Guest guest Posted July 7, 2004 Report Share Posted July 7, 2004 Thanks , yes he has had a pretty amazing and fairly rapid turn around, one of the most dramatic our hospital have seen for quite some time I think :) I really believe that too many of the wrong medications made a huge impact on him from his very first seizure onwards to be honest, that gut feeling where you give them a med but know deep down it really is the wrong thing to do?? But no one has an alternative, so you keep on doin it anyway.... Until breaking point is reached and a major call has to be made, and you hope like **** it is the right one. Which in 's case, I believe in my heart of hearts, the abrupt diazepam removal was. We were lucky (if you can call it that) in a way where any of his adverse med reactions were able to be pretty clearly documented, so we had sone 'ammunition' to illustrate what we thought the problem was. Unusual though his growing intolerance to this class of med was, in the end I think no one could argue what had probably been happening to him. My biggest regret is that we didn't push harder for it's total removal earlier, we might have saved him 2 mths of hell late last yr, but we're trying not to look back, as you do........ ----- Original Message ----- > , > I still get a pit in my stomach and nearly stop breathing when I > reread your story about . You are a very strong, determined > mother and is VERY lucky to have you as a mother. For > to go through all that and be doing so well now (so quickly) is > truely a miracle! > Quote Link to comment Share on other sites More sharing options...
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