Guest guest Posted June 6, 2006 Report Posted June 6, 2006 Amazing! I saw MU fans and thought ?Marshall? - it can't be! I grew up in Huntington and my husband graduated from Marshall! I went to undergrad in the southern part of the state - Concord College. We live in New Hampshire now. Welcome - I'm Barbara, mom of two boys, both are deaf. Tom is 13 and Sam is 11 - they both have cochlear implants. it feels so strange to say that - Sam just had his surgery about 2 weeks ago and was just activated yesterday. There are a bunch of parents on this list with kids with LVAS so you'll get lots of good information. I'm glad you're here! Take care Barbara MU Fans wrote: > Hi everyone. Newbie to this group and was referred here by someone > from the LVAS yahoo group. > > My name is Tammy. I live in ton, West Virginia. I have a 10 > year old son with Bilat LVAS - mild to moderate loss but fluctuates > down quite often. > > For a quick summary ....... We discovered in Kindergarten he had a > very mild loss. We had his hearing tested every 6 months and there > was never a change, thus not much concern. When he was in 3rd grade, > all of a sudden it dropped drastically. Within a two day period, it > had fluctuated quite a bit which put up a red flag for us and his ENT. > We had extensive blood work done, CT scan and an MRI. NOBODY could > see anything wrong. My ENT made an appt with Dr. Lambert in > ton, SC at MUSC (4 hrs away from us). He took one look at the > scans and caught it right off. We know of NO other people in our area > or even close that has LVAS and our ENT even admits he doesnt know > much about it, nor does any others in the area that I can find. What > we know about LVAS, we have basically learned on our own. The > Audiologists in our ENTs office are somewhat familiar with LVAS and > they have worked with us very closely and have been absolutely great! > (our son) now wears hearing aids when in classroom settings and > occasionally at other times. He also has an FM system that is > occasionally used. Recently his hearing dropped for no apparent > reason and his audiogram bone test vs' the headphone test (not sure of > the actual names) had a huge gap. He had a small amount of fluid so > we thought antibotics would fix that problem. NOT! We ended up > putting him on steriods, which did get his hearing back up to where it > should be and the two in sync again. Our ENT has mentioned possibly > some sort of bone inflammation since the steriods helped and wants to > consult with Dr. Lambert at MUSC again. I assume we may be making > another trip there in the near future. > > Few questions for all of you if you dont mind ... > > 1. Does anyone know of or had problems with ear bone inflammation? > What is that??? I know steriods is supposed to help different hearing > loss problems but not sure which ones or how/why. Can anyone offer > any suggestions or insight? > > 2. I noticed in the last daily digest that a couple of you had went > to MUSC. Who did you see there (Dr and Audiologist)? Does anyone > know Dr. Lambert? Thoughts? > > 3. Is there anyone in this group familiar with any of the ENT's at > Ohio State University? I have been given the following names if I > decide to go for a second opinion ... Dr. Arrick Forrest, Dr. Ian > Grant, & Dr. Dave . Anyone heard of any of them? OSU is also 3 > hours away but I have a sister living there so it wouldnt be so bad. > > 4. Is there any ENT's or otherwise that anyone knows about that is > closer to ton, WV that I could see for a second opinion. > Preferably familiar and up to date on LVAS. > > 5. Is there anyone close to the ton, WV area in this group? > Would love to hear from you. > > Thanks all for any insight you can offer on the above. > Tammy > > > > > > > > > All messages posted to this list are private and confidential. Each post is the intellectual property of the author and therefore subject to copyright restrictions. > Quote
Guest guest Posted June 6, 2006 Report Posted June 6, 2006 > > Hi everyone. Newbie to this group and was referred here by someone > from the LVAS yahoo group. > > My name is Tammy. I live in ton, West Virginia. I have a 10 > year old son with Bilat LVAS - mild to moderate loss but fluctuates > down quite often. > > For a quick summary ....... We discovered in Kindergarten he had a > very mild loss. We had his hearing tested every 6 months and there > was never a change, thus not much concern. When he was in 3rd grade, > all of a sudden it dropped drastically. Within a two day period, it > had fluctuated quite a bit which put up a red flag for us and his ENT. > We had extensive blood work done, CT scan and an MRI. NOBODY could > see anything wrong. My ENT made an appt with Dr. Lambert in > ton, SC at MUSC (4 hrs away from us). He took one look at the > scans and caught it