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Re: alternatives/Barbara

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Hi Barbara,

It seems to me that you should try the diet without the meds

before giving up. My doctor always said, " the diet works best

without meds. " My 11 year-old son's seizures did not stop until he

was off meds. But, some of those siezures may have been due to

withdrawal as the meds were weaned. If you have success after

taking her off meds, it might be hard to convince her to stay on the

diet a few more years, but then, maybe she would improve enough to

want to stay on the diet. There is also the small possibility that

the meds are causing her seizures (or making them worse). Best

wishes.

Hello to all my other pals out there! I might have missed news

from you all, since I haven't even been lurking much in the last few

weeks (much less posting). I love you all, and those special kids,

too!

Gretchen mom to Ethan 11, keto kid since 02/04; seizure and drug

free since May 04

>

> Hi,

> I don't post much, and usually when i have a question or problem.

> but i do appreciate all the info that is shared.

>

> my daughter leah is 11 and has been on the diet for 1.5 year.

> varying succes. at this time we are weaning off. she can't take

> the cream and oil, she wants cookie popcorn and ice cream.

althougt

> she will not have that for a long time. we have convinced the

> dietian to let her have 1 piece of gum a day.( orbits.)

>

> This is my question. Has anyone investigate or tried the eat for

> your blood type diet. we went to the D'Adamo Institute in

> Portsmouth,NH ( i have a friend with cancer who has been going for

> about 7 years). They are suggestioning a change in eating (leah

is

> type O blood), Vegtables and Protien, no dairy, with supplements.

> Since we are already weaning her from the diet, we are ramping her

> up on this other diet. We are not taking her off her meds,

(keppra

> and felbatol, not that they work)until we see some change.

>

> or should we stay on the Keto diet and take her off the meds.

this

> is my debate.

>

> Any thoughts?

>

> Barbara,

> mom of leah, 11, absence seizures

> we go to mass general in boston

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