monitoring blood glucose

[Guest guest]

For about 2 months Shan's seizure activity has increased. Where she use to

go anywhere from 2 to 4 to 6 weeks without a tonic clonic seizure in her

sleep she has been having 1 every 2-3 days. We have been tweeking the diet.

After running out of ideas on what could possibly be the cause, we decided

to make a major change and put her back on a 2:1 ratio and make her diet

more like the ketogenic. She has been on a 1:1 ratio with high protein and

carbs around 20g (Atkins). At this time we decided to start monitoring her

blood sugars more closely. Prior to making the ratio/protein/carb change

her blood sugars were in the mid 80's. After the change her blood sugars

were 71-74 in the morning. She went 4 nights without a seizure. The

morning of the night that she had the seizure her BS was 81. The next

morning it was 76. Last night (2 nights later after the last seizure) she

had another seizure and her BS at the time was 91. This morning her BS was

94.

Monitoring Blood sugars and making diet adjustments according to Blood

sugars is new to me. We have always watched the ketones in the urine.

Prior to making the ratio change her ketones have been moderate to large in

the evening. Since the ratio change they have been steadily increasing.

Last night they were an easy 160 (blackened easy).

I'm going to do some research in the keto archives on this topic, but anyone

wishing to share their ideas I would welcome them. Shan has done well on

the diet but 2 months ago the seizures suddenly increased. She had been

slowly gaining weight over the 2 years on the diet so we were not sure if

that was the problem. Also, I was making adjustments in her diet in regard

to making her diet low salicylate to help control impulsiveness (changed

source of fat). Over the past 6 weeks we have given back most of her

calories and went back to the fats that she was using. She's not fat but

according to the growth chart her height is less than 5% and her weight is

15-20%....so she's a little over in regard to weight.

Recent lab work shows that all is normal (except cholesterol) including the

carnitine.

Rhonda (mom to Shan, age 9, keto kid over 2.5 years)