right off. We know of NO other people in our area > or even close that has LVAS and our ENT even admits he doesnt know > much about it, nor does any others in the area that I can find. What > we know about LVAS, we have basically learned on our own. The > Audiologists in our ENTs office are somewhat familiar with LVAS and > they have worked with us very closely and have been absolutely great! > (our son) now wears hearing aids when in classroom settings and > occasionally at other times. He also has an FM system that is > occasionally used. Recently his hearing dropped for no apparent > reason and his audiogram bone test vs' the headphone test (not sure of > the actual names) had a huge gap. He had a small amount of fluid so > we thought antibotics would fix that problem. NOT! We ended up > putting him on steriods, which did get his hearing back up to where it > should be and the two in sync again. Our ENT has mentioned possibly > some sort of bone inflammation since the steriods helped and wants to > consult with Dr. Lambert at MUSC again. I assume we may be making > another trip there in the near future. > > Few questions for all of you if you dont mind ... > > 1. Does anyone know of or had problems with ear bone inflammation? > What is that??? I know steriods is supposed to help different hearing > loss problems but not sure which ones or how/why. Can anyone offer > any suggestions or insight? > > 2. I noticed in the last daily digest that a couple of you had went > to MUSC. Who did you see there (Dr and Audiologist)? Does anyone > know Dr. Lambert? Thoughts? > > 3. Is there anyone in this group familiar with any of the ENT's at > Ohio State University? I have been given the following names if I > decide to go for a second opinion ... Dr. Arrick Forrest, Dr. Ian > Grant, & Dr. Dave . Anyone heard of any of them? OSU is also 3 > hours away but I have a sister living there so it wouldnt be so bad. > > 4. Is there any ENT's or otherwise that anyone knows about that is > closer to ton, WV that I could see for a second opinion. > Preferably familiar and up to date on LVAS. > > 5. Is there anyone close to the ton, WV area in this group? > Would love to hear from you. > > Thanks all for any insight you can offer on the above. > Tammy > Quote
Guest guest Posted June 6, 2006 Report Posted June 6, 2006 > > Hi everyone. Newbie to this group and was referred here by someone > from the LVAS yahoo group. > > My name is Tammy. I live in ton, West Virginia. I have a 10 > year old son with Bilat LVAS - mild to moderate loss but fluctuates > down quite often. > > For a quick summary ....... We discovered in Kindergarten he had a > very mild loss. We had his hearing tested every 6 months and there > was never a change, thus not much concern. When he was in 3rd grade, > all of a sudden it dropped drastically. Within a two day period, it > had fluctuated quite a bit which put up a red flag for us and his ENT. > We had extensive blood work done, CT scan and an MRI. NOBODY could > see anything wrong. My ENT made an appt with Dr. Lambert in > ton, SC at MUSC (4 hrs away from us). He took one look at the > scans and caught it right off. We know of NO other people in our area > or even close that has LVAS and our ENT even admits he doesnt know > much about it, nor does any others in the area that I can find. What > we know about LVAS, we have basically learned on our own. The > Audiologists in our ENTs office are somewhat familiar with LVAS and > they have worked with us very closely and have been absolutely great! > (our son) now wears hearing aids when in classroom settings and > occasionally at other times. He also has an FM system that is > occasionally used. Recently his hearing dropped for no apparent > reason and his audiogram bone test vs' the headphone test (not sure of > the actual names) had a huge gap. He had a small amount of fluid so > we thought antibotics would fix that problem. NOT! We ended up > putting him on steriods, which did get his hearing back up to where it > should be and the two in sync again. Our ENT has mentioned possibly > some sort of bone inflammation since the steriods helped and wants to > consult with Dr. Lambert at MUSC again. I assume we may be making > another trip there in the near future. > > Few questions for all of you if you dont mind ... > > 1. Does anyone know of or had problems with ear bone inflammation? > What is that??? I know steriods is supposed to help different hearing > loss problems but not sure which ones or how/why. Can anyone offer > any suggestions or insight? > > 2. I noticed in the last daily digest that a couple of you had went > to MUSC. Who did you see there (Dr and Audiologist)? Does anyone > know Dr. Lambert? Thoughts? > > 3. Is there anyone in this group familiar with any of the ENT's at > Ohio State University? I have been given the following names if I > decide to go for a second opinion ... Dr. Arrick Forrest, Dr. Ian > Grant, & Dr. Dave . Anyone heard of any of them? OSU is also 3 > hours away but I have a sister living there so it wouldnt be so bad. > > 4. Is there any ENT's or otherwise that anyone knows about that is > closer to ton, WV that I could see for a second opinion. > Preferably familiar and up to date on LVAS. > > 5. Is there anyone close to the ton, WV area in this group? > Would love to hear from you. > > Thanks all for any insight you can offer on the above. > Tammy > Quote
