Re: Changing meds while on diet?

[Guest guest]

,

My daughter is 6 months old and we are still fine tuning...she is spilling no

ketones at all! Hannah is on Phenobarbital and Keppra. She still has the

myoclonics, but less often. I was told with the little ones you have to be very

careful with the Depekote. Keppra is fairly new but has little side effects and

the pill form is easy to crush with no carbs! Is your little one only bottle

feeding or is she eating solids as well?

Changing meds while on diet?

Hi, I am new to the group. My daughter started the ketogenic diet almost

four

weeks ago, and we are still having some trouble stabilizing her ketones and

controlling her seizures. She has infantile spasms, and was having about 5-

6 cluster seizures a day and now she's down to 1-3 a day. The problem is,

the seizures she does have are lasting much longer, and seeming to take

more out of her.

She's also on Depakote and Phenobarbital, and they don't seem to be doing

much for her anymore. I was wondering if anyone has switched to a different

seizure med, while still fine tuning the diet. The idea would be to aim for

better seizure control now, and if/when Daphne becomes seizure free, try to

wean her off.

One of my big goals in starting the diet was to get her off the meds; however

seizure control is always the first goal, since the seizures cause her

development to regress. I also want to make sure I give the diet a fair

shot...

and might feel better about leaving her on it longer if I wasn't so worried

about

these seizures.

Any advice/ experience?

Thanks so much!

(mom to Daphne, 9 months old -- dx with Infantile Spasms at 3 months)

" The Ketogenic Diet....a realistic treatment option, NOT just a last

resort! "

List is for parent to parent support only.

It is important to get medical advice from a professional

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[Guest guest]

>The problem is,

> the seizures she does have are lasting much longer, and seeming to

take

> more out of her.

>

> She's also on Depakote and Phenobarbital, and they don't seem to

be doing

> much for her anymore.

I've read a few posts previously that suggest that seizures may

actually worsten when a child is on Depakote on the diet, as the

change in metabolism linked with the diet makes the drug more potent

and can exacerbate seizures. I'm no medic, but this may be worth

looking into.

HTH

Gail

Mum to 5 LGS, MCT keto kid since Nov 03