Guest guest Posted June 23, 2006 Report Posted June 23, 2006 You are so welcome. I have emailed my friend who works for WPSD/ASDC about resources in Indiana. A family I know is moving to Indiana, so I asked if she could put me in touch with her. Another resource i found today which might be more timely is this one: http://www.deaf-kids.com/IND/ I called them and talked to Amber (I wanted to make sure they did not advocate for any one method). She is at . She was very very nice and said she can hook you up with resources in your part of the state. What I found over the years is that we parents become the experts - back in the 90s, they thought my Hayley had :tourettes (No), Autism (No). I ended up learning a lot about autism. Now she has chronic urticaria, so I'm learning about that. The same will happen for you. And I just had a thought. from Illinois is very active in Hands and Voices, and they have a chapter in Indiana: http://www.handsandvoices.org/chapters/indiana.htm All the best to you - > > > > > > > > > > > > If there are programs for deaf children in the area, boy I sure > > can't find > > > them. I've looked online for days and found an auditory - verbal > > therapy > > > services center in Merrillville which is about 25-30 minutes from > > my house. > > > I've left messages inquiring about their facility, etc. with no > > return call > > > as of yet. I'll give them a week and then call back again. Is this > > > something I should be looking into? > > > > > > was diagnosed with congenital sensorineural deafness at the > > age of 8. > > > I actually had the info on it and showed the doctor and he said > > yes, that is > > > what she has. Needless to say, that is as far as its gone. Now I > > am > > > reading things about kidney problems due to hearing loss on this > > website. > > > Should I be concerned with this? Who should I be address these > > issues with? > > > I just feel very lost. There are no other children in 's > > school with > > > a hearing loss like hers. The ones that do have hearing loss have > > downs > > > syndrome and their parents aren't sure where I should go either > > with my > > > questions. Then I also read on here that I should have gotten a CT > > scan or > > > an MRI? No one even brought those up to me! Should I have this > > done now? > > > Is it necessary now? > > > > > > Sorry for the long response. I just feel very lost in my > > daughter's silent > > > world! > > > > > > Diane > > > > > > Re: I feel really dumb > > > > > > > > > > Diane > > > > > > > > Sorry, I have been on vacation and did not see your post. I see > > that > > > > you are in Indiana. Indiana has really good programs, from what I > > > > can recall, for deaf children. > > > > > > > > Your school district should be setting you up with early > > > > intervention. . It is up to you and your family if you want to > > sign > > > > or not. I personally do, and I also think it is a good way to > > > > provide your child with communication while you decide what is the > > > > best communication path to follow. You can use it as a bridge and > > > > then not use it as your family becomes more comfortable with oral > > > > methods, or you can continue signing and incorporate speech if you > > > > want...and meet people you might not have met. > > > > > > > > There are a lot of options out there. Best wishes to you, > > > > > > > > > > > > If no one takes the time to explain things to you, how would you > > > > know? I'm sure you're like many of the rest of us here in that > > > > we've never really known a deaf or hard of hearing person before, > > > > our children are the first. There are a couple of books that are > > > > great for parents. Of course the exact titles seem to be escaping > > > > from my aging mind. One is by Sue Schwartz " Choices in Deafness " . > > > > The other one I think is called " You and your Deaf Child " . > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > All messages posted to this list are private and confidential. > > Each post > > > is the intellectual property of the author and therefore subject to > > > copyright restrictions. > > > > Quote
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