Re: Re: low ketones and seizures! Carolyn

[Guest guest]

Hi Carolyn,

Sorry to hear things are no better there seizure wise

How are the med reductions going? Maybe you might be going a bit too fast

with them if he is not improving? I have fallen way behind on messages, but

catching up now, so not sure if I have missed any in between.

I have had a look at ael's height/weight on the growth charts, but

just wanted to check I had it right..

I get his weight as just under the 20th percentile, and his height as up

at the 90th - is he exactly 6 yrs old? When was his 6th birthday?

If exactly 6, his BMI (body mass index, or height/weight ratio) is very

low at 12.24, which according to my charts, is actually even below the 5th

percentile?? In fact not even on the chart! When you say 1.21 m, do you mean

121 cm?

And yes, his diet calculations should ultimately be aimed towards more his

ideal weight, but if you are already struggling with ketones getting up

higher, increasing calories right now may make this even harder to achieve.

Have all his medications/vitamins etc carb content been taken into

account?

At his existing weight, cals would be set between 1170 and 1224 cals per

day, slowly inching up to get some weight gain over time. (As Freeman's book

recommends, if the child is underweight, start at existing weight, them work

upwards - otherwise he will be on too many cals right now to be mimicing

starvation until he 'grows into' a higher cal allowance)

With a lot of seizures, so probably little normal activity, he may be

actually better off at the lower end of the scale, ie - the 1170 mark. This

sounds very low for a 6 yr old though, so maybe somewhere in between?

Protein is usually 1.1 per kg, again, usually set to ideal weight, but

that would be too high for ael right now, so on his current weight,

19.8 gms, or your 20 gms, sounds about right.

So on my mealplanner with 1224 cals and 20 gms prt on a 4:1 ratio, I get

122.4 fat, and 10.6 carb.

Are you checking glucose levels? As if all meds have been calculated in, I

cannot see at the moment why his blood ketones are looking so low. What are

his urine ketones showing as?

Keep a close eye on his weight over the next week or two, as this may give

you a clue if those cals are indeed a bit on the high side for his current

metabolic/cal burning state.

That's about all I can think of for now, hope today has been slightly

better for him,

----- Original Message -----

,

I revew all the food for aël but I think I've made a little

mistake...When I've calculated the calories I took his weight which is

under the normal weight and not the ideal weight...

aël is 6 years old, weight 18 kg and 1 . 21 meter...

He's on ratio 4.1

I've found:

proteins 20 g/day

fat 120 g/day

carbonhydrates 10 g / day

calories 1224/day

So one type menu is (just since yesterday!before it wasn't that at all!)

:

cream at 36% 40 g

vegetables group A 35 g

ham 18 g

oil 14 g

I use olive oil

And he takes 4 meals/day

He doesn't drink a lot, only about 1/2 liter a day.

Flax oil is forbidden in France and coconut oil very hard to find, I

haven't got yet

Thank you for helping me, I'm so glad I've found your group!

Carolyn, aël's mum

[Guest guest]

,

aël is very thin, he's only 17 kg for 121 cm at least because it was 1

month ago and he's growning a lot!

His medications and complements take a bit of carb so I take 1 gramm off the

diet.

The blood monitoring shows very low levels ketones at anytime, he's about

1,6 mmmol/l.

For the urines it's a high but it doesn't mean anythig it shows it's under 2

I think, I'll buy some other keto sticks today...

I didn't check the glucose level...

Thank you very much

Carolyn, aël 's mum who is having a very bad time

Re: Re: low ketones and seizures! Carolyn

Hi Carolyn,

Sorry to hear things are no better there seizure wise

How are the med reductions going? Maybe you might be going a bit too fast

with them if he is not improving? I have fallen way behind on messages, but

catching up now, so not sure if I have missed any in between.

I have had a look at ael's height/weight on the growth charts, but

just wanted to check I had it right..

I get his weight as just under the 20th percentile, and his height as up

at the 90th - is he exactly 6 yrs old? When was his 6th birthday?

If exactly 6, his BMI (body mass index, or height/weight ratio) is very

low at 12.24, which according to my charts, is actually even below the 5th

percentile?? In fact not even on the chart! When you say 1.21 m, do you mean

121 cm?

And yes, his diet calculations should ultimately be aimed towards more his

ideal weight, but if you are already struggling with ketones getting up

higher, increasing calories right now may make this even harder to achieve.

Have all his medications/vitamins etc carb content been taken into

account?

At his existing weight, cals would be set between 1170 and 1224 cals per

day, slowly inching up to get some weight gain over time. (As Freeman's book

recommends, if the child is underweight, start at existing weight, them work

upwards - otherwise he will be on too many cals right now to be mimicing

starvation until he 'grows into' a higher cal allowance)

With a lot of seizures, so probably little normal activity, he may be

actually better off at the lower end of the scale, ie - the 1170 mark. This

sounds very low for a 6 yr old though, so maybe somewhere in between?

