Re: Isaac doing fantastic!

[Guest guest]

Hi Kathleen, that is such wonderful news.

Satnam, mom to Kristan, 21 months

Keto kid since August 2003

> Hi all - haven't been on for awhile b/c of camping holiday (keto

> equip. and all). Last I wrote after an initially perfect response

> Isaac had a set-back. At that time we increased his valproate (as

> per someone's advice here (thank-you) by only 30mg increments --

> took only two). It turns out he did break some bones in his foot

> and it looks like it was pain causing the set-back. He is

> absolutely perfect again so we are going to try the wean again.

> Gulp! This time I'm going to go down by 30mg decrements as well.

> He's so good I do wonder a bit why I'm trying to fix something that

> ain't broke. Mind you if we really could get him AE free it would

> really be something. Just knowing that we can quickly bump him

back

> up by such a small amount is helpful too.

>

> He's gone back to school (early intervention) and it seems everyone

> is commenting on how nice his eyes are and how they never noticed

it

> before. I just smile and agree but what I know inside is that they

> are seeing the light back on in his eyes and that is why they are

so

> beutiful! We've parked his wheelchair in the closet, tossed his

> helmut in the basement and are enjoying life to the fullest.

>

> Thanks for being there

>

> Kathleen

[Guest guest]

jafsmum wrote:

> Hi all - haven't been on for awhile b/c of camping holiday (keto

> equip. and all). Last I wrote after an initially perfect response

> Isaac had a set-back. At that time we increased his valproate (as

> per someone's advice here (thank-you) by only 30mg increments --

> took only two). It turns out he did break some bones in his foot

> and it looks like it was pain causing the set-back.

Reading this late, got buried in my inbox

But the comment on the depakote and the broken bones and of course, the

diet made me think.......have you ever had a bone density done? Unless

he took a hard enough fall or whatever that you would have expected

broken bones you might want to check this out. The AEDs and then the

diet on top can be really tough on the bones

Great news though!!!

, 's mom

> He is

> absolutely perfect again so we are going to try the wean again.

> Gulp! This time I'm going to go down by 30mg decrements as well.

> He's so good I do wonder a bit why I'm trying to fix something that

> ain't broke. Mind you if we really could get him AE free it would

> really be something. Just knowing that we can quickly bump him back

> up by such a small amount is helpful too.

>

> He's gone back to school (early intervention) and it seems everyone

> is commenting on how nice his eyes are and how they never noticed it

> before. I just smile and agree but what I know inside is that they

> are seeing the light back on in his eyes and that is why they are so

> beutiful! We've parked his wheelchair in the closet, tossed his

> helmut in the basement and are enjoying life to the fullest.

>

> Thanks for being there

>

> Kathleen

>

>

>

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> resort! "

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