Re: Thank you ,very bad night and a question.

[Guest guest]

Temp can definately cause seizures. No doubt about it. Many time with

he would have seizures for unknown reason and then the next day he

would be sick with a virus like a cancer sore. Any little abnormal infection,

fever virus etc can cause them. Poor kids!

Lots of luck

[Guest guest]

Hi Kaz

This story is very familiar to me.ph's first seizures were

thought to be " febrile " as he only fitted with fever in early days

of his epilepsy.He has been admitted to hospital 100s times with

fever and seizures and no known cause for fevers.Later when I joined

SMEI group I found out it is quite common among kids with SMEI.I

think maybe we notice fever because of seizures because in our case

fever does not have to be very high to bring on a seizure.On the

other hand it is quite common for SMEI kids to have 'febrile'

seizures during first year of life.Usually such young kids do not

have friequent fevers ,so I think fever ( in our case) is a part of

seizure disorder what means that body " thermostat " (which is

hypothalamus (sp) I believe) does not work properly.Seizure can

raise body temperature but we have never seen high fever because of

seizure, just a bit elevated.In our case fever always comes first(

for no known reason).So body thermostat is something to think

about.it gets better than kids grow older

Natasha,mom to 2 years old ph,suspected SMEI/Dravet's

syndrome,keto kid simc August 23d 2004

>

>

> Just wanted to say thanks to , and Lloyd, Bill Barber

> and Koch for completing the survey today.

>

> Much appreciated xxxx

>

> Had a very bad night with our son Jermaine last night.

> He got an extremley high temperature and of course started having

> siezures continuosously.

> They came in the form of constant twitching and just being

completley

> not with it or aware.

>

> My question is with Jermaine i know that siezures can bring his

> temperature up, so we do not know if he is fitting due to the temp

or

> the temp is due to the fitting although he has never had a temp

quite

> as high as last night before.

> We have though had many occasions where his temp rises very high,

hes

> fitting and once he stops it returns to normal with no other

illness

> or infection the cause......

>

> Do others experience this?

>

> I do not know how long J was having siezures last night before we

> came down as they were not noisy like he usually is but today

hehas

> been fine with no signs of any illness etc.....

>

> Any feedback much appreciated.

>

> Kaz

> xxx

[Guest guest]

As far as i know, when our kids have fever, it lowers the threshold for

seizures. My son has history of IS but doesnt have it now. However,

whenever he gets a temperature we get very bad seizures that lasts for more

than an hour.

" kazmum2boys "

ketogenic

aol.com> cc:

Subject: Thank you

,very bad

15/10/2004 night and a question.

04:41 AM

Please

respond to

ketogenic

Just wanted to say thanks to , and Lloyd, Bill Barber

and Koch for completing the survey today.

Much appreciated xxxx

Had a very bad night with our son Jermaine last night.

He got an extremley high temperature and of course started having

siezures continuosously.

They came in the form of constant twitching and just being completley

not with it or aware.

My question is with Jermaine i know that siezures can bring his

temperature up, so we do not know if he is fitting due to the temp or

the temp is due to the fitting although he has never had a temp quite

as high as last night before.

We have though had many occasions where his temp rises very high, hes

fitting and once he stops it returns to normal with no other illness

or infection the cause......

Do others experience this?

I do not know how long J was having siezures last night before we

came down as they were not noisy like he usually is but today hehas

been fine with no signs of any illness etc.....

Any feedback much appreciated.

Kaz

xxx

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[Guest guest]

-Hi All.

Thanks forthe responses.

Jermaine has had never sickness or diarrhoea.

Maybe i should give him more fluids and see if that helps.

Temp is definatley a trigger for his siezures but when this is a

common occurence i am sure that the siezures bring on the temp. It is

not a slight temp though it can be very high.

He is back to school today as hes back to himself.

Kaz

xxx