Protein is usually 1.1 per kg, again, usually set to ideal weight, but

that would be too high for ael right now, so on his current weight,

19.8 gms, or your 20 gms, sounds about right.

So on my mealplanner with 1224 cals and 20 gms prt on a 4:1 ratio, I get

122.4 fat, and 10.6 carb.

Are you checking glucose levels? As if all meds have been calculated in, I

cannot see at the moment why his blood ketones are looking so low. What are

his urine ketones showing as?

Keep a close eye on his weight over the next week or two, as this may give

you a clue if those cals are indeed a bit on the high side for his current

metabolic/cal burning state.

That's about all I can think of for now, hope today has been slightly

better for him,

----- Original Message -----

,

I revew all the food for aël but I think I've made a little

mistake...When I've calculated the calories I took his weight which is

under the normal weight and not the ideal weight...

aël is 6 years old, weight 18 kg and 1 . 21 meter...

He's on ratio 4.1

I've found:

proteins 20 g/day

fat 120 g/day

carbonhydrates 10 g / day

calories 1224/day

So one type menu is (just since yesterday!before it wasn't that at all!)

:

cream at 36% 40 g

vegetables group A 35 g

ham 18 g

oil 14 g

I use olive oil

And he takes 4 meals/day

He doesn't drink a lot, only about 1/2 liter a day.

Flax oil is forbidden in France and coconut oil very hard to find, I

haven't got yet

Thank you for helping me, I'm so glad I've found your group!

Carolyn, aël's mum

" The Ketogenic Diet....a realistic treatment option, NOT just a last

resort! "

List is for parent to parent support only.

It is important to get medical advice from a professional

keto team!

Subscribe: ketogenic-subscribe

Unsubscribe: ketogenic-unsubscribe

[Guest guest]

I sent this mail again, it doesn't work before!

---- Original Message -----

From: caronath

To: ketogenic

Sent: Monday, July 26, 2004 12:20 PM

Subject: Re: Re: low ketones and seizures! Carolyn

,

aël is very thin, he's only 17 kg for 121 cm at least because it was

1 month ago and he's growning a lot!

His medications and complements take a bit of carb so I take 1 gramm off

the diet.

The blood monitoring shows very low levels ketones at anytime, he's

about 1,6 mmmol/l.

For the urines it's a high but it doesn't mean anythig it shows it's

under 2 I think, I'll buy some other keto sticks today...

I didn't check the glucose level...

Thank you very much

Carolyn, aël 's mum who is having a very bad time

Re: Re: low ketones and seizures! Carolyn

Hi Carolyn,

Sorry to hear things are no better there seizure wise

How are the med reductions going? Maybe you might be going a bit too

fast

with them if he is not improving? I have fallen way behind on messages,

but

catching up now, so not sure if I have missed any in between.

I have had a look at ael's height/weight on the growth charts,

but

just wanted to check I had it right..

I get his weight as just under the 20th percentile, and his height as

up

at the 90th - is he exactly 6 yrs old? When was his 6th birthday?

If exactly 6, his BMI (body mass index, or height/weight ratio) is

very

low at 12.24, which according to my charts, is actually even below the

5th

percentile?? In fact not even on the chart! When you say 1.21 m, do you

mean

121 cm?

And yes, his diet calculations should ultimately be aimed towards more

his

ideal weight, but if you are already struggling with ketones getting up

higher, increasing calories right now may make this even harder to

achieve.

Have all his medications/vitamins etc carb content been taken into

account?

At his existing weight, cals would be set between 1170 and 1224 cals

per

day, slowly inching up to get some weight gain over time. (As Freeman's

book

recommends, if the child is underweight, start at existing weight, them

work

upwards - otherwise he will be on too many cals right now to be

mimicing

starvation until he 'grows into' a higher cal allowance)

With a lot of seizures, so probably little normal activity, he may be

actually better off at the lower end of the scale, ie - the 1170 mark.

This

sounds very low for a 6 yr old though, so maybe somewhere in between?

Protein is usually 1.1 per kg, again, usually set to ideal weight, but

that would be too high for ael right now, so on his current

weight,

19.8 gms, or your 20 gms, sounds about right.

So on my mealplanner with 1224 cals and 20 gms prt on a 4:1 ratio, I

get

122.4 fat, and 10.6 carb.

Are you checking glucose levels? As if all meds have been calculated

in, I

cannot see at the moment why his blood ketones are looking so low. What

are

his urine ketones showing as?

Keep a close eye on his weight over the next week or two, as this may

give

you a clue if those cals are indeed a bit on the high side for his

current

metabolic/cal burning state.

