Guest guest Posted October 23, 2004 Report Share Posted October 23, 2004 Hi! We just got back from Hopkins for the initiation of the diet with my 2 year old son, . So far each day has brought us more seizure control! We started at 50+ myoclonics a day and are now at 16! We just keep praying it will continue! Prior to initiating the diet jackson was on melatonin to help him go to sleep. Honestly, I didn't think it was really THAT big of a help, but now I am beginning to wonder! He was up last night until after 10 - seemed to WANT to go to sleep, just couldn't quite do it! It was similar to how it was when we got him on the melatonin in the first place! I'm going to e-mail our dietician, of course, but was wondering if any of you had any insight before i do so. Ingredients are: cellulose (which is OK if I remember correctly), silica, stearic acid, cellulose gun (this is what worries me! the " gum " part), and magnesium sterate. I've enjoyed " lurking " prior to our hospital stay and felt so prepared thanks to the hard work of all of you! Hopefully, I'll have something worth contributing soon! Thanks! Leigh Quote Link to comment Share on other sites More sharing options...
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