Guest guest Posted March 14, 2004 Report Share Posted March 14, 2004 My dad also had the build up of fluid around his heart and was given lasix for it. They called it, shit, can't remember, it was congestive heart failure I think. But the lasix helped him alot and he hasn't had problems with it in a long time. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 16, 2004 Report Share Posted October 16, 2004 Donna, I do have a friend right here in my town that was just recently dx with rsd, like, a week ago. The first thing that she did was to call me and pick my brain, what's left of it anyway. lol Now though, I haven't heard a word from her and every time I call her, she either isn't home or she's busy with one of her kids and can't talk. The worst part is though, is that I thought maybe if she finds a good dr for this crap, that I could call and see if they would take me also. But unfortunately, she was sent to the same stupid drs that I'm already seeing. If that's what you want to call it. I haven't seen either one of them, a foot dr and pain mangement dr, since Feb. They have no idea what to do for the advanced stages of rsd. (I was told I am in stage 3 with some signs of 4) She is only just starting stage 1, so they should be alright for her at this point. At least they're giving her some meds to help take the edge off. I don't have any. I think that the reason she's avoiding me, because she is avoiding me, her boyfriend told me, is because she's afraid of me, if that makes sense. I think she sees how I am and how my foot is, and she's afraid that she may end up the same way. I told her that there is a good chance that she won't, but I don't think that she believed me. I'm going to keep trying to reach her though, because I know that evenually, she's going to need to talk with someone and when she does, I'll be here. I want to make sure that she knows this. I've rambled enough for now. Thanks for listening. Hugs, Faith Faith >It is nice to have someone so close by and even cooler that if we >were any more alike it would downright terrifying LOL!! > >Hugs >Donna LOL Donna! That is soooo cool that you two live so close to each >other! You two can get together just about anytime you want to! It >kind of makes me sad sometimes to know that alot of people in the >group live so close to me, but still might as well be a thousand >miles away because it's still not close enough to get together, you >know? Hugs, Faith > > > Rock, jazz, country, soul more. Find the music you love on MSN Music! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 16, 2004 Report Share Posted October 16, 2004 Donna, I do have a friend right here in my town that was just recently dx with rsd, like, a week ago. The first thing that she did was to call me and pick my brain, what's left of it anyway. lol Now though, I haven't heard a word from her and every time I call her, she either isn't home or she's busy with one of her kids and can't talk. The worst part is though, is that I thought maybe if she finds a good dr for this crap, that I could call and see if they would take me also. But unfortunately, she was sent to the same stupid drs that I'm already seeing. If that's what you want to call it. I haven't seen either one of them, a foot dr and pain mangement dr, since Feb. They have no idea what to do for the advanced stages of rsd. (I was told I am in stage 3 with some signs of 4) She is only just starting stage 1, so they should be alright for her at this point. At least they're giving her some meds to help take the edge off. I don't have any. I think that the reason she's avoiding me, because she is avoiding me, her boyfriend told me, is because she's afraid of me, if that makes sense. I think she sees how I am and how my foot is, and she's afraid that she may end up the same way. I told her that there is a good chance that she won't, but I don't think that she believed me. I'm going to keep trying to reach her though, because I know that evenually, she's going to need to talk with someone and when she does, I'll be here. I want to make sure that she knows this. I've rambled enough for now. Thanks for listening. Hugs, Faith Faith >It is nice to have someone so close by and even cooler that if we >were any more alike it would downright terrifying LOL!! > >Hugs >Donna LOL Donna! That is soooo cool that you two live so close to each >other! You two can get together just about anytime you want to! It >kind of makes me sad sometimes to know that alot of people in the >group live so close to me, but still might as well be a thousand >miles away because it's still not close enough to get together, you >know? Hugs, Faith > > > Rock, jazz, country, soul more. Find the music you love on MSN Music! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 16, 2004 Report Share Posted October 16, 2004 Donna, I do have a friend right here in my town that was just recently dx with rsd, like, a week ago. The first thing that she did was to call me and pick my brain, what's left of it anyway. lol Now though, I haven't heard a word from her and every time I call her, she either isn't home or she's busy with one of her kids and can't talk. The worst part is though, is that I thought maybe if she finds a good dr for this crap, that I could call and see if they would take me also. But unfortunately, she was sent to the same stupid drs that I'm already seeing. If that's what you want to call it. I haven't seen either one of them, a foot dr and pain mangement dr, since Feb. They have no idea what to do for the advanced stages of rsd. (I was told I am in stage 3 with some signs of 4) She is only just starting stage 1, so they should be alright for her at this point. At least they're giving her some meds to help take the edge off. I don't have any. I think that the reason she's avoiding me, because she is avoiding me, her boyfriend told me, is because she's afraid of me, if that makes sense. I think she sees how I am and how my foot is, and she's afraid that she may end up the same way. I told her that there is a good chance that she won't, but I don't think that she believed me. I'm going to keep trying to reach her though, because I know that evenually, she's going to need to talk with someone and when she does, I'll be here. I want to make sure that she knows this. I've rambled enough for now. Thanks for listening. Hugs, Faith Faith >It is nice to have someone so close by and even cooler that if we >were any more alike it would downright terrifying LOL!! > >Hugs >Donna LOL Donna! That is soooo cool that you two live so close to each >other! You two can get together just about anytime you want to! It >kind of makes me sad sometimes to know that alot of people in the >group live so close to me, but still might as well be a thousand >miles away because it's still not close enough to get together, you >know? Hugs, Faith > > > Rock, jazz, country, soul more. Find the music you love on MSN Music! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 17, 2004 Report Share Posted October 17, 2004 > Hi Faith You're right about needing someone to talk to. Shes probably still trying to face the truth. I know it took me a long time, some soul searching and hitting the internet before I would even accept that it might possibly be true. Of course having signed up for this group was one of the first things I did because I knew I was going to need someone to talk to, vent to, share with etc and I'm so very glad that I came here! You're probably right as well that she sees what your facing and maybe fears that her future holds much the same. I wouldnt take anything to heart at this point if she seems to be avoiding you, fear has a big hold on people I think with all that they face or may be facing. She will come around eventually and will need your support and advice. Hugs Donna Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 17, 2004 Report Share Posted October 17, 2004 You're right about needing someone to talk to. Shes probably still trying to face the truth. I know it took me a long time, some soul searching and hitting the internet before I would even accept that it You're probably right. I know we had a couple people come to the local support group, and when they found out that it can spread, or saw someone with a cane, etc., they admitted that they couldn't handle that type of information yet. It was pretty scary for them to think it could spread--and it is! When mine went to the right foot this year, I'm thinking "oh my gosh, will it go somewhere else now?" Had gone nearly 4 years and thought maybe it wouldn't do that. Love, N. __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 17, 2004 Report Share Posted October 17, 2004 You're right about needing someone to talk to. Shes probably still trying to face the truth. I know it took me a long time, some soul searching and hitting the internet before I would even accept that it You're probably right. I know we had a couple people come to the local support group, and when they found out that it can spread, or saw someone with a cane, etc., they admitted that they couldn't handle that type of information yet. It was pretty scary for them to think it could spread--and it is! When mine went to the right foot this year, I'm thinking "oh my gosh, will it go somewhere else now?" Had gone nearly 4 years and thought maybe it wouldn't do that. Love, N. __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 17, 2004 Report Share Posted October 17, 2004 You're right about needing someone to talk to. Shes probably still trying to face the truth. I know it took me a long time, some soul searching and hitting the internet before I would even accept that it You're probably right. I know we had a couple people come to the local support group, and when they found out that it can spread, or saw someone with a cane, etc., they admitted that they couldn't handle that type of information yet. It was pretty scary for them to think it could spread--and it is! When mine went to the right foot this year, I'm thinking "oh my gosh, will it go somewhere else now?" Had gone nearly 4 years and thought maybe it wouldn't do that. Love, N. __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 17, 2004 Report Share Posted October 17, 2004 Donna, You're thinking is the same as mine. I have also told her about this group and how wonderful all of the people are and how much information gets shared here. She currently doesn't have a computer, but she's looking into getting one and says that maybe once she gets online she'll give us a try. I hope that she does. I really think that she's going to need more than just me for support. Especially since she ended up having to have the same ignorant, don't-know-nothing-about-rsd doctors that I have. She's not going to learn anything from them. I have learned so much from everyone here. I'm glad that I joined also. Hugs, Faith Hi Faith >You're right about needing someone to talk to. Shes probably still >trying to face the truth. I know it took me a long time, some soul >searching and hitting the internet before I would even accept that it >might possibly be true. Of course having signed up for this group was >one of the first things I did because I knew I was going to need >someone to talk to, vent to, share with etc and I'm so very glad that >I came here! >You're probably right as well that she sees what your facing and >maybe fears that her future holds much the same. I wouldnt take >anything to heart at this point if she seems to be avoiding you, fear >has a big hold on people I think with all that they face or may be >facing. She will come around eventually and will need your support >and advice. > >Hugs >Donna > > > Rock, jazz, country, soul more. Find the music you love on MSN Music! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 17, 2004 Report Share Posted October 17, 2004 Donna, You're thinking is the same as mine. I have also told her about this group and how wonderful all of the people are and how much information gets shared here. She currently doesn't have a computer, but she's looking into getting one and says that maybe once she gets online she'll give us a try. I hope that she does. I really think that she's going to need more than just me for support. Especially since she ended up having to have the same ignorant, don't-know-nothing-about-rsd doctors that I have. She's not going to learn anything from them. I have learned so much from everyone here. I'm glad that I joined also. Hugs, Faith Hi Faith >You're right about needing someone to talk to. Shes probably still >trying to face the truth. I know it took me a long time, some soul >searching and hitting the internet before I would even accept that it >might possibly be true. Of course having signed up for this group was >one of the first things I did because I knew I was going to need >someone to talk to, vent to, share with etc and I'm so very glad that >I came here! >You're probably right as well that she sees what your facing and >maybe fears that her future holds much the same. I wouldnt take >anything to heart at this point if she seems to be avoiding you, fear >has a big hold on people I think with all that they face or may be >facing. She will come around eventually and will need your support >and advice. > >Hugs >Donna > > > Rock, jazz, country, soul more. Find the music you love on MSN Music! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 17, 2004 Report Share Posted October 17, 2004 Donna, You're thinking is the same as mine. I have also told her about this group and how wonderful all of the people are and how much information gets shared here. She currently doesn't have a computer, but she's looking into getting one and says that maybe once she gets online she'll give us a try. I hope that she does. I really think that she's going to need more than just me for support. Especially since she ended up having to have the same ignorant, don't-know-nothing-about-rsd doctors that I have. She's not going to learn anything from them. I have learned so much from everyone here. I'm glad that I joined also. Hugs, Faith Hi Faith >You're right about needing someone to talk to. Shes probably still >trying to face the truth. I know it took me a long time, some soul >searching and hitting the internet before I would even accept that it >might possibly be true. Of course having signed up for this group was >one of the first things I did because I knew I was going to need >someone to talk to, vent to, share with etc and I'm so very glad that >I came here! >You're probably right as well that she sees what your facing and >maybe fears that her future holds much the same. I wouldnt take >anything to heart at this point if she seems to be avoiding you, fear >has a big hold on people I think with all that they face or may be >facing. She will come around eventually and will need your support >and advice. > >Hugs >Donna > > > Rock, jazz, country, soul more. Find the music you love on MSN Music! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 18, 2004 Report Share Posted October 18, 2004 > Faith Youre right, shes going to need more support that you are going to be able to offer her, there will be questions perhaps that you wont be able to answer that others might and more than likely there will also be days when she needs more than you can emotionally or physically offer to her. Getting information from other sources will be important to her as well and perhaps there might even be information that the two of you may learn together. Give her our best and when she has a chance to get involved with the group she will be of course welcomed abard. Hugs Donna Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 18, 2004 Report Share Posted October 18, 2004 > Faith Youre right, shes going to need more support that you are going to be able to offer her, there will be questions perhaps that you wont be able to answer that others might and more than likely there will also be days when she needs more than you can emotionally or physically offer to her. Getting information from other sources will be important to her as well and perhaps there might even be information that the two of you may learn together. Give her our best and when she has a chance to get involved with the group she will be of course welcomed abard. Hugs Donna Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 18, 2004 Report Share Posted October 18, 2004 > Faith Youre right, shes going to need more support that you are going to be able to offer her, there will be questions perhaps that you wont be able to answer that others might and more than likely there will also be days when she needs more than you can emotionally or physically offer to her. Getting information from other sources will be important to her as well and perhaps there might even be information that the two of you may learn together. Give her our best and when she has a chance to get involved with the group she will be of course welcomed abard. Hugs Donna Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 22, 2004 Report Share Posted October 22, 2004 And what others are saying about low > potassium is also what may be causing it. You need to get a blood test to see > what your potasiium levels are. Of course this is not the only thing that > causes it but it helps to rule out what does or doesn't. I eat at least one banana a day and take a multivitamin so I dont know that my potassium level is down. The muscle spasms I get arent like charley horse pain, its a deep tightening mostly in my abdomen that works itself into a release that shakes me like the hiccups. Its the strangest feeling. I was lying down a little while ago on my side and it did again. So much for my nap LOL I have had them in my arms and legs as small jolts but nothing like in my stomach, again its not painful but more jolting. I will ask my primary though when I see him and see what he thinks might be up. Thanks for your suggestion, I'll try it and it certainly cant hurt any. Hugs Donna Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 22, 2004 Report Share Posted October 22, 2004 And what others are saying about low > potassium is also what may be causing it. You need to get a blood test to see > what your potasiium levels are. Of course this is not the only thing that > causes it but it helps to rule out what does or doesn't. I eat at least one banana a day and take a multivitamin so I dont know that my potassium level is down. The muscle spasms I get arent like charley horse pain, its a deep tightening mostly in my abdomen that works itself into a release that shakes me like the hiccups. Its the strangest feeling. I was lying down a little while ago on my side and it did again. So much for my nap LOL I have had them in my arms and legs as small jolts but nothing like in my stomach, again its not painful but more jolting. I will ask my primary though when I see him and see what he thinks might be up. Thanks for your suggestion, I'll try it and it certainly cant hurt any. Hugs Donna Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 22, 2004 Report Share Posted October 22, 2004 And what others are saying about low > potassium is also what may be causing it. You need to get a blood test to see > what your potasiium levels are. Of course this is not the only thing that > causes it but it helps to rule out what does or doesn't. I eat at least one banana a day and take a multivitamin so I dont know that my potassium level is down. The muscle spasms I get arent like charley horse pain, its a deep tightening mostly in my abdomen that works itself into a release that shakes me like the hiccups. Its the strangest feeling. I was lying down a little while ago on my side and it did again. So much for my nap LOL I have had them in my arms and legs as small jolts but nothing like in my stomach, again its not painful but more jolting. I will ask my primary though when I see him and see what he thinks might be up. Thanks for your suggestion, I'll try it and it certainly cant hurt any. Hugs Donna Quote Link to comment Share on other sites More sharing options...
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