Guest guest Posted June 6, 2006 Report Posted June 6, 2006 > > Hi everyone. Newbie to this group and was referred here by someone > from the LVAS yahoo group. > > My name is Tammy. I live in ton, West Virginia. I have a 10 > year old son with Bilat LVAS - mild to moderate loss but fluctuates > down quite often. > > For a quick summary ....... We discovered in Kindergarten he had a > very mild loss. We had his hearing tested every 6 months and there > was never a change, thus not much concern. When he was in 3rd grade, > all of a sudden it dropped drastically. Within a two day period, it > had fluctuated quite a bit which put up a red flag for us and his ENT. > We had extensive blood work done, CT scan and an MRI. NOBODY could > see anything wrong. My ENT made an appt with Dr. Lambert in > ton, SC at MUSC (4 hrs away from us). He took one look at the > scans and caught it right off. We know of NO other people in our area > or even close that has LVAS and our ENT even admits he doesnt know > much about it, nor does any others in the area that I can find. What > we know about LVAS, we have basically learned on our own. The > Audiologists in our ENTs office are somewhat familiar with LVAS and > they have worked with us very closely and have been absolutely great! > (our son) now wears hearing aids when in classroom settings and > occasionally at other times. He also has an FM system that is > occasionally used. Recently his hearing dropped for no apparent > reason and his audiogram bone test vs' the headphone test (not sure of > the actual names) had a huge gap. He had a small amount of fluid so > we thought antibotics would fix that problem. NOT! We ended up > putting him on steriods, which did get his hearing back up to where it > should be and the two in sync again. Our ENT has mentioned possibly > some sort of bone inflammation since the steriods helped and wants to > consult with Dr. Lambert at MUSC again. I assume we may be making > another trip there in the near future. > > Few questions for all of you if you dont mind ... > > 1. Does anyone know of or had problems with ear bone inflammation? > What is that??? I know steriods is supposed to help different hearing > loss problems but not sure which ones or how/why. Can anyone offer > any suggestions or insight? > > 2. I noticed in the last daily digest that a couple of you had went > to MUSC. Who did you see there (Dr and Audiologist)? Does anyone > know Dr. Lambert? Thoughts? > > 3. Is there anyone in this group familiar with any of the ENT's at > Ohio State University? I have been given the following names if I > decide to go for a second opinion ... Dr. Arrick Forrest, Dr. Ian > Grant, & Dr. Dave . Anyone heard of any of them? OSU is also 3 > hours away but I have a sister living there so it wouldnt be so bad. > > 4. Is there any ENT's or otherwise that anyone knows about that is > closer to ton, WV that I could see for a second opinion. > Preferably familiar and up to date on LVAS. > > 5. Is there anyone close to the ton, WV area in this group? > Would love to hear from you. > > Thanks all for any insight you can offer on the above. > Tammy > Quote
Guest guest Posted June 6, 2006 Report Posted June 6, 2006 > > Hi everyone. Newbie to this group and was referred here by someone > from the LVAS yahoo group. > > My name is Tammy. I live in ton, West Virginia. I have a 10 > year old son with Bilat LVAS - mild to moderate loss but fluctuates > down quite often. > > For a quick summary ....... We discovered in Kindergarten he had a > very mild loss. We had his hearing tested every 6 months and there > was never a change, thus not much concern. When he was in 3rd grade, > all of a sudden it dropped drastically. Within a two day period, it > had fluctuated quite a bit which put up a red flag for us and his ENT. > We had extensive blood work done, CT scan and an MRI. NOBODY could > see anything wrong. My ENT made an appt with Dr. Lambert in > ton, SC at MUSC (4 hrs away from us). He took one look at the > scans and caught it right off. We know of NO other people in our area > or even close that has LVAS and our ENT even admits he doesnt know > much about it, nor does any others in the area that I can find. What > we