That's about all I can think of for now, hope today has been slightly

better for him,

----- Original Message -----

,

I revew all the food for aël but I think I've made a little

mistake...When I've calculated the calories I took his weight which is

under the normal weight and not the ideal weight...

aël is 6 years old, weight 18 kg and 1 . 21 meter...

He's on ratio 4.1

I've found:

proteins 20 g/day

fat 120 g/day

carbonhydrates 10 g / day

calories 1224/day

So one type menu is (just since yesterday!before it wasn't that at

all!)

:

cream at 36% 40 g

vegetables group A 35 g

ham 18 g

oil 14 g

I use olive oil

And he takes 4 meals/day

He doesn't drink a lot, only about 1/2 liter a day.

Flax oil is forbidden in France and coconut oil very hard to find,

I

haven't got yet

Thank you for helping me, I'm so glad I've found your group!

Carolyn, aël's mum

" The Ketogenic Diet....a realistic treatment option, NOT just a last

resort! "

List is for parent to parent support only.

It is important to get medical advice from a

professional keto team!

Subscribe: ketogenic-subscribe

Unsubscribe: ketogenic-unsubscribe

[Guest guest]

,

aël is very thin, he's only 17 kg for 121 cm at least because it

was 1 month ago and he's growning a lot!

His medications and complements take a bit of carb so I take 1 gramm

off the diet.

The blood monitoring shows very low levels ketones at anytime, he's

about 1,6 mmmol/l.

For the urines it's a high but it doesn't mean anythig it shows it's

under 2 I think, I'll buy some other keto sticks today...

I didn't check the glucose level...

Thank you very much

Carolyn, aël 's mum who is having a very bad time

Re: Re: low ketones and seizures! Carolyn

Hi Carolyn,

Sorry to hear things are no better there seizure wise

How are the med reductions going? Maybe you might be going a bit

too fast

with them if he is not improving? I have fallen way behind on

messages, but

catching up now, so not sure if I have missed any in between.

I have had a look at ael's height/weight on the growth

charts, but

just wanted to check I had it right..

I get his weight as just under the 20th percentile, and his height

as up

at the 90th - is he exactly 6 yrs old? When was his 6th birthday?

If exactly 6, his BMI (body mass index, or height/weight ratio) is

very

low at 12.24, which according to my charts, is actually even below

the 5th

percentile?? In fact not even on the chart! When you say 1.21 m, do

you mean

121 cm?

And yes, his diet calculations should ultimately be aimed towards

more his

ideal weight, but if you are already struggling with ketones getting

up

higher, increasing calories right now may make this even harder to

achieve.

Have all his medications/vitamins etc carb content been taken into

account?

At his existing weight, cals would be set between 1170 and 1224

cals per

day, slowly inching up to get some weight gain over time. (As

Freeman's book

recommends, if the child is underweight, start at existing weight,

them work

upwards - otherwise he will be on too many cals right now to be

mimicing

starvation until he 'grows into' a higher cal allowance)

With a lot of seizures, so probably little normal activity, he may

be

actually better off at the lower end of the scale, ie - the 1170

mark. This

sounds very low for a 6 yr old though, so maybe somewhere in

between?

Protein is usually 1.1 per kg, again, usually set to ideal weight,

but

that would be too high for ael right now, so on his current

weight,

19.8 gms, or your 20 gms, sounds about right.

So on my mealplanner with 1224 cals and 20 gms prt on a 4:1 ratio,

I get

122.4 fat, and 10.6 carb.

Are you checking glucose levels? As if all meds have been

calculated in, I

cannot see at the moment why his blood ketones are looking so low.

What are

his urine ketones showing as?

Keep a close eye on his weight over the next week or two, as this

may give

you a clue if those cals are indeed a bit on the high side for his

current

metabolic/cal burning state.

That's about all I can think of for now, hope today has been

slightly

better for him,

----- Original Message -----

,

I revew all the food for aël but I think I've made a

little

mistake...When I've calculated the calories I took his weight which

is

under the normal weight and not the ideal weight...

aël is 6 years old, weight 18 kg and 1 . 21 meter...

He's on ratio 4.1

I've found:

proteins 20 g/day

fat 120 g/day

carbonhydrates 10 g / day

calories 1224/day

So one type menu is (just since yesterday!before it wasn't that

at all!)

:

cream at 36% 40 g

vegetables group A 35 g

ham 18 g

oil 14 g

I use olive oil

And he takes 4 meals/day

He doesn't drink a lot, only about 1/2 liter a day.

Flax oil is forbidden in France and coconut oil very hard to

find, I

haven't got yet

Thank you for helping me, I'm so glad I've found your group!

Carolyn, aël's mum

" The Ketogenic Diet....a realistic treatment option, NOT just a

last resort! "

List is for parent to parent support only.

It is important to get medical advice from a

professional keto team!

Subscribe: ketogenic-subscribe

Unsubscribe: ketogenic-unsubscribe