Re: Question for Caitlin or others......re: fluids

[Guest guest]

Hi

I don't know about fluids but I do know that another experienced Mum in the UK

has

had a problem with high ketones by bedtime and she deals with it by giving a

small

amount of fruit as a corrective measure, something like once at lunchtime and

once

late p.m. This is a bit less drastic than fruit juice (which is what I had been

doing!)

This particular child operates better on wee ketones of between 4 and 8. How

much

control do you have over what you do with the diet - could you experiment with

the

fruit or would you have to get " permission " ?!

Rose - Ben's mum

[Guest guest]

,

My also got too ketotic at the end of the day when we first

started the diet. She started at 3:1. We discovered quickly that

she didn't need really high ketones to control her seizures. She did

best with urine ketones around 80 (we didn't do blood ketones at

home). 80-160 was o.k. sometimes, but other times she didn't feel

well when ketones were at that level. 160 was definitely too high

for her. We gave juice, like you, just to see if it helped. It

did... so our dietician told us to relax the fluid restrictions that

we had been given. We increased fluids slowly and I kept track of

the amount she was drinking. She drank small amounts (2-3oz) more

often, rather than large drinks at once. Soon we found we could let

her drink as much as she wanted. Problem solved. She took a water

bottle to school and kept it at her desk. Looking back, I can say it

was very helpful for to " form " ketones easily. It has made our

diet experience easier. Maybe that's a " " thing!!--LOL

I can't remember your 's age or how well the diet is controlling

her seizures, but I don't think it would hurt to experiment with

increasing fluids. My was 7 when she started the diet. Her

initial fluid intake was 36oz. per day.

Cammie

>

> Hi...

>

> Again, I need some help.

>

> My daughter is 39lbs...almost 40, on a 900 calorie diet, 2.5:1

ratio

> that may need to be lowered. I am wondering if she is getting

enough

> fluids. Does 30 oz. sound like enough? She is not extremely

> active. Her ketones are getting very high by bedtime, to the point

> she awakens and is uncomfortable... and needs apple juice to settle

> them down but before I lower the ratio I am wondering if I should

be

> upping the fluids and that might help.

>

> Thanks to anyone knowing, or having a child with the same approx.

> stats to compare with... , 's mumma.

[Guest guest]

Hi , I know Kristan is much younger than , but Kristan is

suppose to have 900-1000 ml of fluid a day. Most of that she gets

with her formula. In Dr. Freeman's book it says liquid allotments

are set at 60-70cc or an average of 65 cc per kilo of body weight per

day. I have an older version of the book, I'm not sure what the up

to date one says. But, then I have also read in previous posts that

fluids don't need to be restricted, give as much as your child will

take.

Hope this helps. I hope the seizures are staying away from .

Kristan has been doing better these past few days, seizures are

coming down. I'm hoping that she may just do well on a lower ratio

like and then I will just keep her on it if the seizures keep

going down and hopefully stop altogether. She's currently on a 3:1

ratio and we go down at the end of the month to 2.5:1.

Satnam, mom to Kristan, 22 months

Keto kid since August 2003 and currently weaning from the diet.

>

> Hi...

>

> Again, I need some help.

>

> My daughter is 39lbs...almost 40, on a 900 calorie diet, 2.5:1

ratio

> that may need to be lowered. I am wondering if she is getting

enough

> fluids. Does 30 oz. sound like enough? She is not extremely

> active. Her ketones are getting very high by bedtime, to the point

> she awakens and is uncomfortable... and needs apple juice to settle

> them down but before I lower the ratio I am wondering if I should

be

> upping the fluids and that might help.

>

> Thanks to anyone knowing, or having a child with the same approx.

> stats to compare with... , 's mumma.

[Guest guest]

Dear

Sorry for the delay in responding. Lily is on an unrestricted fluid

amount. She generally gets at least 4 8-10 oz. bottles a day,

usually 5 bottles.

I wish I could help with the ketone issue - the number relating to

ketones is Greek to me. I just test Lily's using the strip and it's

either moderate or large. She maintains ketosis pretty easily, has

never to my knowledge slipped lower than moderate, and only was in the

moderate range a couple of times. The amount of fluid she has only

affects how much she pees, not her ketones that I can tell. Of

course, with the diet and some of the drugs, more fluid is better,

with the kidney stone issue.

Hope that's of some help.

Caitlin

>

> Hi...

>

> Again, I need some help.

>

> My daughter is 39lbs...almost 40, on a 900 calorie diet, 2.5:1 ratio

> that may need to be lowered. I am wondering if she is getting

enough

> fluids. Does 30 oz. sound like enough? She is not extremely

> active. Her ketones are getting very high by bedtime, to the point

> she awakens and is uncomfortable... and needs apple juice to settle

> them down but before I lower the ratio I am wondering if I should be

> upping the fluids and that might help.

>

> Thanks to anyone knowing, or having a child with the same approx.

> stats to compare with... , 's mumma.

[Guest guest]

Dear

Sorry for the delay in responding. Lily is on an unrestricted fluid

amount. She generally gets at least 4 8-10 oz. bottles a day,

usually 5 bottles.

I wish I could help with the ketone issue - the number relating to

ketones is Greek to me. I just test Lily's using the strip and it's

either moderate or large. She maintains ketosis pretty easily, has

never to my knowledge slipped lower than moderate, and only was in the

moderate range a couple of times. The amount of fluid she has only

affects how much she pees, not her ketones that I can tell. Of

course, with the diet and some of the drugs, more fluid is better,

with the kidney stone issue.

Hope that's of some help.

Caitlin

>

> Hi...

>

> Again, I need some help.

>

> My daughter is 39lbs...almost 40, on a 900 calorie diet, 2.5:1 ratio

> that may need to be lowered. I am wondering if she is getting

enough

> fluids. Does 30 oz. sound like enough? She is not extremely

> active. Her ketones are getting very high by bedtime, to the point

> she awakens and is uncomfortable... and needs apple juice to settle

> them down but before I lower the ratio I am wondering if I should be

> upping the fluids and that might help.

>

> Thanks to anyone knowing, or having a child with the same approx.

> stats to compare with... , 's mumma.

[Guest guest]

Dear

Sorry for the delay in responding. Lily is on an unrestricted fluid

amount. She generally gets at least 4 8-10 oz. bottles a day,

usually 5 bottles.

I wish I could help with the ketone issue - the number relating to

ketones is Greek to me. I just test Lily's using the strip and it's

either moderate or large. She maintains ketosis pretty easily, has

never to my knowledge slipped lower than moderate, and only was in the

moderate range a couple of times. The amount of fluid she has only

affects how much she pees, not her ketones that I can tell. Of

course, with the diet and some of the drugs, more fluid is better,

with the kidney stone issue.

Hope that's of some help.

Caitlin

>

> Hi...

>

> Again, I need some help.

>

> My daughter is 39lbs...almost 40, on a 900 calorie diet, 2.5:1 ratio

> that may need to be lowered. I am wondering if she is getting

enough

> fluids. Does 30 oz. sound like enough? She is not extremely

> active. Her ketones are getting very high by bedtime, to the point

> she awakens and is uncomfortable... and needs apple juice to settle

> them down but before I lower the ratio I am wondering if I should be

> upping the fluids and that might help.

>

> Thanks to anyone knowing, or having a child with the same approx.

> stats to compare with... , 's mumma.