know about LVAS, we have basically learned on our own. The > Audiologists in our ENTs office are somewhat familiar with LVAS and > they have worked with us very closely and have been absolutely great! > (our son) now wears hearing aids when in classroom settings and > occasionally at other times. He also has an FM system that is > occasionally used. Recently his hearing dropped for no apparent > reason and his audiogram bone test vs' the headphone test (not sure of > the actual names) had a huge gap. He had a small amount of fluid so > we thought antibotics would fix that problem. NOT! We ended up > putting him on steriods, which did get his hearing back up to where it > should be and the two in sync again. Our ENT has mentioned possibly > some sort of bone inflammation since the steriods helped and wants to > consult with Dr. Lambert at MUSC again. I assume we may be making > another trip there in the near future. > > Few questions for all of you if you dont mind ... > > 1. Does anyone know of or had problems with ear bone inflammation? > What is that??? I know steriods is supposed to help different hearing > loss problems but not sure which ones or how/why. Can anyone offer > any suggestions or insight? > > 2. I noticed in the last daily digest that a couple of you had went > to MUSC. Who did you see there (Dr and Audiologist)? Does anyone > know Dr. Lambert? Thoughts? > > 3. Is there anyone in this group familiar with any of the ENT's at > Ohio State University? I have been given the following names if I > decide to go for a second opinion ... Dr. Arrick Forrest, Dr. Ian > Grant, & Dr. Dave . Anyone heard of any of them? OSU is also 3 > hours away but I have a sister living there so it wouldnt be so bad. > > 4. Is there any ENT's or otherwise that anyone knows about that is > closer to ton, WV that I could see for a second opinion. > Preferably familiar and up to date on LVAS. > > 5. Is there anyone close to the ton, WV area in this group? > Would love to hear from you. > > Thanks all for any insight you can offer on the above. > Tammy > Quote
Guest guest Posted June 6, 2006 Report Posted June 6, 2006 > > Hi everyone. Newbie to this group and was referred here by someone > from the LVAS yahoo group. > > My name is Tammy. I live in ton, West Virginia. I have a 10 > year old son with Bilat LVAS - mild to moderate loss but fluctuates > down quite often. > > For a quick summary ....... We discovered in Kindergarten he had a > very mild loss. We had his hearing tested every 6 months and there > was never a change, thus not much concern. When he was in 3rd grade, > all of a sudden it dropped drastically. Within a two day period, it > had fluctuated quite a bit which put up a red flag for us and his ENT. > We had extensive blood work done, CT scan and an MRI. NOBODY could > see anything wrong. My ENT made an appt with Dr. Lambert in > ton, SC at MUSC (4 hrs away from us). He took one look at the > scans and caught it right off. We know of NO other people in our area > or even close that has LVAS and our ENT even admits he doesnt know > much about it, nor does any others in the area that I can find. What > we know about LVAS, we have basically learned on our own. The > Audiologists in our ENTs office are somewhat familiar with LVAS and > they have worked with us very closely and have been absolutely great! > (our son) now wears hearing aids when in classroom settings and > occasionally at other times. He also has an FM system that is > occasionally used. Recently his hearing dropped for no apparent > reason and his audiogram bone test vs' the headphone test (not sure of > the actual names) had a huge gap. He had a small amount of fluid so > we thought antibotics would fix that problem. NOT! We ended up > putting him on steriods, which did get his hearing back up to where it > should be and the two in sync again. Our ENT has mentioned possibly > some sort of bone inflammation since the steriods helped and wants to > consult with Dr. Lambert at MUSC again. I assume we may be making > another trip there in the near future. > > Few questions for all of you if you dont mind ... > > 1. Does anyone know of or had problems with ear bone inflammation? > What is that??? I know steriods is supposed to help different hearing > loss problems but not sure which ones or how/why. Can anyone offer > any suggestions or insight? > > 2. I noticed in the last daily digest that a couple of you had went > to MUSC. Who did you see there (Dr and Audiologist)? Does anyone > know Dr. Lambert? Thoughts? > > 3. Is there anyone in this group familiar with any of the ENT's at > Ohio State University? I have been given the following names if I > decide to go for a second opinion ... Dr. Arrick Forrest, Dr. Ian > Grant, & Dr. Dave . Anyone heard of any of them? OSU is also 3 > hours away but I have a sister living there so it wouldnt be so bad. > > 4. Is there any ENT's or otherwise that anyone knows about that is > closer to ton, WV that I could see for a second opinion. > Preferably familiar and up to date on LVAS. > > 5. Is there anyone close to the ton, WV area in this group? > Would love to hear from you. > > Thanks all for any insight you can offer on the above. > Tammy > Quote
