nasal and mouth sores / methotrexate

[Guest guest]

Hi ,

I am sorry you are

having such a tough time of it. I hope that the methotrexate is helpful for

you and you get your sores under control.

From:

Sent: Monday, March 08, 2004 12:48

PM

To: lupies

Subject: checking in...

nasal and mouth sores / methotrexate / restarting prednisone / brenda's

wheelchair

She's putting

me back on the prednisone (I came off in December because of the damage it has

done to my skin and the weight gain) and I have to go back to her on the

29th. She said if I can tell her I am feeling dramatically better with

the prednisone, she will put me on the methotrexate. I expressed my

concern with this because I really haven't read good things about it from most

of the people here, but she said we have to weigh the benefits versus how I am

doing right now. She said that this is the first time that she was able

to with out a doubt say that she feels joint swelling... she says it is

difficult because of my weight. So she ordered, gosh, a ton of blood

work, we're talking 13 vials!! and xrays of my knees to see how the arthritis

has progressed. She also is interested in seeing if the miacalcin for the

osteoporosis is helping any. She says she still isn't convinced that I

don't have MS, so in three weeks she may be ordering another spinal :(

The sores I

have in my mouth and nose are just horrible. I have more on my trunk as

well, but not such a big deal, I put some desitin on it and they aren't as

bad... for the nose ones I mix up some prescriptions from my dermatologist

(Vytone and Bactroban) with some Blistex and neosporin. Takes some time

to mix them, but it helps a lot! But I haven't been able to