.Right now he continues to take the same supplements and a couple of new ones that was suggested by our dietitian. CHO is carbohydrates ,sorry for confusion.I am not sure why CHO,but this is how our dietitian calls crbohydrates Natasha > > > > > > Hi - > > > > > > I check blood ketones. His ketones are > > > > > consistently > > > > > > high at bedtime and he is now waking > > > w/mod. > > > > > ketones > > > > > > " MOST " days. Granted, I only spot check. > > > > > Mornings > > > > > > following seizures ketones are down and > > > > > glucose is up > > > > > > but figured they were lower as a natural > > > > > response to > > > > > > the seizure. > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > [Non-text portions of this message have been > > > > > removed] > > > > > > > > > > > > > > > > > > > > > > __________________________________________________ > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 7, 2004 Report Share Posted November 7, 2004 Thanks, Natasha. I am glad that ph is doing so well, and that you got a meal planner set up. It will save you lots of time, and they are fun to use. It makes tweeking the diet easier, too. Thanks for your help.......... natashagainford beasly@...> wrote: Hi Yes I give ph quite a bit supplements.I started to give him supplements on my own long time ago when he was not on the diet yet.I've made my own research and desided what I wanted him to take.Right now he continues to take the same supplements and a couple of new ones that was suggested by our dietitian. CHO is carbohydrates ,sorry for confusion.I am not sure why CHO,but this is how our dietitian calls crbohydrates Natasha > > > > > > Hi - > > > > > > I check blood ketones. His ketones are > > > > > consistently > > > > > > high at bedtime and he is now waking > > > w/mod. > > > > > ketones > > > > > > " MOST " days. Granted, I only spot check. > > > > > Mornings > > > > > > following seizures ketones are down and > > > > > glucose is up > > > > > > but figured they were lower as a natural > > > > > response to > > > > > > the seizure. > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > [Non-text portions of this message have been > > > > > removed] > > > > > > > > > > > > > > > > > > > > > > __________________________________________________ > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 7, 2004 Report Share Posted November 7, 2004 Thanks, Natasha. I am glad that ph is doing so well, and that you got a meal planner set up. It will save you lots of time, and they are fun to use. It makes tweeking the diet easier, too. Thanks for your help.......... natashagainford beasly@...> wrote: Hi Yes I give ph quite a bit supplements.I started to give him supplements on my own long time ago when he was not on the diet yet.I've made my own research and desided what I wanted him to take.Right now he continues to take the same supplements and a couple of new ones that was suggested by our dietitian. CHO is carbohydrates ,sorry for confusion.I am not sure why CHO,but this is how our dietitian calls crbohydrates Natasha > > > > > > Hi - > > > > > > I check blood ketones. His ketones are > > > > > consistently > > > > > > high at bedtime and he is now waking > > > w/mod. > > > > > ketones > > > > > > " MOST " days. Granted, I only spot check. > > > > > Mornings > > > > > > following seizures ketones are down and > > > > > glucose is up > > > > > > but figured they were lower as a natural > > > > > response to > > > > > > the seizure. > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > [Non-text portions of this message have been > > > > > removed] > > > > > > > > > > > > > > > > > > > > > > __________________________________________________ > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 7, 2004 Report Share Posted November 7, 2004 Thanks, Natasha. I am glad that ph is doing so well, and that you got a meal planner set up. It will save you lots of time, and they are fun to use. It makes tweeking the diet easier, too. Thanks for your help.......... natashagainford beasly@...> wrote: Hi Yes I give ph quite a bit supplements.I started to give him supplements on my own long time ago when he was not on the diet yet.I've made my own research and desided what I wanted him to take.Right now he continues to take the same supplements and a couple of new ones that was suggested by our dietitian. CHO is carbohydrates ,sorry for confusion.I am not sure why CHO,but this is how our dietitian calls crbohydrates Natasha > > > > > > Hi - > > > > > > I check blood ketones. His ketones are > > > > > consistently > > > > > > high at bedtime and he is now waking > > > w/mod. > > > > > ketones > > > > > > " MOST " days. Granted, I only spot check. > > > > > Mornings > > > > > > following seizures ketones are down and > > > > > glucose is up > > > > > > but figured they were lower as a natural > > > > > response to > > > > > > the seizure. > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > [Non-text portions of this message have been > > > > > removed] > > > > > > > > > > > > > > > > > > > > > > __________________________________________________ > > > > Quote Link to comment Share on other sites More sharing options...
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