Guest guest Posted June 6, 2006 Report Posted June 6, 2006 > > Hi everyone. Newbie to this group and was referred here by someone > from the LVAS yahoo group. > > My name is Tammy. I live in ton, West Virginia. I have a 10 > year old son with Bilat LVAS - mild to moderate loss but fluctuates > down quite often. > > For a quick summary ....... We discovered in Kindergarten he had a > very mild loss. We had his hearing tested every 6 months and there > was never a change, thus not much concern. When he was in 3rd grade, > all of a sudden it dropped drastically. Within a two day period, it > had fluctuated quite a bit which put up a red flag for us and his ENT. > We had extensive blood work done, CT scan and an MRI. NOBODY could > see anything wrong. My ENT made an appt with Dr. Lambert in > ton, SC at MUSC (4 hrs away from us). He took one look at the > scans and caught it right off. We know of NO other people in our area > or even close that has LVAS and our ENT even admits he doesnt know > much about it, nor does any others in the area that I can find. What > we know about LVAS, we have basically learned on our own. The > Audiologists in our ENTs office are somewhat familiar with LVAS and > they have worked with us very closely and have been absolutely great! > (our son) now wears hearing aids when in classroom settings and > occasionally at other times. He also has an FM system that is > occasionally used. Recently his hearing dropped for no apparent > reason and his audiogram bone test vs' the headphone test (not sure of > the actual names) had a huge gap. He had a small amount of fluid so > we thought antibotics would fix that problem. NOT! We ended up > putting him on steriods, which did get his hearing back up to where it > should be and the two in sync again. Our ENT has mentioned possibly > some sort of bone inflammation since the steriods helped and wants to > consult with Dr. Lambert at MUSC again. I assume we may be making > another trip there in the near future. > > Few questions for all of you if you dont mind ... > > 1. Does anyone know of or had problems with ear bone inflammation? > What is that??? I know steriods is supposed to help different hearing > loss problems but not sure which ones or how/why. Can anyone offer > any suggestions or insight? > > 2. I noticed in the last daily digest that a couple of you had went > to MUSC. Who did you see there (Dr and Audiologist)? Does anyone > know Dr. Lambert? Thoughts? > > 3. Is there anyone in this group familiar with any of the ENT's at > Ohio State University? I have been given the following names if I > decide to go for a second opinion ... Dr. Arrick Forrest, Dr. Ian > Grant, & Dr. Dave . Anyone heard of any of them? OSU is also 3 > hours away but I have a sister living there so it wouldnt be so bad. > > 4. Is there any ENT's or otherwise that anyone knows about that is > closer to ton, WV that I could see for a second opinion. > Preferably familiar and up to date on LVAS. > > 5. Is there anyone close to the ton, WV area in this group? > Would love to hear from you. > > Thanks all for any insight you can offer on the above. > Tammy > Quote
Guest guest Posted June 6, 2006 Report Posted June 6, 2006 > > Hi everyone. Newbie to this group and was referred here by someone > from the LVAS yahoo group. Hi Tammy, That would be me. So glad you made it over. These listmates have been a wonderful resource for coping with many of issues that we have discussed. Tracey Quote
Guest guest Posted June 6, 2006 Report Posted June 6, 2006 > > Hi everyone. Newbie to this group and was referred here by someone > from the LVAS yahoo group. Hi Tammy, That would be me. So glad you made it over. These listmates have been a wonderful resource for coping with many of issues that we have discussed. Tracey Quote
Guest guest Posted June 6, 2006 Report Posted June 6, 2006 > > Hi everyone. Newbie to this group and was referred here by someone > from the LVAS yahoo group. Hi Tammy, That would be me. So glad you made it over. These listmates have been a wonderful resource for coping with many of issues that we have discussed. Tracey Quote
