Re: Thyroid / Saro- off topic-

September 5, 2004

,

Thanks for your post. The lump I had was hard and sticking out

and sort of moved about a bit with the skin if I pushed on the skin

near it. I saw it after they took it out and it was white.

, try not to worry about any more lumps. Most probably there

aren't any and even if there was they are sure to be like the first and

harmless.

Funnily enough I was sort of blaming my mum or rather her Dr. for

my thyroid problem. When they first told me about the autoimmune

thing they said they didn't know what causes it. Then I read in a magazine

that if a woman takes iodine when she's pregnant the baby could get

auto immune thyroiditis. When I asked my mum, she said that her dr.

actually gave some drops of iodine in water when she was pregnant

with me.

She didn't know why as she hadn't thought to ask. Anyway I was

thinking that was the cause - but my mum might have shown some

deficiency in a test or somrthing for her dr. to prescribe iodine.

I do need to do a search on Lupus.

Have you noticed that some AEDs mention lupus in the drug info

leaflets. I never took much notice as I thought it's not something

we need worry about.

But it looks relevant now

Saro

& Hill wrote:

> Yeah, I have some skin patches too, the guy I saw last week said it looks

like any of the lupus signs I have are skin only at this point, and that I will

probably end up at a dermatologist and endocrinologist. Mum has quite bad

psoriasis and fibromyalgia, so it looks like I am about to blame her for the

auto immune genetic stuff

> The lump in my arm was really deep down, like not near the surface, found it

in Jan soon after got out of hospital, and er ignored it.....then noticed

it was getting bigger in July, and that the flesh around it (upper arm on the

outside just below my shoulder) was kind of starting to 'dip', that's when I got

moving to find out what it was.

> The surgeon had already booked me in for the thyroidectomy and said he would

remove the arm lump at the same time and have everything biopsied. So I was

fearing the big C everywhere of course, because the thyroid nodules and gland

had grown so big....but then the pathology report came back with nothing

malignant thyroid wise, and that the arm lump was this lupus thing - lupus

profundus, or panniculitis, could be discoid lupus, could be pre-curser to SLE,

or it could be a symptom that I already had SLE. So that's why I had to move on

to the next step and have all those tests arranged.

> The surgeon originally suspected a fibrous lump with mine too, but the flesh

dipping around it meant he was a bit concerned about what could cause atrophy

(yuk), hence the pathology request. There were absolutely no signs on my 'outer'

skin near the lump, no outward lump, no skin abnormalities or spots, it formed

down at the very deepest layer of the dermis, which is why I had to go looking

to even find it in the first place. Makes me wonder if there are any more

floating around! But I am not too keen on finding out quite yet....

>

> ----- Original Message -----

> From: Jay

>

> BTW I have some white patches on my legs which is also autoimmune.

> I must read up on Lupus.

> what is the arm lump you had removed? I had a small lump on the

> back of my arm between the wrist and elbow which removed a long

> time ago. I was told it was a fibrous lump and nothing to worry about.

>

> Saro

>

September 7, 2004

Yeah, am actively ignoring it all for now Saro, I am not going looking for any

more lumps, prob not much point anyway - this one def had to be removed so that

could see for sure what it was, but if any more show up, I will probably not be

zipping into hosp to have them excised anyway.

Yes, I did know that some meds can cause an acquired lupus - seems a very

drastic drug response doesn't it? To cause an imbalance as severe as that in the

immune system

I know that whatever mine is, it is not an aquired type one though, wish in a

way it was....

----- Original Message -----

From: Jay

,