Guest guest Posted March 13, 2004 Report Share Posted March 13, 2004 Lupus Foundation of America Survey on Health Insurance From: Lupus Foundation of America, Inc. National Office - Dept. of Advocacy & Communications 2000 L Street NW, Suite 710 Washington DC, 20036 The Lupus Foundation of America is conducting a survey regarding access to health care and insurance coverage for people with lupus. This brief survey will help the LFA to gather statistics that will be used in conjunction with advocacy and public policy initiatives in Washington. Participation in this survey is voluntary and answers are submitted anonymously. No personally identifiable information will be gathered. A summary of the results will be published on the LFA website in a few weeks. To access the survey click on link below (or copy and paste into your web browser address line). If this link does not work, go to the Lupus Foundation of America home page at www.lupus.org and click on the survey link in the Awareness News section. http://www.lupus.org/awareness/survey_insurance.html Thank you for taking this survey. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 14, 2004 Report Share Posted March 14, 2004 Hey Guys and Gals, I went to the Lupus website to do the survery that was kind enough to us. However the first question ask, Were you diagnosed with lupus less then 3 years, and the next two questions are similar. The last question "Have you not been diagnosed with lupus?" I do not have lupus put Primary Sjogren's. My Doc said it's "the evil twin of lupus". Do you believe this survey is for folks like me or strictly for folks that have been diagnosed with Lupus and not for Lupus' family members? Sjogrens and Lupus are treated pretty much exactly the same. I would appreciate your help! Thanks! Elaine Lupus Foundation of America Survey on Health Insurance From: Lupus Foundation of America, Inc. National Office - Dept. of Advocacy & Communications 2000 L Street NW, Suite 710 Washington DC, 20036 The Lupus Foundation of America is conducting a survey regarding access to health care and insurance coverage for people with lupus. This brief survey will help the LFA to gather statistics that will be used in conjunction with advocacy and public policy initiatives in Washington. Participation in this survey is voluntary and answers are submitted anonymously. No personally identifiable information will be gathered. A summary of the results will be published on the LFA website in a few weeks. To access the survey click on link below (or copy and paste into your web browser address line). If this link does not work, go to the Lupus Foundation of America home page at www.lupus.org and click on the survey link in the Awareness News section. http://www.lupus.org/awareness/survey_insurance.html Thank you for taking this survey. "The LUPIES Store" Come check out our store...http://www.cafepress.com/thelupies"The LUPIES Web Page"http://www.itzarion.com/lupusgroup.html"The LUPIES online photo albums!" Check out what your fellow Lupies look like...http://www.picturetrail.com/gallery/view?username=lupies Quote Link to comment Share on other sites More sharing options...
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