Guest guest Posted June 6, 2006 Report Posted June 6, 2006 Hi Tammy, I¹m and I live in Athens in Southeast Ohio. My 9 month old son sees an ENT at Cincinnati Children¹s named Dr. Ellis Arjmand. We have only seen him 3 times but have been thoroughly impressed with his professionalism, intelligence, and experience. He even called our home to see how my husband and I were doing after giving us some bad news on one visit. I know it¹s not much closer to you than Columbus, but we have been told by numerous folks here at Ohio University that the best pediatric ENT¹s and audiologists in Ohio are at Cincinnati Children¹s. Can¹t help you with your other questions though :-) Best, Innis Quote
Guest guest Posted June 6, 2006 Report Posted June 6, 2006 Hi Tammy, I¹m and I live in Athens in Southeast Ohio. My 9 month old son sees an ENT at Cincinnati Children¹s named Dr. Ellis Arjmand. We have only seen him 3 times but have been thoroughly impressed with his professionalism, intelligence, and experience. He even called our home to see how my husband and I were doing after giving us some bad news on one visit. I know it¹s not much closer to you than Columbus, but we have been told by numerous folks here at Ohio University that the best pediatric ENT¹s and audiologists in Ohio are at Cincinnati Children¹s. Can¹t help you with your other questions though :-) Best, Innis Quote
Guest guest Posted June 6, 2006 Report Posted June 6, 2006 Hi Tammy, I¹m and I live in Athens in Southeast Ohio. My 9 month old son sees an ENT at Cincinnati Children¹s named Dr. Ellis Arjmand. We have only seen him 3 times but have been thoroughly impressed with his professionalism, intelligence, and experience. He even called our home to see how my husband and I were doing after giving us some bad news on one visit. I know it¹s not much closer to you than Columbus, but we have been told by numerous folks here at Ohio University that the best pediatric ENT¹s and audiologists in Ohio are at Cincinnati Children¹s. Can¹t help you with your other questions though :-) Best, Innis Quote
Guest guest Posted June 7, 2006 Report Posted June 7, 2006 Tammy, HI, I can't answer your questions but I wanted to share a little information with you. We are actually in ton SC, and our girls go to MUSC. We where very blessed when we moved here 11 years ago that Dr. Weber was the ENT at MUSC. Both of our daughters have LVAS and he had much knowledge on the subject. He has published some on LVAS in the medical field. He did both the girls cochlear implants, in 1999. He has moved now and is at Clevland Clinic. Just thought I might tell you about him as he might be able to help you locate someone in your area that has knowledge on LVAS. I would also like to say that the program at MUSC is wonderful. Although I have not personally meet DR. Lambert, I do hear very good things about him. AB 8/99 Holly AB 12/99 Newbie with questions Hi everyone. Newbie to this group and was referred here by someone from the LVAS yahoo group. My name is Tammy. I live in ton, West Virginia. I have a 10 year old son with Bilat LVAS - mild to moderate loss but fluctuates down quite often. For a quick summary ....... We discovered in Kindergarten he had a very mild loss. We had his hearing tested every 6 months and there was never a change, thus not much concern. When he was in 3rd grade, all of a sudden it dropped drastically. Within a two day period, it had fluctuated quite a bit which put up a red flag for us and his ENT. We had extensive blood work done, CT scan and an MRI. NOBODY could see anything wrong. My ENT made an appt with Dr. Lambert in ton, SC at MUSC (4 hrs away from us). He took one look at the scans and caught it right off. We know of NO other people in our area or even close that has LVAS and our ENT even admits he doesnt know much about it, nor does any others in the area that I can find. What we know about LVAS, we have basically learned on our own. The Audiologists in our ENTs office are somewhat familiar with LVAS and they have worked with us very closely and have been absolutely great! (our son) now wears hearing aids when in classroom settings and occasionally at other times. He also has an FM system that is occasionally used. Recently his hearing dropped for no apparent reason and his audiogram bone test vs' the headphone test (not sure of the actual names) had a huge gap. He had a small amount of fluid so we thought antibotics would fix that problem. NOT! We ended up putting him on steriods, which did get his hearing back up to where it should be and the two in sync again. Our ENT has mentioned possibly some sort of bone inflammation since the steriods helped and wants to consult with Dr. Lambert at MUSC again. I assume we may be making another trip there in the near future. Few questions for all of you if you dont mind ... 1. Does anyone know of or had problems with ear bone inflammation? What is that??? I know steriods is supposed to help different hearing loss problems but not sure which ones or how/why. Can anyone offer any suggestions or insight? 2. I noticed in the last daily digest that a couple of you had went to MUSC. Who did you see there (Dr and Audiologist)? Does anyone know Dr. Lambert? Thoughts? 3. Is there anyone in this group familiar with any of the ENT's at Ohio State University? I have been given the following names if I decide to go for a second opinion ... Dr. Arrick Forrest, Dr. Ian Grant, & Dr. Dave . Anyone heard of any of them? OSU is also 3 hours away but I have a sister living there so it wouldnt be so bad. 4. Is there any ENT's or otherwise that anyone knows about that is closer to ton, WV that I could see for a second opinion. Preferably familiar and up to date on LVAS. 5. Is there anyone close to the ton, WV area in this group? Would love to hear from you. Thanks all for any insight you can offer on the above. Tammy All messages posted to this list are private and confidential. Each post is the intellectual property of the author and therefore subject to copyright restrictions. Quote
Guest guest Posted June 7, 2006 Report Posted June 7, 2006 Hi, Tammy, We live in Savannah, GA but go to MUSC in ton every few months to see an Auditory-Verbal therapist, Nevitte Swink, who is wonderful. When we were preparing to move from Boston to Savannah, our ENT at Children's Hospital in Boston was familiar with Dr. Lambert and encouraged us to see him if need be. So far, we've been happy with the ENT here in Savannah, so we have not used him yet. As for the (pediatric) audiologist at MUSC, Snyder, we have not see her yet, but are scheduled to in a few weeks -- we have one locally here, but I've heard wonderful things about and am eager to meet with her. I can let you know how it goes. Deganit mom to Jordan, 19 months, mild-moderate SNHL > > Hi everyone. Newbie to this group and was referred here by someone > from the LVAS yahoo group. > > My name is Tammy. I live in ton, West Virginia. I have a 10 > year old son with Bilat LVAS - mild to moderate loss but fluctuates > down quite often. > > For a quick summary ....... We discovered in Kindergarten he had a > very mild loss. We had his hearing tested every 6 months and there > was never a change, thus not much concern. When he was in 3rd grade, > all of a sudden it dropped drastically. Within a two day period, it > had fluctuated quite a bit which put up a red flag for us and his ENT. > We had extensive blood work done, CT scan and an MRI. NOBODY could > see anything wrong. My ENT made an appt with Dr. Lambert in > ton, SC at MUSC (4 hrs away from us). He took one look at the > scans and caught it right off. We know of NO other people in our area > or even close that has LVAS and our ENT even admits he doesnt know > much about it, nor does any others in the area that I can find. What > we know about LVAS, we have basically learned on our own. The > Audiologists in our ENTs office are somewhat familiar with LVAS and > they have worked with us very closely and have been absolutely great! > (our son) now wears hearing aids when in classroom settings and > occasionally at other times. He also has an FM system that is > occasionally used. Recently his hearing dropped for no apparent > reason and his audiogram bone test vs' the headphone test (not sure of > the actual names) had a huge gap. He had a small amount of fluid so > we thought antibotics would fix that problem. NOT! We ended up > putting him on steriods, which did get his hearing back up to where it > should be and the two in sync again. Our ENT has mentioned possibly > some sort of bone inflammation since the steriods helped and wants to > consult with Dr. Lambert at MUSC again. I assume we may be making > another trip there in the near future. > > Few questions for all of you if you dont mind ... > > 1. Does anyone know of or had problems with ear bone inflammation? > What is that??? I know steriods is supposed to help different hearing > loss problems but not sure which ones or how/why. Can anyone offer > any suggestions or insight? > > 2. I noticed in the last daily digest that a couple of you had went > to MUSC. Who did you see there (Dr and Audiologist)? Does anyone > know Dr. Lambert? Thoughts? > > 3. Is there anyone in this group familiar with any of the ENT's at > Ohio State University? I have been given the following names if I > decide to go for a second opinion ... Dr. Arrick Forrest, Dr. Ian > Grant, & Dr. Dave . Anyone heard of any of them? OSU is also 3 > hours away but I have a sister living there so it wouldnt be so bad. > > 4. Is there any ENT's or otherwise that anyone knows about that is > closer to ton, WV that I could see for a second opinion. > Preferably familiar and up to date on LVAS. > > 5. Is there anyone close to the ton, WV area in this group? > Would love to hear from you. > > Thanks all for any insight you can offer on the above. > Tammy > Quote
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